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Experiences with
Ibrutinib
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Richter Transformation Testimonials. Survivors
I think the
Ibrutinib
stopped the Ricther and made the masses not grow.
I think the
Ibrutinib
stopped the Ricther and made the masses not grow.
Priss69
in
CLL Support
4 years ago
Weight loss
I've been on
Ibrutinib
for 3 months and I've been losing weight. Just wondering if anyone else has been affected. I see my doctor on the 14th...
I've been on
Ibrutinib
for 3 months and I've been losing weight. Just wondering if anyone else has been affected. I see my doctor on the 14th...
habsrule
in
CLL Support
4 years ago
CLL Updates From the 2019 ASH Annual Meeting
Combination
ibrutinib
plus venetoclax: Is undetectable minimal residual disease (MRD) a good surrogate endpoint for survival? Why or why not? and more interesting insights here - https://www.cancertherapyadvisor.com/home/meeting-insights/anthony-mato-md-msce/?
Combination
ibrutinib
plus venetoclax: Is undetectable minimal residual disease (MRD) a good surrogate endpoint for survival? Why or why not? and more interesting insights here - https://www.cancertherapyadvisor.com/home/meeting-insights/anthony-mato-md-msce/?
Jm954
Administrator
in
CLL Support
4 years ago
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Off Ibrutinib .. on Acalabrutinib
Off
Ibrutinib
for 2 months , on Acalabrutinib ... all is well , blood tests are almost perfect , next visit to MDAnderson in 3 months ... asked about using Vento in combo with Acalabrutinib and was told that better results will come if I wait a year .. itchy controlled by creams ( CBD and cortisone )
Off
Ibrutinib
for 2 months , on Acalabrutinib ... all is well , blood tests are almost perfect , next visit to MDAnderson in 3 months ... asked about using Vento in combo with Acalabrutinib and was told that better results will come if I wait a year .. itchy controlled by creams ( CBD and cortisone )
fish61
in
CLL Support
4 years ago
Complete Remission
This is amazing as I've only been on
Ibrutinib
for just 3 months & 2 weeks. My biggest surprise was that after examining me he said that my spleen is normal. I haven't heard those words since 1999. Always was enlarged.
This is amazing as I've only been on
Ibrutinib
for just 3 months & 2 weeks. My biggest surprise was that after examining me he said that my spleen is normal. I haven't heard those words since 1999. Always was enlarged.
habsrule
in
CLL Support
4 years ago
IBS
Now I have CLL and am on
Ibrutinib
, just starting my 2nd month. Has anyone experienced any problems with this? Increase in diarrhea or stomach problems. I am 95 years of age.
Now I have CLL and am on
Ibrutinib
, just starting my 2nd month. Has anyone experienced any problems with this? Increase in diarrhea or stomach problems. I am 95 years of age.
Ninetyfive
in
CLL Support
4 years ago
$$$ HELP. Just need to know what these new drugs cost.
Just saw Ivotedfornixon's post and just realized how little I know about
Ibrutinib
and all the other pills out there. I did BR 10/16 to 2/17. According to NCCN guidelines I am in remission. My oncologist told me if I relapse she would treat me with a pill next time. Sounded like no big deal.
Just saw Ivotedfornixon's post and just realized how little I know about
Ibrutinib
and all the other pills out there. I did BR 10/16 to 2/17. According to NCCN guidelines I am in remission. My oncologist told me if I relapse she would treat me with a pill next time. Sounded like no big deal.
louie48
in
CLL Support
4 years ago
Real-World Sequence Patterns of Novel Agents in CLL
The most common BCRi-based therapy used was
ibrutinib
(85.3%), but 42.8% of these patients ended up needing another line of therapy.
The most common BCRi-based therapy used was
ibrutinib
(85.3%), but 42.8% of these patients ended up needing another line of therapy.
Jm954
Administrator
in
CLL Support
4 years ago
Dr Nicole Lamanna's Thoughts on the Recent FDA Approval of Acalabrutinib in CLL
Second-generation BTK inhibitors such as acalabrutinib and zanubrutinib were developed with the hope of similar or possibly improved efficacy and reduced toxicity compared with
ibrutinib
.
Second-generation BTK inhibitors such as acalabrutinib and zanubrutinib were developed with the hope of similar or possibly improved efficacy and reduced toxicity compared with
ibrutinib
.
AussieNeil
Administrator
in
CLL Support
4 years ago
Cataract surgery and CLL
He is on
Ibrutinib
, which seems to help, but he has low platellets count. He will need a cataract surgery on both eyes pretty soon. I am interested to hear others' experiences with cataract surgery while on CLL treatment.
He is on
Ibrutinib
, which seems to help, but he has low platellets count. He will need a cataract surgery on both eyes pretty soon. I am interested to hear others' experiences with cataract surgery while on CLL treatment.
MikeOr
in
CLL Support
4 years ago
My good news and more research news from EHA and iwCLL
his findings related to our co-morbidities: https://cllsociety.org/2019/11/eha-2019-dr-alexey-danilov-discusses-idelalisib-and-comorbidities-in-cll-chronic-lymphocytic-leukemia-patients/ The phase III Alliance A041202 collaborative multi-centered trial demonstrated once and for all the superiority of
ibrutinib
his findings related to our co-morbidities: https://cllsociety.org/2019/11/eha-2019-dr-alexey-danilov-discusses-idelalisib-and-comorbidities-in-cll-chronic-lymphocytic-leukemia-patients/ The phase III Alliance A041202 collaborative multi-centered trial demonstrated once and for all the superiority of
ibrutinib
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Experiences with Ibrutinib?
What are other people’s experience with the
ibrutinib
treatment?
What are other people’s experience with the
ibrutinib
treatment?
Hidden
in
Leukaemia CARE
4 years ago
NEW TREATMENT: RITUXIMAB AND BENDAMUSTINE
Hello, After
Ibrutinib
stopped working for my partner, he will now be embarking on a new treatment. Rituximab and Bendamustine chemotherapy combination. Has anybody had any experience using these drugs together? Many thanks,
Hello, After
Ibrutinib
stopped working for my partner, he will now be embarking on a new treatment. Rituximab and Bendamustine chemotherapy combination. Has anybody had any experience using these drugs together? Many thanks,
pollyg2016
in
Non Hodgkin's Lymphoma Friends
4 years ago
Bloodshot eyes with Ibrutinib and venetoclax.
My husband has been on
Ibrutinib
and venetoclax for several months and he is now starting to have problems with bloodshot eyes. Has anyone else had a problem like this?
My husband has been on
Ibrutinib
and venetoclax for several months and he is now starting to have problems with bloodshot eyes. Has anyone else had a problem like this?
Pinhead1
in
CLL Support
4 years ago
Rash on hands (Erythematous rash to the hypothenar eminence)
My eight months on
ibrutinib
have provided terrific results with my WBC now down to 26 (from high of 186) and Retic at 4.7% (absolute 193.8); absolute Lymph 20.5. My anemia is basically normal.
My eight months on
ibrutinib
have provided terrific results with my WBC now down to 26 (from high of 186) and Retic at 4.7% (absolute 193.8); absolute Lymph 20.5. My anemia is basically normal.
jdolinger
in
CLL Support
4 years ago
Ibrutinib at 92
Her onco wants her to start
ibrutinib
. Due to my moms age I want her final time to be comfortable. I'm not happy with side effects and have tried to give impartial advice to mom. Her onco is quite insistent she starts this treatment. Does anyone near her age have any experience of this drug.
Her onco wants her to start
ibrutinib
. Due to my moms age I want her final time to be comfortable. I'm not happy with side effects and have tried to give impartial advice to mom. Her onco is quite insistent she starts this treatment. Does anyone near her age have any experience of this drug.
Kuschey
in
CLL Support
4 years ago
New Clinical Trail EA9161 with great results!
“A Randomized Phase III Study of the addition of Venetoclax to
Ibrutinib
and Obinutuzumab versus
Ibrutinib
and Obinutuzumab in Untreated Younger Patients with Chronic Lymphocytic Leukemia (CLL)”. I had a new CT scan and bone marrow biopsy the week before I started treatment.
“A Randomized Phase III Study of the addition of Venetoclax to
Ibrutinib
and Obinutuzumab versus
Ibrutinib
and Obinutuzumab in Untreated Younger Patients with Chronic Lymphocytic Leukemia (CLL)”. I had a new CT scan and bone marrow biopsy the week before I started treatment.
Riven8
in
CLL Support
4 years ago
Use of selinexor with ibrutinib to overcome ibrutinib resistance
New study involving the use of selinexor to overcome
ibrutinib
resistance is seen as a “breakthrough” by some people who are undoubtedly smarter than me. Interesting stuff, the plain English explanation is contained at “Breakthrough Increases Efficacy of B-Cell Lymphoid Malignancy Treatment”.
New study involving the use of selinexor to overcome
ibrutinib
resistance is seen as a “breakthrough” by some people who are undoubtedly smarter than me. Interesting stuff, the plain English explanation is contained at “Breakthrough Increases Efficacy of B-Cell Lymphoid Malignancy Treatment”.
SlowCLL
in
CLL Support
4 years ago
Ibrutinib and mouth ulcers
I’ve been on
Ibrutinib
for about a month. All going pretty well but I’ve got a very unpleasant sore mouth/mouth ulcers...has anyone else experienced this? Georgina
I’ve been on
Ibrutinib
for about a month. All going pretty well but I’ve got a very unpleasant sore mouth/mouth ulcers...has anyone else experienced this? Georgina
GD67
in
CLL Support
4 years ago
Imbruvica MADE IN CHINA....How will the Coronavirus effect it?
I understand that the Imbruvica (
ibrutinib
) pills many of us are taking are MADE IN CHINA or at least many of the ingredients are. Does anyone having any information on what the future availability or efficacy of the product will be considering what is going on with the Coronavirus?
I understand that the Imbruvica (
ibrutinib
) pills many of us are taking are MADE IN CHINA or at least many of the ingredients are. Does anyone having any information on what the future availability or efficacy of the product will be considering what is going on with the Coronavirus?
jdolinger
in
CLL Support
4 years ago
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