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Hydrea
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Tea and chocolate while taking Hydrea?
I have been reading some mixed views on whether one should be drinking tea and eating chocolate while taking
Hydrea
. I have no problems with staying off alchohol, but green tea and chocolate is something I absolutely love!
I have been reading some mixed views on whether one should be drinking tea and eating chocolate while taking
Hydrea
. I have no problems with staying off alchohol, but green tea and chocolate is something I absolutely love!
JustKeepSw1mming
in
MPN Voice
5 months ago
My Platelets go down during the warmer months...
My current hematologist said she does not recommend
Hydrea
for this reason. Anyone else with ET have this pattern? My searches on this subject led me to 2 possibilities, one having to do with Vitamin D and the other possibility is that heat can cause lower platelets.
My current hematologist said she does not recommend
Hydrea
for this reason. Anyone else with ET have this pattern? My searches on this subject led me to 2 possibilities, one having to do with Vitamin D and the other possibility is that heat can cause lower platelets.
Plateletsgonewild
in
MPN Voice
1 month ago
weight gain and hydrea
Hello I have been on 500
Hydrea
7 days a week for one year and then 500 for 5 days a week.weight gain also an issue. I am a runner and weight train faithfully and diet had not changed but
Hydrea
was introduced and up 3-5 lbs!!!
Hello I have been on 500
Hydrea
7 days a week for one year and then 500 for 5 days a week.weight gain also an issue. I am a runner and weight train faithfully and diet had not changed but
Hydrea
was introduced and up 3-5 lbs!!!
Sunnylesser
in
MPN Voice
8 months ago
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Chest pains & hypertension due to Interferon or Hydrea?
I had to go on
Hydrea
. Checked with an MPN specialist. He confirmed it was the best option for me at the time. It started well. My platelets went from 960 to 330 in 1 month. I have been on it for 2 months now. However, I am having chest pains and shortness of breath.
I had to go on
Hydrea
. Checked with an MPN specialist. He confirmed it was the best option for me at the time. It started well. My platelets went from 960 to 330 in 1 month. I have been on it for 2 months now. However, I am having chest pains and shortness of breath.
JustKeepSw1mming
in
MPN Voice
4 months ago
Anagrelide (Agrylin)
Was put on
Hydrea
aka hydroxyurea and low dose aspirin immediately. After about a year, began developing side effects and decided to stop the
hydrea
- against my doctor's recommendation. No, she is not an MPN specialist. Went for almost a year with no medication at all.
Was put on
Hydrea
aka hydroxyurea and low dose aspirin immediately. After about a year, began developing side effects and decided to stop the
hydrea
- against my doctor's recommendation. No, she is not an MPN specialist. Went for almost a year with no medication at all.
mpnunlocked
in
MPN Voice
6 months ago
Saw my Haematologist yesterday
My platelet numbers hadn’t changed so she said to maintain the lower dose of
Hydrea
so as not to flare up any mouth ulcers etc. To take it slowly.
My platelet numbers hadn’t changed so she said to maintain the lower dose of
Hydrea
so as not to flare up any mouth ulcers etc. To take it slowly.
Pachena
in
MPN Voice
8 months ago
CALR INCA033989 Antibody Trial
Stopped weekly peg injections is when sick feeling started and 9 months later I switched to
Hydrea
and have slight improvement in how I feel but not much. Platelets hovering between 550k and 625k. 10 years ago I felt mostly fine and had no weakness when platelets were 1.8m.
Stopped weekly peg injections is when sick feeling started and 9 months later I switched to
Hydrea
and have slight improvement in how I feel but not much. Platelets hovering between 550k and 625k. 10 years ago I felt mostly fine and had no weakness when platelets were 1.8m.
George1976
in
MPN Voice
2 months ago
My urine smells very strong on HU?
. 🤔 My daily liquid intake hasn’t changed so I wondered if the smell is from the
Hydrea
? Thank you for your input 😃 Sharon
. 🤔 My daily liquid intake hasn’t changed so I wondered if the smell is from the
Hydrea
? Thank you for your input 😃 Sharon
Pachena
in
MPN Voice
9 months ago
Anagrelide heart palpitations/pounding
I started taking Angerlide a few weeks ago and still take 1
Hydrea
a day. The only side effect I have noticed is the feeling of my heart pounding. Does this symptom go away over time? Should I get my heart checked? Has it effected anyones physical activity as well?
I started taking Angerlide a few weeks ago and still take 1
Hydrea
a day. The only side effect I have noticed is the feeling of my heart pounding. Does this symptom go away over time? Should I get my heart checked? Has it effected anyones physical activity as well?
Zeppelin11
in
MPN Voice
7 months ago
Pain in hip, leg down to shins, ET Jak2 prefibrotic MF
Am on 500mg
Hydrea
5 days x 1 starting 2 on Sat and I’ve been taking 2 on Sunday. 75 mg Asprin plus all other meds on top for neuropathic pain and anxiety I have had multiple spine surgeries over the last 20 plus years including two knee replacements, the spine ops have left me with a compromised nervous
Am on 500mg
Hydrea
5 days x 1 starting 2 on Sat and I’ve been taking 2 on Sunday. 75 mg Asprin plus all other meds on top for neuropathic pain and anxiety I have had multiple spine surgeries over the last 20 plus years including two knee replacements, the spine ops have left me with a compromised nervous
JOL13
in
MPN Voice
5 months ago
Stopping Hydrea
The country I am in has a nationwide supply problem with
Hydrea
and I am about run out. I am on 2 x 500mg a day. How long does it take for your platelets to increase when stopping
hydrea
? I was at 1.5mil when started with
Hydrea
and now am at 300k.
The country I am in has a nationwide supply problem with
Hydrea
and I am about run out. I am on 2 x 500mg a day. How long does it take for your platelets to increase when stopping
hydrea
? I was at 1.5mil when started with
Hydrea
and now am at 300k.
May2019
in
MPN Voice
10 months ago
Will I ever feel well again
I have essential thrombocytosis, jak2 positive, I am taking
hydrea
500mg 3 times per day and 75mg asprin daily, platelets count 650 on last test, struggling with constantly tired,dizziness if I do too much, out of work a year and wondering how others cope
I have essential thrombocytosis, jak2 positive, I am taking
hydrea
500mg 3 times per day and 75mg asprin daily, platelets count 650 on last test, struggling with constantly tired,dizziness if I do too much, out of work a year and wondering how others cope
Scouby
in
MPN Voice
9 months ago
Ongoing toe infection
my partner has ET Jak2 MPL on
Hydrea
. He has had an ulcerated toe since December 2022. 8 courses of antibiotics still not healing. Now being sent to a bone specialist and infectious disease specialist. Anyone else have problems with wounds not healing.
my partner has ET Jak2 MPL on
Hydrea
. He has had an ulcerated toe since December 2022. 8 courses of antibiotics still not healing. Now being sent to a bone specialist and infectious disease specialist. Anyone else have problems with wounds not healing.
Beachscene
in
MPN Voice
9 months ago
Tolerant to Hydrea, giving Pegasys another try....
I have ET + CALR and taking 3 pills of
Hydrea
a day and my platelets are in the millions again. I got off of Pegasys in March because I was starting to feel "down" and massive fatigue, but we are giving it another try on a low dose. We think I'm growing tolerant to
Hydrea
.
I have ET + CALR and taking 3 pills of
Hydrea
a day and my platelets are in the millions again. I got off of Pegasys in March because I was starting to feel "down" and massive fatigue, but we are giving it another try on a low dose. We think I'm growing tolerant to
Hydrea
.
Zeppelin11
in
MPN Voice
9 months ago
Anyone taking Anagrelide w/ ET+CALR?
I've been taking
Hydrea
since 2017 and have become tolerant to it.
I've been taking
Hydrea
since 2017 and have become tolerant to it.
Zeppelin11
in
MPN Voice
9 months ago
sugar and tingling with ET
I’m on
hydrea
every other day I know this is not a pressing issue just curious Thx for this wonderful forum marti
I’m on
hydrea
every other day I know this is not a pressing issue just curious Thx for this wonderful forum marti
Pounds11
in
MPN Voice
9 months ago
Lots of bad stuff happening, what to do?
It's hideous and sore but my reason for jumping on was that I'm wanting to get off of the
Hydrea
because I'm certain in my mind that it started my skin cancer & I'm afraid of melanoma or even another basal cell!!
It's hideous and sore but my reason for jumping on was that I'm wanting to get off of the
Hydrea
because I'm certain in my mind that it started my skin cancer & I'm afraid of melanoma or even another basal cell!!
Androg
in
MPN Voice
6 months ago
Some clarification on just how much cover I need from the sun please?
I just wondered if my skin is more vulnerable to burning now I’m on
Hydrea
or is the importance on just not getting sunburned where I will increase my risk of skin cancer with
Hydrea
? I know burning will increase my risk of skin cancer.
I just wondered if my skin is more vulnerable to burning now I’m on
Hydrea
or is the importance on just not getting sunburned where I will increase my risk of skin cancer with
Hydrea
? I know burning will increase my risk of skin cancer.
Pachena
in
MPN Voice
11 months ago
Side Effects of Hydrea?
I was initial put onto Pegasus, but that had horrendous side effects and was then put onto
Hydrea
. Almost since first getting put onto
Hydrea
, there have been a bunch of different things that I feel can only be side effects of the drug.
I was initial put onto Pegasus, but that had horrendous side effects and was then put onto
Hydrea
. Almost since first getting put onto
Hydrea
, there have been a bunch of different things that I feel can only be side effects of the drug.
TyronR
in
MPN Voice
19 days ago
can’t loose any weight!
I have gained 5 lbs since on
Hydrea
the past 2 years and no matter what diet plan I have tried the weight will not come off!!!!!!! I have PV Has anyone experienced this? Thank you
I have gained 5 lbs since on
Hydrea
the past 2 years and no matter what diet plan I have tried the weight will not come off!!!!!!! I have PV Has anyone experienced this? Thank you
Sunnylesser
in
MPN Voice
11 months ago
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