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funny where life takes us
Funny how life changes and surprises us, when I was a kid the only thing I ever wanted to do was fly airplanes. It was my dream to fly for a living and I did, I spent all of my working life for the most part flying for an airline, it was everything I thought would be and I loved it. Along the way I also
Funny how life changes and surprises us, when I was a kid the only thing I ever wanted to do was fly airplanes. It was my dream to fly for a living and I did, I spent all of my working life for the most part flying for an airline, it was everything I thought would be and I loved it. Along the way I also
olpilot
in
Cure Parkinson's
12 years ago
Over the last few months I have eliminated 1mg azilect and 8mg requip.
I continue to take sinemet (100/25) 3x a day plus 3/8 teaspoon mucuna pruriens 3x and 2 requip at night for my restless leg. I am doing well except for a slight occasional tremor, more so when I am stimulated. My question is ( for those of you familiar with mucuna) should I continue to increase my MP
I continue to take sinemet (100/25) 3x a day plus 3/8 teaspoon mucuna pruriens 3x and 2 requip at night for my restless leg. I am doing well except for a slight occasional tremor, more so when I am stimulated. My question is ( for those of you familiar with mucuna) should I continue to increase my MP
bmakla54
in
Cure Parkinson's
12 years ago
How much levodopa do you take?
My drug regime daily is: 1.25mg Zelapar, 750mg Sinemet Plus and 200mg of Sinemet Plus. I have been taking 300 mg of Amantadine but it led to the blotchy skin condition Livedo Reticulasis, urination difficulties and other disagreeable side effects. Amantadine did help me to cope better with pd and stopping
My drug regime daily is: 1.25mg Zelapar, 750mg Sinemet Plus and 200mg of Sinemet Plus. I have been taking 300 mg of Amantadine but it led to the blotchy skin condition Livedo Reticulasis, urination difficulties and other disagreeable side effects. Amantadine did help me to cope better with pd and stopping
batwing7
in
Cure Parkinson's
12 years ago
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I want to start taking mucuna pruriens as a substitute for my sinemet (100/25). Should I take 1/2 sinemet and 1/8 tsp. of MP ?
bmakla54
in
Cure Parkinson's
12 years ago
Coming off Ropinirole
Well i now have the new tablets that will replace the Ropinirole. I have now been put on Sinemet (Carbidopa & Levodopa). These are to be started at 62.5mg four times a day and building up to 125mg four times a day while at the same time tapering down on the Ropinirrole. Just had to make myself a chart
Well i now have the new tablets that will replace the Ropinirole. I have now been put on Sinemet (Carbidopa & Levodopa). These are to be started at 62.5mg four times a day and building up to 125mg four times a day while at the same time tapering down on the Ropinirrole. Just had to make myself a chart
Avosyl
in
Restless Legs Syndrome
12 years ago
I am so frustrated that I can't do anything to help my husband with his pain and doctors aren't helping.
He is having really bad pain in his legs to the point he cries. Because of his cognitive issues, I can't understand everything he is trying to tell me so I don't for sure know what he is experiencing. I've been driving the Neurologist crazy with my calls asking for help. He was taken off Mirapex several
He is having really bad pain in his legs to the point he cries. Because of his cognitive issues, I can't understand everything he is trying to tell me so I don't for sure know what he is experiencing. I've been driving the Neurologist crazy with my calls asking for help. He was taken off Mirapex several
Hidden
in
Cure Parkinson's
12 years ago
Does anyone take Trihexyphenidyl?
I had an appointment with my Consultant yesterday as my usual cocktail of Stalevo, Requip XL and Sinemet CR are not controlling my tremor. After discussing various options I was asked to try one of the above tablets twice a day. As I have never heard of this drug I wondered whether anyone had had
I had an appointment with my Consultant yesterday as my usual cocktail of Stalevo, Requip XL and Sinemet CR are not controlling my tremor. After discussing various options I was asked to try one of the above tablets twice a day. As I have never heard of this drug I wondered whether anyone had had
Court
in
Cure Parkinson's
12 years ago
Has anyone had problems when increasing Sinemet? My hubby was taken off Mirapex and his Sinemet was slowly increased to 2 pills 4xday
but now has leg pain and still trouble walking as well as loss of appetite and cognitive issues. Doctor said to reduce it back to where it was so hopefully that will work. Dr. hasn't offered anything else to try so I'm at a loss on what to do. If his current state continues, he will probably not be
but now has leg pain and still trouble walking as well as loss of appetite and cognitive issues. Doctor said to reduce it back to where it was so hopefully that will work. Dr. hasn't offered anything else to try so I'm at a loss on what to do. If his current state continues, he will probably not be
Hidden
in
Cure Parkinson's
12 years ago
sleeping
i have just been told i have parkinsons.i was told in august.so much has changed in my life i dont really understand.i dont really sleep much any more.i have been so depressed aand angry about it.and the sinemet i take dont really work.and the vivid nightmares are real scarry.im just scared about the
i have just been told i have parkinsons.i was told in august.so much has changed in my life i dont really understand.i dont really sleep much any more.i have been so depressed aand angry about it.and the sinemet i take dont really work.and the vivid nightmares are real scarry.im just scared about the
dal57
in
Cure Parkinson's
12 years ago
what are the issues of sinemet
what is ev1s experiences with sinemet.i take three 25/100 three xs a day .and then the extended ones at night 2/50 /200.i get really bad stomache aches .
what is ev1s experiences with sinemet.i take three 25/100 three xs a day .and then the extended ones at night 2/50 /200.i get really bad stomache aches .
dal57
in
Cure Parkinson's
12 years ago
If Sinemet only works for so long, isn't it a good idea to put off starting on it as long as possible, or is there an element I'm missing?
pomo
in
Cure Parkinson's
12 years ago
The side effects of Sinemet have me pretty frightened.
The side effects of Sinemet have me pretty frightened. I'm hoping to stay on Pramipexole as long as possible (its side effects are bad enough) In any case, isn't it better to put off the Sinemet as long as possible? The sooner you start it, the sooner it loses its effectiveness , right? Or am I mistaken
The side effects of Sinemet have me pretty frightened. I'm hoping to stay on Pramipexole as long as possible (its side effects are bad enough) In any case, isn't it better to put off the Sinemet as long as possible? The sooner you start it, the sooner it loses its effectiveness , right? Or am I mistaken
pomo
in
Cure Parkinson's
12 years ago
I am curious as to what kind of problems any one has had taking Sinemet?
I started taking it in August and am now having a few issues. I also taking. Requip XL 12mg a day. I am not sure if it could be my thyroid -- I'm at that lovely age where some days my body is not my own. HORMONES! Would kindly accept responses from the women . Please no snide Man remarks --I'm just not
I started taking it in August and am now having a few issues. I also taking. Requip XL 12mg a day. I am not sure if it could be my thyroid -- I'm at that lovely age where some days my body is not my own. HORMONES! Would kindly accept responses from the women . Please no snide Man remarks --I'm just not
Hidden
in
Cure Parkinson's
12 years ago
Nausea ugh!
I felt like I had an invisible buzz saw going on inside of me, so I broke down and started sinemet to get it to stop please. And that dang sinemet makes me nauseous and feel like crud. I will stop it and go back to vibrating. Good lord, does the sinemet nausea ever go away?
I felt like I had an invisible buzz saw going on inside of me, so I broke down and started sinemet to get it to stop please. And that dang sinemet makes me nauseous and feel like crud. I will stop it and go back to vibrating. Good lord, does the sinemet nausea ever go away?
Bitbit
in
Cure Parkinson's
12 years ago
Original symptoms, 2 years ago, slight right hand trembling, odd feeling in my head with stirring or washing hair motion, slumped shoudlers
when walking. I was put on 2 25/100 Carb/Levo a day. Thot I might have some improvement. I've had uncontrolled blood pressure so dr's have been trying to figure out what's goning on there. For last year, don't have any noticable improvement in movement after med even if taking w/ carbonated beverage
when walking. I was put on 2 25/100 Carb/Levo a day. Thot I might have some improvement. I've had uncontrolled blood pressure so dr's have been trying to figure out what's goning on there. For last year, don't have any noticable improvement in movement after med even if taking w/ carbonated beverage
parkinsons1
in
Cure Parkinson's
12 years ago
Side effect of Stalevo and Sinemet
I know that the above medications, and others, cause discolouration of Urine. However, on my off days my tremor is not controlled at all and I have noticed that my urine is a natural colour. I think this must mean that I am not absorbing my meds and this is why they are not working. This usually rights
I know that the above medications, and others, cause discolouration of Urine. However, on my off days my tremor is not controlled at all and I have noticed that my urine is a natural colour. I think this must mean that I am not absorbing my meds and this is why they are not working. This usually rights
Court
in
Cure Parkinson's
12 years ago
Is anyone but me on Azilect only? When I tried to add Sinemet I had very high blood pressure spikes so I had to go off it.
shall1019
in
Cure Parkinson's
12 years ago
Why am I gaining so much weight?
I am careful, for the most part, what I eat, exercise regularly, and lead an active a life as Parkinsons allows me, but still I gain weight. I take Stalevo, Requip and half Sinemet daily. I ask this because it seems that people also taking these meds have the opposite problem - they are losing weight
I am careful, for the most part, what I eat, exercise regularly, and lead an active a life as Parkinsons allows me, but still I gain weight. I take Stalevo, Requip and half Sinemet daily. I ask this because it seems that people also taking these meds have the opposite problem - they are losing weight
Court
in
Cure Parkinson's
12 years ago
IMPORTANT MESSAGE FOR SINEMET USERS
Internationally there have been some changes to the formulation of Sinemet. The result is that the tablets are no longer scored and cannot be halved as there is no guarantee that halving a tablet will give an accurate half dosage. The stock of Sinemet that is scored and can be halved is likely to be
Internationally there have been some changes to the formulation of Sinemet. The result is that the tablets are no longer scored and cannot be halved as there is no guarantee that halving a tablet will give an accurate half dosage. The stock of Sinemet that is scored and can be halved is likely to be
ParkinsonsNZ1
Parkinson's New Zealand
in
Parkinson's New Zealand
12 years ago
Comtan
i have been treated for parkinson's since my diagnosis in 2009, but now am under going some further eval's and testing because the doc. thinks i may have something else, called msa. anyway he started me on comtan to take with my sinemet and mirapax to try and help with my "wearing off" periods in between
i have been treated for parkinson's since my diagnosis in 2009, but now am under going some further eval's and testing because the doc. thinks i may have something else, called msa. anyway he started me on comtan to take with my sinemet and mirapax to try and help with my "wearing off" periods in between
tmhiggs
in
Cure Parkinson's
12 years ago
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