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Lymphedema Treatment Act needs support
Lymphedema fighter here from single mastectomy & 9 lymph node removal on left arm!! Did y'all know of the Lymphedema Treatment Act? We are trying to get this bill passed in Washington DC this year!! Ask to see how you can reach out to your congress leaders!!
Lymphedema fighter here from single mastectomy & 9 lymph node removal on left arm!! Did y'all know of the Lymphedema Treatment Act? We are trying to get this bill passed in Washington DC this year!! Ask to see how you can reach out to your congress leaders!!
April4ChristPlexus
in
LSN
4 years ago
Virtual support from Ovacome this week
Hello This is to let you know about the online events on our programme this week. Mastectomy Chatter with Ovarian Cancer Action - Monday 20 July 7-8pm https://www.ovacome.org.uk/Event/mastectomy-chatter Gentle home exercise class with cancer exercise specialist Lizzy Davis - Tuesday 21 July, 2-2.45pm
Hello This is to let you know about the online events on our programme this week. Mastectomy Chatter with Ovarian Cancer Action - Monday 20 July 7-8pm https://www.ovacome.org.uk/Event/mastectomy-chatter Gentle home exercise class with cancer exercise specialist Lizzy Davis - Tuesday 21 July, 2-2.45pm
OvacomeSupport
Administrator
in
My Ovacome
4 years ago
Glad to be part of an understanding group
Hi there I feel that this path is so long. Began in 2004 with bilateral mastectomy and TAC chemo. Then in 2014 tumor markers high pet scan showed bone meets. Faslodex added to Arimidex and now Ibrance is replacing Arimidex. Sometimes I feel that instead of the side effects I'd rather live my life free
Hi there I feel that this path is so long. Began in 2004 with bilateral mastectomy and TAC chemo. Then in 2014 tumor markers high pet scan showed bone meets. Faslodex added to Arimidex and now Ibrance is replacing Arimidex. Sometimes I feel that instead of the side effects I'd rather live my life free
Layla818
in
SHARE Metastatic Breast Cancer
4 years ago
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Newly Diagnosed
Hi Its lovely to find this page and be able to share with people who understand. Coming to terms with this has been pretty difficult as you will all know. I really want to keep positive on this journey and believe I will be here to see my girls grow up - just need to figure out how to do that! My background
Hi Its lovely to find this page and be able to share with people who understand. Coming to terms with this has been pretty difficult as you will all know. I really want to keep positive on this journey and believe I will be here to see my girls grow up - just need to figure out how to do that! My background
pinklemon01
in
SHARE Metastatic Breast Cancer
4 years ago
New Member - De Novo MBC
Hi everyone, My name is Anna and I am new to the forum. Diagnosed in March 2019 with MBC straight out of the gate at 65 with 4 small bone mets on ribs and pelvis. Was quite a shock since I was completely asymptomatic! I’m ashamed to admit it but I had never had a mammogram (lesson learned the hard way
Hi everyone, My name is Anna and I am new to the forum. Diagnosed in March 2019 with MBC straight out of the gate at 65 with 4 small bone mets on ribs and pelvis. Was quite a shock since I was completely asymptomatic! I’m ashamed to admit it but I had never had a mammogram (lesson learned the hard way
Anna1954
in
SHARE Metastatic Breast Cancer
4 years ago
Recently diagnosed metastatic
Hello everyone I'm caroline, 39 and in the UK. July 2015 I was diagnosed with primary Her2 positive BC, had mastectomy, chemo, herceptin injections for 12 months, and radiotherapy, treatment ended Feb 2016 with NED. I had a bone scan just before lockdown here as I'd had the odd niggle of discomfort
Hello everyone I'm caroline, 39 and in the UK. July 2015 I was diagnosed with primary Her2 positive BC, had mastectomy, chemo, herceptin injections for 12 months, and radiotherapy, treatment ended Feb 2016 with NED. I had a bone scan just before lockdown here as I'd had the odd niggle of discomfort
Hidden
in
SHARE Metastatic Breast Cancer
4 years ago
PICC Line
Well, it's been a rollercoaster of a month for me... my infection did not seem to improve with the removal of the port and the oral antibiotics. The doctor wanted me to go to the ER to get IV antibiotics put into to me. Ordinarily wouldn't mind going to the ER but with a pandemic going on, I was very
Well, it's been a rollercoaster of a month for me... my infection did not seem to improve with the removal of the port and the oral antibiotics. The doctor wanted me to go to the ER to get IV antibiotics put into to me. Ordinarily wouldn't mind going to the ER but with a pandemic going on, I was very
Karina66
in
SHARE Breast Cancer Support
4 years ago
Ibrance - to start or not?
Hi everyone - I'm posting on behalf of my mom, Maria. She was diagnosed with Stage II breast cancer in 2012, had a mastectomy and was put on tamoxifen (no chemo). We found out it came back in September of 2018. She currently has 2 tumors in her bone - t2 and l4 regions (only bone, no organs). She has
Hi everyone - I'm posting on behalf of my mom, Maria. She was diagnosed with Stage II breast cancer in 2012, had a mastectomy and was put on tamoxifen (no chemo). We found out it came back in September of 2018. She currently has 2 tumors in her bone - t2 and l4 regions (only bone, no organs). She has
Jac-genova
in
SHARE Metastatic Breast Cancer
4 years ago
Virtual support from Ovacome this week
Hello everyone Since the beginning of lockdown we have been running a number of online support and information sessions around different topics, to help support our community at this time. This week’s sessions will be: BRCA: Risk-reducing mastectomy chatter - Monday 8 June 2-3pm https://www.ovacome.org.uk
Hello everyone Since the beginning of lockdown we have been running a number of online support and information sessions around different topics, to help support our community at this time. This week’s sessions will be: BRCA: Risk-reducing mastectomy chatter - Monday 8 June 2-3pm https://www.ovacome.org.uk
OvacomeSupport
Administrator
in
My Ovacome
4 years ago
Chemo port leading to emergency. Can we remove it during severe anemia?
My mother in law is 60year old and was diagnosed with a stage1- 1inch malignant lump with h1+ in her right breast. We moved forward and had her right mastectomy done within 2weeks of detection. After one month we started chemo with docetaxel, carboplatin and trastuzumab as suggested by medical oncologist
My mother in law is 60year old and was diagnosed with a stage1- 1inch malignant lump with h1+ in her right breast. We moved forward and had her right mastectomy done within 2weeks of detection. After one month we started chemo with docetaxel, carboplatin and trastuzumab as suggested by medical oncologist
Saipb
in
Breast Cancer India
4 years ago
Has anyone had their Breast Cancer metastasized to the breast skin (aka Skin Mets)?
Diagnosed with invasive lobular breast cancer in my right breast in 2015, estrogen and progesterone positive. I subsequently had a mastectomy followed by radiation with clean margins and with no evidence of disease. A couple years later, I had breast reconstruction and it was discovered that my breast
Diagnosed with invasive lobular breast cancer in my right breast in 2015, estrogen and progesterone positive. I subsequently had a mastectomy followed by radiation with clean margins and with no evidence of disease. A couple years later, I had breast reconstruction and it was discovered that my breast
gindifox
in
SHARE Metastatic Breast Cancer
4 years ago
Never give up hope !
Hello ladies. I am new and just got my results. I am soon to be 53 years old next month. I was told today I have Invasive Cancer stage II and Grade 3. It's right on the Nipple area so I chosen to go with Mastectomy of my left breast and get reconstructed later. Good news due to a cancellation my surgery
Hello ladies. I am new and just got my results. I am soon to be 53 years old next month. I was told today I have Invasive Cancer stage II and Grade 3. It's right on the Nipple area so I chosen to go with Mastectomy of my left breast and get reconstructed later. Good news due to a cancellation my surgery
Hidden
in
SHARE Breast Cancer Support
4 years ago
PART 2. NO to radiation treament
After being very stressed about her telling me someone would call and it would be about more than likely getting radiation FIVE DAYS a week from 3 to 6 weeks. I know from a friend that had stage 2 and had chemo, mastectomy, radiation and that the radiation for her was the worse part of it. She said
After being very stressed about her telling me someone would call and it would be about more than likely getting radiation FIVE DAYS a week from 3 to 6 weeks. I know from a friend that had stage 2 and had chemo, mastectomy, radiation and that the radiation for her was the worse part of it. She said
kearnan
in
SHARE Metastatic Breast Cancer
4 years ago
Starting Afresh
Hi I am Debbie and I am from Belfast. Mentally and physically I have been turned inside out with my diagnosis and treatment. I need to take back control of something in my life and am Hoping that by completing the C25K I can do this. I had completed 4 park runs before my diagnosis and I would absolutely
Hi I am Debbie and I am from Belfast. Mentally and physically I have been turned inside out with my diagnosis and treatment. I need to take back control of something in my life and am Hoping that by completing the C25K I can do this. I had completed 4 park runs before my diagnosis and I would absolutely
Hidden
in
My Breast Cancer Community
4 years ago
37yrs old- newly diagnosed with invasive lobular in the right breast. Debating double or single mastectomy. Advice?
Hi, I’m 37 and a mother of 2 boys, the youngest is 19months. I was diagnosed with multifocal invasive lobular carcinoma in my right breast 13 days ago and am a little shaken! So far my doctors don’t suspect any lymph node involvement and the tumor is ER+ PR+ and HER2- which is leading to an excellent
Hi, I’m 37 and a mother of 2 boys, the youngest is 19months. I was diagnosed with multifocal invasive lobular carcinoma in my right breast 13 days ago and am a little shaken! So far my doctors don’t suspect any lymph node involvement and the tumor is ER+ PR+ and HER2- which is leading to an excellent
BackpackingMama
in
SHARE Breast Cancer Support
4 years ago
Secondary Breast cancer in men
After having Mastectomy and Chemo (2018) and 18 months of tamoxifen I have now been diagnosed with secondary breast cancer of the bones (spine and ribs). Any other gents in same situation ? Glenn
After having Mastectomy and Chemo (2018) and 18 months of tamoxifen I have now been diagnosed with secondary breast cancer of the bones (spine and ribs). Any other gents in same situation ? Glenn
GlennCooperUk
in
Male Breast Cancer
4 years ago
Introducing myself
I am 66, living in MA, USA. I have had a double mastectomy in 2012. In 2019, they discovered some mets in my spine. I am taking Letrazole and Ibrance 75 mg.
I am 66, living in MA, USA. I have had a double mastectomy in 2012. In 2019, they discovered some mets in my spine. I am taking Letrazole and Ibrance 75 mg.
SMPG
in
SHARE Metastatic Breast Cancer
4 years ago
Radical Mastectomy - Post Surgery Pain
Hi, My mother 68 years old , had radical mastectomy on 11th January 2020 (more than 4 months ago). She still has lot of pain underarm. Is this normal, how long typically post surgery pain lasts, kindly share. Thanks
Hi, My mother 68 years old , had radical mastectomy on 11th January 2020 (more than 4 months ago). She still has lot of pain underarm. Is this normal, how long typically post surgery pain lasts, kindly share. Thanks
pjain
in
Breast Cancer India
4 years ago
A Christmas to forget.
It's now nine and a half years since I had my Total
Gastrectomy
and I've found I was back to all the problems I had in the early stages: dumping, loss of a great deal of weight etc.
It's now nine and a half years since I had my Total
Gastrectomy
and I've found I was back to all the problems I had in the early stages: dumping, loss of a great deal of weight etc.
lonestray
in
Oesophageal & Gastric Cancer
4 years ago
Latest Update - Post Surgery during Pandemic
Hi All, Just thought I'd post an update. I ended up opting for the double mastectomy, and had the surgery on St. Patrick's Day (March 17th). Considering the hospital was already in COVID-19 lockdown mode, I'm glad I went ahead with the surgery since now most surgeries are postponed. Also the plastic
Hi All, Just thought I'd post an update. I ended up opting for the double mastectomy, and had the surgery on St. Patrick's Day (March 17th). Considering the hospital was already in COVID-19 lockdown mode, I'm glad I went ahead with the surgery since now most surgeries are postponed. Also the plastic
Karina66
in
SHARE Breast Cancer Support
4 years ago
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