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Fulvestrant
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Just started Piqray - now w/ rash
I have a PIK3CA mutation - so 1st of June I started on Piqray (alpelisib) and
fulvestrant
injections (ER strongly +, PR-, HER2-). Now by day 9/10, I've got a pretty decent rash over much of my body. A known side effect. It doesn't itch really, but its pretty extensive.
I have a PIK3CA mutation - so 1st of June I started on Piqray (alpelisib) and
fulvestrant
injections (ER strongly +, PR-, HER2-). Now by day 9/10, I've got a pretty decent rash over much of my body. A known side effect. It doesn't itch really, but its pretty extensive.
tab78FN
in
SHARE Metastatic Breast Cancer
3 years ago
alcohol and hair colouring
She's been put on
fulvestrant
and paleociclib and wanted to know if a) she can still get her hair coloured and b) what's the groups advice on alcohol consumption. It's her birthday next week.
She's been put on
fulvestrant
and paleociclib and wanted to know if a) she can still get her hair coloured and b) what's the groups advice on alcohol consumption. It's her birthday next week.
scousehusband
in
SHARE Metastatic Breast Cancer
3 years ago
The Ibrance Trek
I was about to go on "Adria" when we discussed trying Ibrance with
Fulvestrant
. At that time, it was not very popular where I live, but we applied and were hoping for at least a 6 month run. And here I am June 2021 still on it!
I was about to go on "Adria" when we discussed trying Ibrance with
Fulvestrant
. At that time, it was not very popular where I live, but we applied and were hoping for at least a 6 month run. And here I am June 2021 still on it!
SoulJourney
in
SHARE Metastatic Breast Cancer
3 years ago
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No more Letrozole
They removed the tumor and I was then put on
fulvestrant
and xgeva shots. They worked wonders for 7 years. It is now in my pelvis. I was taken off the
fulvestrant
injections and put on Ibrance and Letrozole in November of 2020.
They removed the tumor and I was then put on
fulvestrant
and xgeva shots. They worked wonders for 7 years. It is now in my pelvis. I was taken off the
fulvestrant
injections and put on Ibrance and Letrozole in November of 2020.
Jhshl512
in
SHARE Metastatic Breast Cancer
3 years ago
2nd Scan and all good. Happy Days and great Summer 2021.
Second Scan on Ibrance ,
fulvestrant
and Denosumab. All Stable , happy days. Off to the Uk Lake District for weekend so a brilliant start to the weekend.
Second Scan on Ibrance ,
fulvestrant
and Denosumab. All Stable , happy days. Off to the Uk Lake District for weekend so a brilliant start to the weekend.
debbiedo2063
in
SHARE Metastatic Breast Cancer
3 years ago
Ibrance and Faslodex stopped working; oral faslodex?
So: does anything know about or had experience with this new oral
fulvestrant
? I know there are others that have been through Phase 3. This is a newer one. There is another arm that has the
fulvestrant
pill plus Ibrance.
So: does anything know about or had experience with this new oral
fulvestrant
? I know there are others that have been through Phase 3. This is a newer one. There is another arm that has the
fulvestrant
pill plus Ibrance.
TammyCross
in
SHARE Metastatic Breast Cancer
3 years ago
Stunned
Stopped taking arimidex and
fulvestrant
and was put on Ibrance and Tamoxifen. Had another endoscopy two days ago and the doctor said there is absolutely no sign of any cancer there at all and it was pervasive initially. I am absolutely stunned and so grateful!!!
Stopped taking arimidex and
fulvestrant
and was put on Ibrance and Tamoxifen. Had another endoscopy two days ago and the doctor said there is absolutely no sign of any cancer there at all and it was pervasive initially. I am absolutely stunned and so grateful!!!
Nocillo
in
SHARE Metastatic Breast Cancer
3 years ago
Scanxiety
I am on Kisqali,
Fulvestrant
injections and Denosab. My oncologist calls it the Maserati treatment and she is right. The bone tumours have reduced in size and spots on my liver have also shrunk. I still hope for NED one day but I am happy with my progress to date.
I am on Kisqali,
Fulvestrant
injections and Denosab. My oncologist calls it the Maserati treatment and she is right. The bone tumours have reduced in size and spots on my liver have also shrunk. I still hope for NED one day but I am happy with my progress to date.
Karen2235
in
SHARE Metastatic Breast Cancer
3 years ago
Fulvestrant and Kasqali combo - and back pain??
Fulvestrant
and kasqali combo. Does anyone have severe lower back pain associated with either/both these medications?
Fulvestrant
and kasqali combo. Does anyone have severe lower back pain associated with either/both these medications?
Karen2235
in
SHARE Metastatic Breast Cancer
3 years ago
Vomiting
Hi I've had vomiting almost every day for nearly two weeks and intermittent cramps in stomach,getting quite worried now,I'm on ibrance and
fulvestrant
mbc to bone liver and ovaries. Having ct scan in 6 days dont know if I should wait that long.any one else experienced this?
Hi I've had vomiting almost every day for nearly two weeks and intermittent cramps in stomach,getting quite worried now,I'm on ibrance and
fulvestrant
mbc to bone liver and ovaries. Having ct scan in 6 days dont know if I should wait that long.any one else experienced this?
Jafangus
in
SHARE Metastatic Breast Cancer
3 years ago
Kisqali and Fulvestrant
I am on a combination of kisqali (3 weeks on and one week off) and
fulvestrant
injections. Just about to start week 3 with some tiredness and mild diarrhoea as side effects. Worried that symptoms will get worse. Have others tried this combo and what side effects have others experienced?
I am on a combination of kisqali (3 weeks on and one week off) and
fulvestrant
injections. Just about to start week 3 with some tiredness and mild diarrhoea as side effects. Worried that symptoms will get worse. Have others tried this combo and what side effects have others experienced?
Karen2235
in
SHARE Metastatic Breast Cancer
3 years ago
Hair falling out with Piqray?
My oncology nurse said it more likely the faslodex/
fulvestrant
- but I've been on that for over 3 years and the hair loss seems to have started more around the time I started taking Piqray .... and hair loss IS one of the symptoms! I've had to cut my hair short to help make it look fuller.
My oncology nurse said it more likely the faslodex/
fulvestrant
- but I've been on that for over 3 years and the hair loss seems to have started more around the time I started taking Piqray .... and hair loss IS one of the symptoms! I've had to cut my hair short to help make it look fuller.
Lolli2020
in
SHARE Metastatic Breast Cancer
3 years ago
Weight Gain with Ibrance/Fulvestrant
For those on Ibrance/
Fulvestrant
, have you had weight gain and if so, how are you combatting that? With the combo of Ibrance,
Fulvestrant
, menopause and an underactive thyroid, I feel like I am at the bottom of a hill looking up and it's going to be a really tough climb!
For those on Ibrance/
Fulvestrant
, have you had weight gain and if so, how are you combatting that? With the combo of Ibrance,
Fulvestrant
, menopause and an underactive thyroid, I feel like I am at the bottom of a hill looking up and it's going to be a really tough climb!
Andibo
in
SHARE Metastatic Breast Cancer
3 years ago
PIK3CA mutations contribute to fulvestrant resistance in ER-positive breast cancer
I recently came across a study that basically stated that women with PIK3CA gene mutations may actually have
fulvestrant
resistance. I wanted to ask if any other women had that gene mutation and if so which medications/treatments are you pursuing?
I recently came across a study that basically stated that women with PIK3CA gene mutations may actually have
fulvestrant
resistance. I wanted to ask if any other women had that gene mutation and if so which medications/treatments are you pursuing?
Jac-genova
in
SHARE Metastatic Breast Cancer
3 years ago
To start ibrance or not?
Her CA 27.29 markers have dropped from 55 to 34, however her oncologist still wants her to start Ibrance in addition to the
fulvestrant
she is on. We are on the conservative side and would like to just stick with
fulvestrant
if we can.
Her CA 27.29 markers have dropped from 55 to 34, however her oncologist still wants her to start Ibrance in addition to the
fulvestrant
she is on. We are on the conservative side and would like to just stick with
fulvestrant
if we can.
Jac-genova
in
SHARE Metastatic Breast Cancer
3 years ago
I am being treated with Fulvestrant injections & Ribociclib medication (21 days of 3 tablets per day & 7 days off). Do others do this combo?
I am new here and was diagnosed with metastatic cancer last month.
I am new here and was diagnosed with metastatic cancer last month.
Karen2235
in
SHARE Metastatic Breast Cancer
3 years ago
First 3 month scan on Ibrance
Also on
fulvestrant
and bone injections. Letrozole from 2018 didn’t work,Tamoxifen did 2012 to 2018 then they switched it. 3 x Breast Cancer diagnosis. Would love some good news for a change. Debra.
Also on
fulvestrant
and bone injections. Letrozole from 2018 didn’t work,Tamoxifen did 2012 to 2018 then they switched it. 3 x Breast Cancer diagnosis. Would love some good news for a change. Debra.
debbiedo2063
in
SHARE Metastatic Breast Cancer
3 years ago
eve exe
hallo everyone, after less than two years on kisqali-
fulvestrant
my ca 15.3 is increasing and I will have very likely to change treatment soon. Did anyone try eve-exe combo? My Dr. wants me to go on Xeloda, but I am not so eager to start chemotherapy.... Silvia
hallo everyone, after less than two years on kisqali-
fulvestrant
my ca 15.3 is increasing and I will have very likely to change treatment soon. Did anyone try eve-exe combo? My Dr. wants me to go on Xeloda, but I am not so eager to start chemotherapy.... Silvia
Silviolina
in
SHARE Metastatic Breast Cancer
3 years ago
High pth
I'm on ibrance,
Fulvestrant
and zometa. Thanks
I'm on ibrance,
Fulvestrant
and zometa. Thanks
troutgal
in
SHARE Metastatic Breast Cancer
3 years ago
Side effects! Eczema
I see that itching is a side effect of other meds, perhaps
Fulvestrant
? Why can't I have a cnsistent set of side effects that I can learn to deal with?
I see that itching is a side effect of other meds, perhaps
Fulvestrant
? Why can't I have a cnsistent set of side effects that I can learn to deal with?
TammyCross
in
SHARE Metastatic Breast Cancer
3 years ago
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