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I'm 84 and diagnosed with PC 5 months ago. I was told I had High Risk Localized PC with a Gleason score of 8.
I have not consented yet because I was told at the outset that they favored
Firmagon
because Lupron caused a short-term rise in testosterone. My concern is that Lupron might cause a flare up even though I taken 4 months of
Firmagon
injections.
I have not consented yet because I was told at the outset that they favored
Firmagon
because Lupron caused a short-term rise in testosterone. My concern is that Lupron might cause a flare up even though I taken 4 months of
Firmagon
injections.
Vegasman
in
Advanced Prostate Cancer
2 years ago
To Radiate (the Prostate) or Not to Radiate (the Prostate): That is the Question.
Currently on
Firmagon
and Erleada with good response. My PSA is still declining - now at 0.63 (down from a high of 63.3), some hip pain but less than at diagnosis and very tolerable, and I generally feel very good with only hot flashes, mostly at night.
Currently on
Firmagon
and Erleada with good response. My PSA is still declining - now at 0.63 (down from a high of 63.3), some hip pain but less than at diagnosis and very tolerable, and I generally feel very good with only hot flashes, mostly at night.
Liguria
in
Advanced Prostate Cancer
2 years ago
Get a bone density test if you have PC and are taking Abiraterone etc
I'm on 5 months of ADT (
Firmagon
first, RT with Lupron, then after RT added Abiraterone plus Prednisone.) GLTA
I'm on 5 months of ADT (
Firmagon
first, RT with Lupron, then after RT added Abiraterone plus Prednisone.) GLTA
Derf4223
in
Advanced Prostate Cancer
1 year ago
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FDG uptake to cervical nodes
RP is scheduled for the end of this month, and have been on
Firmagon
and Zytiga for 6 months. The plan is to have radiation treatment in another 6 months, after recovery from RP.
RP is scheduled for the end of this month, and have been on
Firmagon
and Zytiga for 6 months. The plan is to have radiation treatment in another 6 months, after recovery from RP.
mysticmini
in
Advanced Prostate Cancer
2 years ago
Husband dx 07/01/22, Firmagon 07/06/22 Zytiga w/ Pred 07/20/22 Has anyone had Nubeqa prescriped during doxcetaxel, MO has not mentioned it
Husband currently doing docetaxel had second infusion on 09/13/22 Also suffers from psoriasis Nubeqa has been shown to be an effective therapy August 5, 2022, the Food and Drug Administration approved darolutamide (Nubeqa, Bayer HealthCare Pharmaceuticals Inc.) tablets in combination with docetaxel
Husband currently doing docetaxel had second infusion on 09/13/22 Also suffers from psoriasis Nubeqa has been shown to be an effective therapy August 5, 2022, the Food and Drug Administration approved darolutamide (Nubeqa, Bayer HealthCare Pharmaceuticals Inc.) tablets in combination with docetaxel
Shorehousejam
in
Advanced Prostate Cancer
2 years ago
Chemo/Pluvicto or Clinical Trial?
ADT (
Firmagon
and Zytiga) kept PSA undetectable for ~2.5 years, then PSA started to rise. I had radiation to prostate in March of this year, which did not help. I started a clinical trial in October at NYU (LAVA 1207 immunotherapy) and PSA doubled every 2 weeks and is now 2.6.
ADT (
Firmagon
and Zytiga) kept PSA undetectable for ~2.5 years, then PSA started to rise. I had radiation to prostate in March of this year, which did not help. I started a clinical trial in October at NYU (LAVA 1207 immunotherapy) and PSA doubled every 2 weeks and is now 2.6.
carguy
in
Advanced Prostate Cancer
1 year ago
going off hormone therapy
When I started hormone therapy about a year and a half ago (zytiga and
firmagon
) I started losing weight despite eating like a horse. In researching hormone therapy., There was a nature article saying hormone therapy has a side effect of muscle loss.
When I started hormone therapy about a year and a half ago (zytiga and
firmagon
) I started losing weight despite eating like a horse. In researching hormone therapy., There was a nature article saying hormone therapy has a side effect of muscle loss.
carguy1000
in
Advanced Prostate Cancer
1 year ago
Anyone Else Here with Ductal Type Advanced Metastatic Prostate Cancer Stage 4 Gleason 8
Started
Firmagon
7/6/2022 with Prednisone and Zytiga 7/20/2022 and Chemotherapy on 08/11/2022 Gleason 8 Stage 4 Mets 3 lesions PSA 942.40 7/6/2022 To 2.87 08/03/2022 To 1.07 08/11/2022 The good news no lesions on ribs, lung, liver, heart or brain, from scans dated between 6/28/2022 to 07/15
Started
Firmagon
7/6/2022 with Prednisone and Zytiga 7/20/2022 and Chemotherapy on 08/11/2022 Gleason 8 Stage 4 Mets 3 lesions PSA 942.40 7/6/2022 To 2.87 08/03/2022 To 1.07 08/11/2022 The good news no lesions on ribs, lung, liver, heart or brain, from scans dated between 6/28/2022 to 07/15
Shorehousejam
in
Advanced Prostate Cancer
2 years ago
Need advice on rampant metastasis.
He said there is no benefit doing all three (
Firmagon
, docetaxal and Zytiga or enzalutamide) at the same time. But I thought the triple therapy research recommended doing them together.
He said there is no benefit doing all three (
Firmagon
, docetaxal and Zytiga or enzalutamide) at the same time. But I thought the triple therapy research recommended doing them together.
Sewinggam
in
Advanced Prostate Cancer
2 years ago
Change of Treatments. From Firmagon To Zoladex.
I was on
Firmagon
which reduced the PSA from 19 to 0.4 then 6 months vacation from drugs. NOW the PSA has gone up to 2.4 & the MO has put me on Zoladex because it is a 3 monthly injection when
Firmagon
was one month, something to do with the hospital overloaded I guess.
I was on
Firmagon
which reduced the PSA from 19 to 0.4 then 6 months vacation from drugs. NOW the PSA has gone up to 2.4 & the MO has put me on Zoladex because it is a 3 monthly injection when
Firmagon
was one month, something to do with the hospital overloaded I guess.
ARIES29
in
Advanced Prostate Cancer
2 years ago
Thoughts on Treatment to Date
He indicated that I would likely stay on Zytiga for 2 years,
firmagon
for 3 years. I wanted to get thoughts on this duration, as I was thinking the ADT would be in the 24-26 month range (or perhaps 24 months following radiation completion).
He indicated that I would likely stay on Zytiga for 2 years,
firmagon
for 3 years. I wanted to get thoughts on this duration, as I was thinking the ADT would be in the 24-26 month range (or perhaps 24 months following radiation completion).
Gatodd
in
Advanced Prostate Cancer
2 years ago
Hip & Knee Pain
I'm on
Firmagon
and have developed some pain and stiffness in my hips & knees. Could this be a side effect of
Firmagon
? Does anyone have any experience with a supplent called "Relief Factor" which is heavily advertised on TV?
I'm on
Firmagon
and have developed some pain and stiffness in my hips & knees. Could this be a side effect of
Firmagon
? Does anyone have any experience with a supplent called "Relief Factor" which is heavily advertised on TV?
epfj3333
in
Advanced Prostate Cancer
2 years ago
6yrs on ADT (Firmagon )
I have been on
firmagon
for the past six years. My PSA stays around 1.1. My testosterone stays at about five. These numbers have been steady for the past six years and I asked my doctor many times if I should take a break.
I have been on
firmagon
for the past six years. My PSA stays around 1.1. My testosterone stays at about five. These numbers have been steady for the past six years and I asked my doctor many times if I should take a break.
Dannyboy48
in
Advanced Prostate Cancer
2 years ago
Firmagon costs
I'm on traditional Medicare and will be going on
Firmagon
. What costs can I expect -- co-pays/co-insurance for the drug, co-pays/co-insurance for administering the drug, doctor office visits? Thanks!
I'm on traditional Medicare and will be going on
Firmagon
. What costs can I expect -- co-pays/co-insurance for the drug, co-pays/co-insurance for administering the drug, doctor office visits? Thanks!
6Dandelion
in
Advanced Prostate Cancer
2 years ago
Orgovyx in the UK
One issue I discussed was potential use of Orgovyx (Relugolix) with Enzalutamide instead of
Firmagon
/ Enzalutamide combo I have been on for 2 years. I know it’s used around the world & approved by FDA & taken by many of you guys.
One issue I discussed was potential use of Orgovyx (Relugolix) with Enzalutamide instead of
Firmagon
/ Enzalutamide combo I have been on for 2 years. I know it’s used around the world & approved by FDA & taken by many of you guys.
PSA680
in
Advanced Prostate Cancer
2 years ago
Switching from Firmagon to Lucrin or Eligard
After 2nd Bcr post Salvage RT, psa rose from 0.05 to 0.94 , I started on
FIRMAGON
on 8/ 3/ 2022. ( Throughout this 5 1/2 year journey, a total of 4 PSMA PET-CT were done without any uptake) In view of many SE such as dizziness, hip joint pain, brain fog, BMI issues, hot flash ,have intention to switch
After 2nd Bcr post Salvage RT, psa rose from 0.05 to 0.94 , I started on
FIRMAGON
on 8/ 3/ 2022. ( Throughout this 5 1/2 year journey, a total of 4 PSMA PET-CT were done without any uptake) In view of many SE such as dizziness, hip joint pain, brain fog, BMI issues, hot flash ,have intention to switch
huraymond
in
Advanced Prostate Cancer
2 years ago
PSA
My PSA report, since I started
Firmagon
last year, always comes back and says undetectable - 0.064. If it can't be detected, why isn't it 0.000?
My PSA report, since I started
Firmagon
last year, always comes back and says undetectable - 0.064. If it can't be detected, why isn't it 0.000?
epfj3333
in
Advanced Prostate Cancer
2 years ago
Just checking to be sure 6 month break after 5 week radiation treatment is the next best step?
He just completed 5 weeks of Radiation to the whole pelvic area with a booster of radiation at some point as well while he remains on ADT (
Firmagon
shot once a month).
He just completed 5 weeks of Radiation to the whole pelvic area with a booster of radiation at some point as well while he remains on ADT (
Firmagon
shot once a month).
FormulaRob
in
Advanced Prostate Cancer
1 year ago
Where if Firmagon administered?
Where is
Firmagon
administered? Is it in a doctor's office, a hospital, an ambulatory surgery center? Thanks!
Where is
Firmagon
administered? Is it in a doctor's office, a hospital, an ambulatory surgery center? Thanks!
6Dandelion
in
Advanced Prostate Cancer
2 years ago
HOPE IS ALIVE. Original PSA 209 with bone mets 8 Years Ago, still undetectable <0.10 as of today
My story is a bit unique in the fact that I am still on the first regiment of HT 8 years after the diagnosis, which consists of a monthly shot of
Firmagon
and 50 mg of Casodex daily.
My story is a bit unique in the fact that I am still on the first regiment of HT 8 years after the diagnosis, which consists of a monthly shot of
Firmagon
and 50 mg of Casodex daily.
poofers
in
Advanced Prostate Cancer
2 years ago
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