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Ampyra
Anyone on Ampyra? Does it help you with walking? I started a two month trial. Only been on a few days. FYI: the company will give you a two month trial if your doctor requests it. They also have an assistant program. I understand the cost is $2,000 or above a month.
Anyone on Ampyra? Does it help you with walking? I started a two month trial. Only been on a few days. FYI: the company will give you a two month trial if your doctor requests it. They also have an assistant program. I understand the cost is $2,000 or above a month.
AngieRowe
in
My MSAA Community
7 years ago
More on Ocrevus
I had an appointment with my neurologist today and he gave me an update on this drug, also known as ocrelizumab. It supposed to be approved any day according to my dr, but there are questions about how the drug will be labelled and who will be able to get it. As I understand it, this has to do with the
I had an appointment with my neurologist today and he gave me an update on this drug, also known as ocrelizumab. It supposed to be approved any day according to my dr, but there are questions about how the drug will be labelled and who will be able to get it. As I understand it, this has to do with the
BillD999
in
My MSAA Community
8 years ago
New here & wanted to say hi.
Was diagnosed last fall (57 yrs old) with RRMS. The original diagnosis of transverse myelitis (by my UK neurologist) was "upgraded" when we moved back to the US (Montana). The news was more or less expected so it was not a bolt out of the blue, but coming to terms with this is a bit harder than I imagined
Was diagnosed last fall (57 yrs old) with RRMS. The original diagnosis of transverse myelitis (by my UK neurologist) was "upgraded" when we moved back to the US (Montana). The news was more or less expected so it was not a bolt out of the blue, but coming to terms with this is a bit harder than I imagined
pmbevac
in
My MSAA Community
8 years ago
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Newly diagnosed
I am so glad I found this site. I have recently been diagnosed with Adrenomyeloneuropathy. I am 35, have spasticity, numbness in both feet, pins and needles, and I am so tired. Yesterday I spent the entire day reading through the posts on this site. I live in Italy, don't speak Italian (I teach English
I am so glad I found this site. I have recently been diagnosed with Adrenomyeloneuropathy. I am 35, have spasticity, numbness in both feet, pins and needles, and I am so tired. Yesterday I spent the entire day reading through the posts on this site. I live in Italy, don't speak Italian (I teach English
russianbob
in
AMN EASIER
8 years ago
SPMS Work in Progress
Hello I'm Bill (BillD999), a 63 year old male, diagnosed with RRMS in 2005, which almost immediately transitioned to SPMS. I have been down the road of several different medications, none of which seemed to help me very much. My MRI results have remained very stable since I was diagnosed, but progression
Hello I'm Bill (BillD999), a 63 year old male, diagnosed with RRMS in 2005, which almost immediately transitioned to SPMS. I have been down the road of several different medications, none of which seemed to help me very much. My MRI results have remained very stable since I was diagnosed, but progression
BillD999
in
My MSAA Community
8 years ago
it's all new to me
Since my diagnosis 6+ years ago, the summer I reached 70...I've been trying to untangle what's MS and what's age related. I've had occasional bizarre symptoms for more than half my life, but not until I had two that scared me did I complain or seek answers. I have never talked with or known anyone else
Since my diagnosis 6+ years ago, the summer I reached 70...I've been trying to untangle what's MS and what's age related. I've had occasional bizarre symptoms for more than half my life, but not until I had two that scared me did I complain or seek answers. I have never talked with or known anyone else
goatgal
in
My MSAA Community
8 years ago
CharlesHH
Hello, I am a 53 year old male that was diagnosed in 2012 with rrms and is now in a progressive stage. I was on copaxone for 2 years rebif for 1 year and currently on retuxin every 6 months. I have tried every thing to slow the progression but have not found anything to slow it (i.e. diet,exercise,drugs
Hello, I am a 53 year old male that was diagnosed in 2012 with rrms and is now in a progressive stage. I was on copaxone for 2 years rebif for 1 year and currently on retuxin every 6 months. I have tried every thing to slow the progression but have not found anything to slow it (i.e. diet,exercise,drugs
CharlesHH
in
My MSAA Community
8 years ago
4-AP / Fampyra
I was just wondering if anybody in the uk was taking 4-ap /
fampyra
as i would like to give it a go i ordered some from mod4all and got an email with an order number on the 21st of September but have received nothing i tried to reply to the email but it was returned.
I was just wondering if anybody in the uk was taking 4-ap /
fampyra
as i would like to give it a go i ordered some from mod4all and got an email with an order number on the 21st of September but have received nothing i tried to reply to the email but it was returned.
Andrew-432
in
AMN EASIER
8 years ago
Ampyra!!!
Thank you to all of you who responded to my ampyra question. I was blown away by the number of responses. I don't think I am to the point of "needing" that yet, but will keep your responses in mind as things move along.
Thank you to all of you who responded to my ampyra question. I was blown away by the number of responses. I don't think I am to the point of "needing" that yet, but will keep your responses in mind as things move along.
bavery207
in
My MSAA Community
8 years ago
Ampyra???
I am interested in people's input re: Ampyra. I mentioned it to my neuro. and he said he would never prescribe it to one of his patients because of all the possible side effects. I was wondering what your experiences were???
I am interested in people's input re: Ampyra. I mentioned it to my neuro. and he said he would never prescribe it to one of his patients because of all the possible side effects. I was wondering what your experiences were???
bavery207
in
My MSAA Community
8 years ago
It's about time!
It's about time I write something to introduce myself! I was diagnosed in the very beginning of 1990. It all started with vertigo, double vision, trouble swallowing, weakness on one side of my body, extreme nausea. I couldn't even stand and, after a couple of days not being able to keep even water down
It's about time I write something to introduce myself! I was diagnosed in the very beginning of 1990. It all started with vertigo, double vision, trouble swallowing, weakness on one side of my body, extreme nausea. I couldn't even stand and, after a couple of days not being able to keep even water down
Ashirva
in
My MSAA Community
8 years ago
Sativex and Fampyra
Rejected by NICE on the grounds of being too expensive http://www.mssociety.org.uk/ms-news/2014/10/ms-society-responds-new-nice-clinical-guideline-ms-0
Rejected by NICE on the grounds of being too expensive http://www.mssociety.org.uk/ms-news/2014/10/ms-society-responds-new-nice-clinical-guideline-ms-0
Cherie
in
AMN EASIER
10 years ago
hi everyone i have asked this before but didnt get any answers does anyone take FAMPYRA
i want to know whats it been tested on ie animals also wot side effects it has can anyone help
i want to know whats it been tested on ie animals also wot side effects it has can anyone help
mollymoomoo
in
Thyroid UK
10 years ago
does anyone know anything about this new drug FAMPYRA for MS sufferes
mollymoomoo
in
Lung Conditions Community Forum
10 years ago
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