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Dyskinesia
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The single biggest predictor of the rate of Parkinson's progression is if you are lonely. Finding by Dr. Laurie Mischley 4/25/18
Pretty interesting article "Indeed, I have lost count of the number of people with PD who have said something to me along the lines of "my friends and family have abandoned me/don't visit/lost touch". The negative feedback loops between loneliness and disease progression can be one of the most vicious
Pretty interesting article "Indeed, I have lost count of the number of people with PD who have said something to me along the lines of "my friends and family have abandoned me/don't visit/lost touch". The negative feedback loops between loneliness and disease progression can be one of the most vicious
MBAnderson
in
Cure Parkinson's
6 years ago
Microtablet dispenser - sounds like a good idea.
25th April 2018 - New research MICROTABLET DISPENSER FOR MORE PRECISE L-DOPA DOSAGE CLICK HERE FOR A PRINTABLE OR WHITE BACKGROUND VERSION OF THIS ARTICLE A study has assessed the effect of introducing a microtablet dose dispenser and adjusting doses based on the monitoring of motor symptoms in people
25th April 2018 - New research MICROTABLET DISPENSER FOR MORE PRECISE L-DOPA DOSAGE CLICK HERE FOR A PRINTABLE OR WHITE BACKGROUND VERSION OF THIS ARTICLE A study has assessed the effect of introducing a microtablet dose dispenser and adjusting doses based on the monitoring of motor symptoms in people
rebtar
in
Cure Parkinson's
6 years ago
Amantadine effect and parkinson!
does it last for a couples of hours or all the day and does it help for slow movment -rigidity -
dyskinesia
?any side effects ?
does it last for a couples of hours or all the day and does it help for slow movment -rigidity -
dyskinesia
?any side effects ?
jack-carpenter12
in
Cure Parkinson's
6 years ago
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What Gabapentin has done for me.
I have been taking Gabapentin for the pain in my feet about a month. It has worked, i no longer nave any issues with my feet. They still tingle some but it is so light i hardly notice. Before i started taking Gabapentin my feet would at times keep me from from going to sleep and when driving more
I have been taking Gabapentin for the pain in my feet about a month. It has worked, i no longer nave any issues with my feet. They still tingle some but it is so light i hardly notice. Before i started taking Gabapentin my feet would at times keep me from from going to sleep and when driving more
Bailey_Texas
in
Cure Parkinson's
6 years ago
Amantidine. 100 mg
Dyskinesia
was awful. Finally got this. I’m still adjusting 1 tab 2 x a day still have some tremors but
dyskinesia
is all but gone. I also started probiotics & b12. About same time. Hope it keeps improving. I might try 3 x a day n cut down on CL
Dyskinesia
was awful. Finally got this. I’m still adjusting 1 tab 2 x a day still have some tremors but
dyskinesia
is all but gone. I also started probiotics & b12. About same time. Hope it keeps improving. I might try 3 x a day n cut down on CL
Idofotos
in
Cure Parkinson's
6 years ago
Ciliary dyskinesia? Allergies? Who knows?!?!
I am a mom of 20 month old twins. Focusing on Baby B. Baby B was born c section and immediately had respiratory issue and 16 days in NICU. Only needed 2 days of high flow O2. Rest of the days were spent were said because of brady/apnea or reflux. 4mos..notices alot of nasal drainage. 7 mos old 4 days
I am a mom of 20 month old twins. Focusing on Baby B. Baby B was born c section and immediately had respiratory issue and 16 days in NICU. Only needed 2 days of high flow O2. Rest of the days were spent were said because of brady/apnea or reflux. 4mos..notices alot of nasal drainage. 7 mos old 4 days
Sstevens84
in
PCD Family Support Group (UK)
6 years ago
amantadine side effects?-sinemet CR?
hello.i started taking amantadine these days but i read it have some side effects like molten skin and swollen ankles so is that happen as a side effect on kidney or liver -im suffering from
dyskinesia
which last up to 2 hours after talking my sinemet dose so is changing regular sinemet to CR can help
hello.i started taking amantadine these days but i read it have some side effects like molten skin and swollen ankles so is that happen as a side effect on kidney or liver -im suffering from
dyskinesia
which last up to 2 hours after talking my sinemet dose so is changing regular sinemet to CR can help
jack-carpenter12
in
Cure Parkinson's
6 years ago
AMANTADINE AN ITS SIDE EFFECTS!!
I have tried that but when I do, the
dyskinesia
is really bad with jerky movements. Anyone else have this problem and what did you do to resolve it. I would appreciate any help. I have had PD for 20 years and an 64. Thanks
I have tried that but when I do, the
dyskinesia
is really bad with jerky movements. Anyone else have this problem and what did you do to resolve it. I would appreciate any help. I have had PD for 20 years and an 64. Thanks
shakietwo
in
Cure Parkinson's
6 years ago
Right combination of supplements
I have experienced that the combination of different herbs and supplements can backfire if not taken rightly. But the right combination is a tricky matter and is different for different persons. I was wondering whether there is some standard combination of supplements which is optimal and is more or
I have experienced that the combination of different herbs and supplements can backfire if not taken rightly. But the right combination is a tricky matter and is different for different persons. I was wondering whether there is some standard combination of supplements which is optimal and is more or
Farooqji
in
Cure Parkinson's
6 years ago
DR. COSTANTINI & DR. COLANGELI ANSWER 58 FREQUENTLY ASKED QUESTIONS (FAQs) ABOUT HDT / THIAMINE / B1 PROTOCOL / Email : carapetata@libero.it
It also reduces drastically hyperkinesia and
dyskinesia
. 20. Does thiamine have any effect on sleep?
It also reduces drastically hyperkinesia and
dyskinesia
. 20. Does thiamine have any effect on sleep?
Hidden
in
Cure Parkinson's
6 years ago
Morning dyskinesia
Does anyone wake with mild
dyskinesia
Does anyone wake with mild
dyskinesia
Connie18
in
Cure Parkinson's
6 years ago
Help needed
Help With in legs, All of a sudden, I have had som uncontrollable leg spasms, muscle jerkings and cramping , like I never have had before. I am taking stalevo 50_-200 6 times a day along with, Azilect 1mg, Amantadine and Mirapex. Also Ativan prescribed for anxiety. I cannot do anything when I
Help With in legs, All of a sudden, I have had som uncontrollable leg spasms, muscle jerkings and cramping , like I never have had before. I am taking stalevo 50_-200 6 times a day along with, Azilect 1mg, Amantadine and Mirapex. Also Ativan prescribed for anxiety. I cannot do anything when I
neilp01
in
Cure Parkinson's
6 years ago
Thought it was dyskenesia but found out it might be dystonia!
Hello dear friends! recently i wrote about having problems with possible dyskenesia so my Dr has been decreasing my meds and switching from IR C/L to CR C/L with no relief, Symptoms seemed to get worse the more we decreased the doses and now after doing some research on my symptoms i have figured out
Hello dear friends! recently i wrote about having problems with possible dyskenesia so my Dr has been decreasing my meds and switching from IR C/L to CR C/L with no relief, Symptoms seemed to get worse the more we decreased the doses and now after doing some research on my symptoms i have figured out
RS313
in
Cure Parkinson's
6 years ago
PD drugs accelerate disease progression
All end in
dyskinesia
which is worse than PD itself. The vital treatment goal is a compromise between organism’s solution and patient’s requirement for a normal life. Since l-dopa is toxic and promotes
dyskinesia
, use it as a last resort. I shall now explain the dynamics of the PD process.
All end in
dyskinesia
which is worse than PD itself. The vital treatment goal is a compromise between organism’s solution and patient’s requirement for a normal life. Since l-dopa is toxic and promotes
dyskinesia
, use it as a last resort. I shall now explain the dynamics of the PD process.
Hidden
in
Cure Parkinson's
6 years ago
I know i sound like a broken record :)
I really could use everyones advice here. I know i have written a few times about my meds and dyskenesia but i am still having problems and my Movement dis specialist said for me to just play around with my meds to find what works.This may sound easy but for me n=being fairly new still to the parkinsons
I really could use everyones advice here. I know i have written a few times about my meds and dyskenesia but i am still having problems and my Movement dis specialist said for me to just play around with my meds to find what works.This may sound easy but for me n=being fairly new still to the parkinsons
RS313
in
Cure Parkinson's
6 years ago
Voyager Therapeutics Announces Longer-Term Data from Ongoing Phase 1b Trial for Advanced Parkinson’s Disease
function achieved with substantial reductions in use of daily oral levodopa and other Parkinson’s disease medications; one-time administrations of VY-AADC well-tolerated now out to three years in Cohort 1 In Cohort 2 at 18 months, patients had a mean increase of five hours a day of on-time without any
dyskinesia
function achieved with substantial reductions in use of daily oral levodopa and other Parkinson’s disease medications; one-time administrations of VY-AADC well-tolerated now out to three years in Cohort 1 In Cohort 2 at 18 months, patients had a mean increase of five hours a day of on-time without any
dyskinesia
Farooqji
in
Cure Parkinson's
6 years ago
My impression: citicoline ashwaganda rosemary bacopa monniera
# My impression: citicoline ashwaganda rosemary bacopa monniera ## Today I tried using citicoline instead of cholinergic herbs - while continuing 25/100 and amantadine. By noon I realized that citicoline was not sufficiently boosting my motor function. ## I managed to arise from chair and ingest a
# My impression: citicoline ashwaganda rosemary bacopa monniera ## Today I tried using citicoline instead of cholinergic herbs - while continuing 25/100 and amantadine. By noon I realized that citicoline was not sufficiently boosting my motor function. ## I managed to arise from chair and ingest a
aspergerian13
in
Cure Parkinson's
6 years ago
amantadine and sinemet induced dyskinesia?
i really needs help_1)sinemet induced
dyskinesia
last for an hour and half after talking my dose so is sinemet induced
dyskinesia
can progress or it can be worse i mean can it last for all the day 2)can i take amantadine with mirapex or there is an interaction ?
i really needs help_1)sinemet induced
dyskinesia
last for an hour and half after talking my dose so is sinemet induced
dyskinesia
can progress or it can be worse i mean can it last for all the day 2)can i take amantadine with mirapex or there is an interaction ?
jack-carpenter12
in
Cure Parkinson's
6 years ago
Using Azo bladder control or similar supplement
My PWP has always had to get up multiple times in the night to urinate. With PD, the frequency is a little more often, and he can't always get out of bed quickly enough. The anxiety he feels going to bed, and panic when he can't get up, are keeping us both awake most of the night, almost every night
My PWP has always had to get up multiple times in the night to urinate. With PD, the frequency is a little more often, and he can't always get out of bed quickly enough. The anxiety he feels going to bed, and panic when he can't get up, are keeping us both awake most of the night, almost every night
Hidden
in
Cure Parkinson's
6 years ago
Mucuna Pruriens in Parkinson's disease, dosages and effects, A double-blind, randomized, controlled, crossover human study (2017)
Mucuna pruriens in Parkinson disease. A double-blind, randomized, controlled, crossover study (2017) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5539737/ "This study demonstrates that the acute intake of MP powder at both high and low dose is non-inferior to dispersible levodopa/benserazide in terms
Mucuna pruriens in Parkinson disease. A double-blind, randomized, controlled, crossover study (2017) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5539737/ "This study demonstrates that the acute intake of MP powder at both high and low dose is non-inferior to dispersible levodopa/benserazide in terms
Greenday
in
Cure Parkinson's
6 years ago
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