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Introduction: I'm new here
At the moment he is on
dialysis
3 times a week. We only found out how ill he was in November 2021 so it's been a lot to take in. I just wanted to say hello and make contact as I've been finding it tough to accept the new reality.
At the moment he is on
dialysis
3 times a week. We only found out how ill he was in November 2021 so it's been a lot to take in. I just wanted to say hello and make contact as I've been finding it tough to accept the new reality.
Kanjee18
in
Vasculitis UK
2 years ago
Peritoneal Dialysis Challenges
Hi There, I believe there are restrictions for both hemo- and peritoneal
dialysis
and both types of
dialysis
are challenging…Having ESRD and having to go on
dialysis
disrupts your life in so many ways and you grieve for the life you used to have.
Hi There, I believe there are restrictions for both hemo- and peritoneal
dialysis
and both types of
dialysis
are challenging…Having ESRD and having to go on
dialysis
disrupts your life in so many ways and you grieve for the life you used to have.
Slcallat
in
Kidney Transplant
2 years ago
Numbers dropped
If it doesn't come up starting
dialysis
next month. Kidney function went from 22 in January to 18 2 days ago.
If it doesn't come up starting
dialysis
next month. Kidney function went from 22 in January to 18 2 days ago.
thomascald
in
Kidney Disease
2 years ago
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controversial topic
All that I have read about
dialysis
I feel will make me feel worse and I am not sure I can handle that.
All that I have read about
dialysis
I feel will make me feel worse and I am not sure I can handle that.
fartikins
in
Kidney Disease
2 years ago
At a Dialysis Crossroads
I have to decide whether to get a fistula in my arm and go with hemodialysis, or go with peritoneal
dialysis
. I spent a couple of hours in a center talking to a couple of nurses about peritoneal
dialysis
and it sounds like a bad choice given its near constant presence in your life.
I have to decide whether to get a fistula in my arm and go with hemodialysis, or go with peritoneal
dialysis
. I spent a couple of hours in a center talking to a couple of nurses about peritoneal
dialysis
and it sounds like a bad choice given its near constant presence in your life.
MP11
in
Kidney Dialysis
2 years ago
Transplant and keeping Medicare after esrd Medicare runs out.
I was on
dialysis
for over 5 years then a friend became a donor for me. My kidney has been good but I have developed other medical issues after.
I was on
dialysis
for over 5 years then a friend became a donor for me. My kidney has been good but I have developed other medical issues after.
ESRDRLS
in
Kidney Transplant
2 years ago
Help with poor appetite
I have had kidney disease for a while now and I'm also on
dialysis
. I have never had a good appetite but now I feel like I'm hitting a new low. I just don't enjoy food anymore, I wouldn't eat if I didn't have to. The portion sizes I have are tiny. I have lost 3kg in 3 years.
I have had kidney disease for a while now and I'm also on
dialysis
. I have never had a good appetite but now I feel like I'm hitting a new low. I just don't enjoy food anymore, I wouldn't eat if I didn't have to. The portion sizes I have are tiny. I have lost 3kg in 3 years.
Dora86
in
Kidney Disease
2 years ago
Periodontal Dialysis supplies
Hey, does anyone have a nice complete "list" of supplies that are needed for PD that are NOT supplied by the
dialysis
clinic (medicare). I'd like to start collecting a few things between now and when I start PD. If you have a link to the source that would be awesome. Thanks in advance!
Hey, does anyone have a nice complete "list" of supplies that are needed for PD that are NOT supplied by the
dialysis
clinic (medicare). I'd like to start collecting a few things between now and when I start PD. If you have a link to the source that would be awesome. Thanks in advance!
RonZone
in
Kidney Disease
2 years ago
Eplet matching and donation
My recipient also refuses to resort to
dialysis
, so we're afraid that if we use the voucher progam they may need to go on
dialysis
short term while we find a match. Any information to help us make an informed decision is appreciated.
My recipient also refuses to resort to
dialysis
, so we're afraid that if we use the voucher progam they may need to go on
dialysis
short term while we find a match. Any information to help us make an informed decision is appreciated.
donor1215
in
Kidney Donation
2 years ago
Still here.
My gfr is holding at 17 - we spoke about
dialysis
but in the meantime I must keep my blood pressure stable at around 130/80. I realise that if I can't hold these two things that is the route I will have to take. Gosh when I went in to see him my bp was 180/100 but I just get so anxious about this.
My gfr is holding at 17 - we spoke about
dialysis
but in the meantime I must keep my blood pressure stable at around 130/80. I realise that if I can't hold these two things that is the route I will have to take. Gosh when I went in to see him my bp was 180/100 but I just get so anxious about this.
fartikins
in
Kidney Disease
2 years ago
The Queen has Landed
Will this be my last trip before I start
dialysis
? What would travel be like with
dialysis
? And in truth. I was wondering how will I handle the loss of the life I know.
Will this be my last trip before I start
dialysis
? What would travel be like with
dialysis
? And in truth. I was wondering how will I handle the loss of the life I know.
HipHopQueen
in
Kidney Dialysis
2 years ago
Has anyone had a failed Fistulogram Procedure?
It had worked great in
dialysis
until 2 weeks ago when my clearance numbers started going down to .8. I had my first Fistulogram yesterday and apparently is was a complete fail! My clearance at
dialysis
today was lower than before the procedure: .58.
It had worked great in
dialysis
until 2 weeks ago when my clearance numbers started going down to .8. I had my first Fistulogram yesterday and apparently is was a complete fail! My clearance at
dialysis
today was lower than before the procedure: .58.
BeachLove
in
Kidney Transplant
2 years ago
March - National Kidney Month
H3: My Miracle Transplant By August of 1999, my kidney function had gotten to the point that it was time to start
dialysis
. For me at least, I was only on
dialysis
for less than 2 months when a coordinator from U of Wisconsin called me stating that they had a kidney for me.
H3: My Miracle Transplant By August of 1999, my kidney function had gotten to the point that it was time to start
dialysis
. For me at least, I was only on
dialysis
for less than 2 months when a coordinator from U of Wisconsin called me stating that they had a kidney for me.
WYOAnne
in
Early CKD Support
2 years ago
Question about rides
How many people are able to drive themselves to
dialysis
?
How many people are able to drive themselves to
dialysis
?
dadinfo
in
Kidney Dialysis
2 years ago
Response to want to chat
I have wanted to chat with others on
dialysis
since I started this whole process. I struggle with eating enough, my leg and arm muscles don’t work like they used to, and I run out of energy very quickly. Also I’m cold all the time. I am assuming all this is part of
dialysis
patients?
I have wanted to chat with others on
dialysis
since I started this whole process. I struggle with eating enough, my leg and arm muscles don’t work like they used to, and I run out of energy very quickly. Also I’m cold all the time. I am assuming all this is part of
dialysis
patients?
PD20
in
Dialysis Support
2 years ago
Creatinine vs. CystatinC eGFR
I have my fistula and Dr. thought I'd be on
dialysis
by now. My Dr. said that cystatin C is more useful for people in stage 1 or 2 since the creatinine based eGFR scales for normal and CKD overlap so much. I worked so hard to get on the transplant list and they will probably make me inactive now.
I have my fistula and Dr. thought I'd be on
dialysis
by now. My Dr. said that cystatin C is more useful for people in stage 1 or 2 since the creatinine based eGFR scales for normal and CKD overlap so much. I worked so hard to get on the transplant list and they will probably make me inactive now.
barbara55109
in
Kidney Disease
2 years ago
Fluid overload
I have
dialysis
tomorrow but if my blood pressure doesn’t get high enough I will be in trouble. I don’t want to die. I feel terrible right now.
I have
dialysis
tomorrow but if my blood pressure doesn’t get high enough I will be in trouble. I don’t want to die. I feel terrible right now.
Jeaukool
in
Dialysis Support
2 years ago
New here. From all I read, dialysis sounds horrific. Why aren’t more people stepping up to be living donors 4 family members instead?
Family, living donor,
dialysis
Family, living donor,
dialysis
KellyLS
in
Kidney Donation
2 years ago
Cipro and bactrim for Pseudomonas aeruginosa infection
Deceased donor, never on
dialysis
. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent me home with some changes in the meds.
Deceased donor, never on
dialysis
. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent me home with some changes in the meds.
vision22
in
Kidney Transplant
2 years ago
Hyperparathyroidism diagnosis plz help!
Hi Everyone, I had my kidney transplant 8months ago after being on
dialysis
for almost 6years. My dr. Just told me I have a severe hyperparathyroidism and that’s mainly because I was on
dialysis
for so long. He prescribed Cinacalcet to be taking once a day.
Hi Everyone, I had my kidney transplant 8months ago after being on
dialysis
for almost 6years. My dr. Just told me I have a severe hyperparathyroidism and that’s mainly because I was on
dialysis
for so long. He prescribed Cinacalcet to be taking once a day.
Tuna14
in
Kidney Transplant
2 years ago
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