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Experiences with
Catecholaminergic polymorphic ventricular tachycardia (CPVT)
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ICD implant
I have
CPVT
but just recently I have had a ICD implant because I was getting 7 second intermitting pauses in my heart rhythm. Does anyone else fell the little pulses? They don't hurt at all but make me aware of my heart rhythm. Do they eventually settle down. Thank you
I have
CPVT
but just recently I have had a ICD implant because I was getting 7 second intermitting pauses in my heart rhythm. Does anyone else fell the little pulses? They don't hurt at all but make me aware of my heart rhythm. Do they eventually settle down. Thank you
Elvis4
in
Arrhythmia Alliance
7 months ago
CPVT AND TRAVEL INSURANCE
hi, I am awaiting investigation for
CPVT
, doctors believe it is more than likely I have this but my appointment is not until a November. I am due to go on a once in a lifetime trip in august and no travel insurance will cover me due to it being undiagnosed.
hi, I am awaiting investigation for
CPVT
, doctors believe it is more than likely I have this but my appointment is not until a November. I am due to go on a once in a lifetime trip in august and no travel insurance will cover me due to it being undiagnosed.
Ellieanderson27
in
British Heart Foundation
1 year ago
Cpvt
does anyone have catecholomine polymorphic ventricular tachycardia. Or Pots
does anyone have catecholomine polymorphic ventricular tachycardia. Or Pots
Florrie00
in
British Heart Foundation
2 years ago
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Specialist in cpvt
Does anyone know of specialist in catecholomine polymorphic ventriculat tachycardia
Does anyone know of specialist in catecholomine polymorphic ventriculat tachycardia
Florrie00
in
British Heart Foundation
2 years ago
Don't understand your inherited arrhythmias?
CPVT
? What is Brugada syndrome? All these question and more are answered by Dr Jan Till Register TODAY for the Arrhythmia Alliance #PatientsDay2021 at #HRC2021 to learn more about your arrhythmia Click the link below to register: https://heartrhythmevents.org/users/signup/hrc2021/patients
CPVT
? What is Brugada syndrome? All these question and more are answered by Dr Jan Till Register TODAY for the Arrhythmia Alliance #PatientsDay2021 at #HRC2021 to learn more about your arrhythmia Click the link below to register: https://heartrhythmevents.org/users/signup/hrc2021/patients
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
3 years ago
Don't understand your inherited arrhythmias?
CPVT
? What is Brugada syndrome?
CPVT
? What is Brugada syndrome?
TracyAdmin
Partner
in
Arrhythmia Alliance SVT
3 years ago
Don't understand your inherited arrhythmias?
CPVT
? What is Brugada syndrome?
CPVT
? What is Brugada syndrome?
TracyAdmin
Partner
in
Arrhythmia Alliance Heart Failure
3 years ago
Don't understand your inherited arrhythmias?
CPVT
? What is Brugada syndrome? All these question and more are answered by Dr Jan Till Register TODAY for the Arrhythmia Alliance #PatientsDay2021 at #HRC2021 to learn more about your arrhythmia Click the link below to register: https://heartrhythmevents.org/users/signup/hrc2021/patients
CPVT
? What is Brugada syndrome? All these question and more are answered by Dr Jan Till Register TODAY for the Arrhythmia Alliance #PatientsDay2021 at #HRC2021 to learn more about your arrhythmia Click the link below to register: https://heartrhythmevents.org/users/signup/hrc2021/patients
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
3 years ago
Are you registered for Arrhythmia Alliance VIRTUAL Patients Day 2021?
CPVT
vs. Brugada syndrome) Dr Jan Till | London, UK Click the link below to REGISTER for VIRTUAL Patients Day 2021 https://heartrhythmevents.org/users/signup/hrc2021/patients
CPVT
vs. Brugada syndrome) Dr Jan Till | London, UK Click the link below to REGISTER for VIRTUAL Patients Day 2021 https://heartrhythmevents.org/users/signup/hrc2021/patients
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
3 years ago
Are you registered for Arrhythmia Alliance VIRTUAL Patients Day 2021?
CPVT
vs. Brugada syndrome) Dr Jan Till | London, UK Click the link below to REGISTER for VIRTUAL Patients Day 2021 https://heartrhythmevents.org/users/signup/hrc2021/patients
CPVT
vs. Brugada syndrome) Dr Jan Till | London, UK Click the link below to REGISTER for VIRTUAL Patients Day 2021 https://heartrhythmevents.org/users/signup/hrc2021/patients
TracyAdmin
Partner
in
Arrhythmia Alliance SVT
3 years ago
Are you registered for Arrhythmia Alliance VIRTUAL Patients Day 2021?
CPVT
vs. Brugada syndrome) Dr Jan Till | London, UK Click the link below to REGISTER for VIRTUAL Patients Day 2021 https://heartrhythmevents.org/users/signup/hrc2021/patients
CPVT
vs. Brugada syndrome) Dr Jan Till | London, UK Click the link below to REGISTER for VIRTUAL Patients Day 2021 https://heartrhythmevents.org/users/signup/hrc2021/patients
TracyAdmin
Partner
in
Arrhythmia Alliance Heart Failure
3 years ago
Are you registered for Arrhythmia Alliance VIRTUAL Patients Day 2021?
CPVT
vs. Brugada syndrome) Dr Jan Till | London, UK Click the link below to REGISTER for VIRTUAL Patients Day 2021 https://heartrhythmevents.org/users/signup/hrc2021/patients
CPVT
vs. Brugada syndrome) Dr Jan Till | London, UK Click the link below to REGISTER for VIRTUAL Patients Day 2021 https://heartrhythmevents.org/users/signup/hrc2021/patients
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
3 years ago
Covid 19 vaccination
I was just wondering if anyone on here that has a condition
cpvt
have had their covid-19 vaccination yet? ๐๐๐
I was just wondering if anyone on here that has a condition
cpvt
have had their covid-19 vaccination yet? ๐๐๐
Elvis4
in
Arrhythmia Alliance
3 years ago
CPVT
I would like to speak to people who have the same condition.
I would like to speak to people who have the same condition.
Heartglasgow2020
in
British Heart Foundation
4 years ago
Has anyone been successful securing Life and Critical Illness Cover when you have a heart condition?
Hi all, I was diagnosed with Long QT in 2007 but in recent weeks this diagnosis looks to be amended to Catecholaminergic Polymorphic Ventricular Tachycardia (
CPVT
). We bought our first home in 2018 but I have had a lot of trouble finding any type of cover other than Accidental.
Hi all, I was diagnosed with Long QT in 2007 but in recent weeks this diagnosis looks to be amended to Catecholaminergic Polymorphic Ventricular Tachycardia (
CPVT
). We bought our first home in 2018 but I have had a lot of trouble finding any type of cover other than Accidental.
Bekkajaine
in
British Heart Foundation
4 years ago
Cpvt and Coronavirus
CPVT
and Coronavirus My daughter has
cpvt
and has an icd also my husband has long qt ( donot know which one ) . My daughter does suffer with throat infections like Tracheitis quite frequently. Just after advice on if she is high risk with the Coronavirus Many thanks
CPVT
and Coronavirus My daughter has
cpvt
and has an icd also my husband has long qt ( donot know which one ) . My daughter does suffer with throat infections like Tracheitis quite frequently. Just after advice on if she is high risk with the Coronavirus Many thanks
Sloths
in
British Heart Foundation
4 years ago
CPVT
Hello I have the condition
CPVT
and work in a private nursery. They are asking if I come under being vunerable if I was to get the Corona virus. Would appreciate if anyone with this condition could help .. Thank you
Hello I have the condition
CPVT
and work in a private nursery. They are asking if I come under being vunerable if I was to get the Corona virus. Would appreciate if anyone with this condition could help .. Thank you
Elvis4
in
British Heart Foundation
4 years ago
Rare conditions and Heart failure at 34
I'm 34 and just be diagnosed last week with heart failure myself and son both have Catecholaminergic polymorphic ventricular tachycardia (
cpvt
) and andersen tawil syndrome and already fitted with a pacemaker and defibrillator...
I'm 34 and just be diagnosed last week with heart failure myself and son both have Catecholaminergic polymorphic ventricular tachycardia (
cpvt
) and andersen tawil syndrome and already fitted with a pacemaker and defibrillator...
Amy_jean
in
British Heart Foundation
5 years ago
first *hopefully only* ablation this week!
I am a 34 year old female have been seeing EP for about a year, was initially diagnosed with
CPVT
( genetic, adrenaline induced Ventricular Tachycardia) I got a second opinion where I was diagnosed with RVOT VT (Right Ventricular Outflow Trac VT) The second opinion says ablation could work to treat my
I am a 34 year old female have been seeing EP for about a year, was initially diagnosed with
CPVT
( genetic, adrenaline induced Ventricular Tachycardia) I got a second opinion where I was diagnosed with RVOT VT (Right Ventricular Outflow Trac VT) The second opinion says ablation could work to treat my
wyo19
in
AF Association
5 years ago
Have you booked yet?
Arrhythmia Alliance Patients Day 2019 will cover a variety of topics this year including SVT, living with an ICD,
CPVT
and other arrhythmias. Please visit http://www.heartrhythmalliance.org/aa/uk/patients-day for details on the agenda and how to register. We look forward to seeing you there!
Arrhythmia Alliance Patients Day 2019 will cover a variety of topics this year including SVT, living with an ICD,
CPVT
and other arrhythmias. Please visit http://www.heartrhythmalliance.org/aa/uk/patients-day for details on the agenda and how to register. We look forward to seeing you there!
Hidden
in
Arrhythmia Alliance
5 years ago
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