Experiences with

Catecholaminergic polymorphic ventricular tachycardia (CPVT)

I have CPVT but just recently I have had a ICD implant because I was getting 7 second intermitting pauses in my heart rhythm. Does anyone else fell the little pulses? They don't hurt at all but make me aware of my heart rhythm. Do they eventually settle down. Thank you

hi, I am awaiting investigation for CPVT, doctors believe it is more than likely I have this but my appointment is not until a November. I am due to go on a once in a lifetime trip in august and no travel insurance will cover me due to it being undiagnosed.

does anyone have catecholomine polymorphic ventricular tachycardia. Or Pots

Does anyone know of specialist in catecholomine polymorphic ventriculat tachycardia

CPVT? What is Brugada syndrome? All these question and more are answered by Dr Jan Till Register TODAY for the Arrhythmia Alliance #PatientsDay2021 at #HRC2021 to learn more about your arrhythmia Click the link below to register: https://heartrhythmevents.org/users/signup/hrc2021/patients

CPVT? What is Brugada syndrome?

CPVT? What is Brugada syndrome?

CPVT? What is Brugada syndrome? All these question and more are answered by Dr Jan Till Register TODAY for the Arrhythmia Alliance #PatientsDay2021 at #HRC2021 to learn more about your arrhythmia Click the link below to register: https://heartrhythmevents.org/users/signup/hrc2021/patients

CPVT vs. Brugada syndrome) Dr Jan Till | London, UK Click the link below to REGISTER for VIRTUAL Patients Day 2021 https://heartrhythmevents.org/users/signup/hrc2021/patients

CPVT vs. Brugada syndrome) Dr Jan Till | London, UK Click the link below to REGISTER for VIRTUAL Patients Day 2021 https://heartrhythmevents.org/users/signup/hrc2021/patients

CPVT vs. Brugada syndrome) Dr Jan Till | London, UK Click the link below to REGISTER for VIRTUAL Patients Day 2021 https://heartrhythmevents.org/users/signup/hrc2021/patients

CPVT vs. Brugada syndrome) Dr Jan Till | London, UK Click the link below to REGISTER for VIRTUAL Patients Day 2021 https://heartrhythmevents.org/users/signup/hrc2021/patients

I was just wondering if anyone on here that has a condition cpvt have had their covid-19 vaccination yet? 😊😊😊

I would like to speak to people who have the same condition.

Hi all, I was diagnosed with Long QT in 2007 but in recent weeks this diagnosis looks to be amended to Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT). We bought our first home in 2018 but I have had a lot of trouble finding any type of cover other than Accidental.

CPVT and Coronavirus My daughter has cpvt and has an icd also my husband has long qt ( donot know which one ) . My daughter does suffer with throat infections like Tracheitis quite frequently. Just after advice on if she is high risk with the Coronavirus Many thanks

Hello I have the condition CPVT and work in a private nursery. They are asking if I come under being vunerable if I was to get the Corona virus. Would appreciate if anyone with this condition could help .. Thank you

I'm 34 and just be diagnosed last week with heart failure myself and son both have Catecholaminergic polymorphic ventricular tachycardia (cpvt) and andersen tawil syndrome and already fitted with a pacemaker and defibrillator...

I am a 34 year old female have been seeing EP for about a year, was initially diagnosed with CPVT ( genetic, adrenaline induced Ventricular Tachycardia) I got a second opinion where I was diagnosed with RVOT VT (Right Ventricular Outflow Trac VT) The second opinion says ablation could work to treat my

Arrhythmia Alliance Patients Day 2019 will cover a variety of topics this year including SVT, living with an ICD, CPVT and other arrhythmias. Please visit http://www.heartrhythmalliance.org/aa/uk/patients-day for details on the agenda and how to register. We look forward to seeing you there!