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Experiences with
Catecholaminergic polymorphic ventricular tachycardia (CPVT)
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RVOT-VT, your experience?
I was recently diagnosed with
CPVT
, A genetic disease of polymorphic VT so it was not considered ablatable. I got a second opinion and the new EP says I do not have
CPVT
but rather RVOT-VT. Mine is triggered by extreme exercise.
I was recently diagnosed with
CPVT
, A genetic disease of polymorphic VT so it was not considered ablatable. I got a second opinion and the new EP says I do not have
CPVT
but rather RVOT-VT. Mine is triggered by extreme exercise.
wyo19
in
Arrhythmia Alliance
5 years ago
Dreaded beta blockers
Are there any alternatives to beta blockers for
CPVT
- I feel so sluggish and tired on them! Plus really gaining weight- any suggestions. I was active, reasonably fit and now just no energy whatsoever. 😢😢
Are there any alternatives to beta blockers for
CPVT
- I feel so sluggish and tired on them! Plus really gaining weight- any suggestions. I was active, reasonably fit and now just no energy whatsoever. 😢😢
Kizzie54
in
Arrhythmia Alliance
5 years ago
Living with CPVT (life threatening heart condition)is rlly difficult 💕
I have a life treating heart condition called
CPVT
, it came to light when I was 13 and now I’m 16.
I have a life treating heart condition called
CPVT
, it came to light when I was 13 and now I’m 16.
Ellie_
in
British Heart Foundation
6 years ago
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Have you been diagnosed with CPVT?
Arrhythmia Alliance will be hosting a patients day conference for those diagnosed with Catecholaminergic polymorphic ventricular tachycardia (
CPVT
) and their carers, at the Birmingham ICC on Sunday 7th October 2018 We have funding for 10 free places worth £35 each!
Arrhythmia Alliance will be hosting a patients day conference for those diagnosed with Catecholaminergic polymorphic ventricular tachycardia (
CPVT
) and their carers, at the Birmingham ICC on Sunday 7th October 2018 We have funding for 10 free places worth £35 each!
Hidden
in
Sudden Cardiac Arrest & Heart Attack
6 years ago
Did You Know?
One specifically for those diagnosed with
CPVT
(Catecholaminergic polymorphic ventricular tachycardia), and one aimed at more general arrhythmias. Giving you the opportunity to hear about your condition from the experts, and to ask your questions!
One specifically for those diagnosed with
CPVT
(Catecholaminergic polymorphic ventricular tachycardia), and one aimed at more general arrhythmias. Giving you the opportunity to hear about your condition from the experts, and to ask your questions!
Hidden
in
Arrhythmia Alliance
6 years ago
Cpvt and Andersen-Tawil syndrome
Hi I'm new to this so here's a little bit about our selfs ..Myself and son both have Catecholaminergic polymorphic ventricular tachycardia (
CPVT
) and Andersen-Tawil syndrome both fitted with a pacemaker and icd.
Hi I'm new to this so here's a little bit about our selfs ..Myself and son both have Catecholaminergic polymorphic ventricular tachycardia (
CPVT
) and Andersen-Tawil syndrome both fitted with a pacemaker and icd.
Flybug
in
British Heart Foundation
6 years ago
Children and partner Genetically positive for cpvt :-(
My partner and 3 of my children have tested positive for the ryr2 gene that can cause
cpvt
. I’m currebtky waiting for the 24hr ecg tests of the children to come back.
My partner and 3 of my children have tested positive for the ryr2 gene that can cause
cpvt
. I’m currebtky waiting for the 24hr ecg tests of the children to come back.
H3326
in
British Heart Foundation
6 years ago
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