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Experiences with
Coarctation of the aorta
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276 public communities
British Heart Foundation
52,350 members
We are the British Heart Foundation (BHF), the largest independent funder of cardiovascular research. We fund research into life saving cures to beat heart disease, stroke and vascular dementia, and stop conditions like diabetes from causing them, to help people and families live longer, better lives. Over the years, our pioneering research has helped to transform the lives of people living with heart and circulatory conditions. As well funding ground-breaking research, we’re here to support people affected by heart and circulatory diseases and their risk factors. So whether you're living with a heart or circulatory disease, or just want to find out more about them, this is the place to be. If you have any questions or concerns, and would like to speak with one of our cardiac nurses, please do contact our Heart Helpline team on 0300 330 3311 Mon-Fri 9-5pm or email hearthelpline@bhf.org.uk This community is moderated by HU_Moderator
Parents of ALD Newborns
99 members
We are here to offer support as you navigate through your babies first few years of life after a diagnosis of adrenoleukodystrophy. Knowledge is power and now you have the power to save your child's life. Some of the information that is floating around on the internet is not correct and we hope to fix that by closely monitoring the info that is posted on this forum.
Lupus Foundation of Florida
781 members
The Lupus Foundation of Florida provides support, education, referrals, advocacy and hope to those affected by lupus.
The Dyslexia Community
2,337 members
The Dyslexia Community is a peer support community for all those affected by dyslexia to discuss, share tips and find support. Why not introduce yourself today!
The Children's Trust
241 members
The Children’s Trust, Tadworth is a national charity working with children with brain injury. We are based at a 24 acre site in Tadworth, Surrey but offer our services to children from across the UK. We provide expert rehabilitation, education, therapy and care to support children and their families. The Children's Trust has also developed The Brain Injury Hub which is an online information and advice service for parents and other family members and includes as well as developing an online community and includes Health Unlocked.
The Endometriosis Foundation
1,141 members
The Endometriosis Foundation (also known as women with endometriosis) is a Charity dedicated to raising awareness, informing and supporting those affected by endometriosis, and right now, we're needed more than ever.
Survivors of Childhood Brain Tumours
93 members
Welcome to the Survivors of Childhood Brain Tumour Community Group, established by Success Charity. Success Charity is committed to enabling brighter futures for survivors of childhood brain tumours. We aim to support and empower survivors to live the lives they choose, and enable them to fulfill their true potential, post cure. Success is working to: • Assist: provide ‘joined up’ rehabilitative support services to address survivors’ ongoing clinical & therapeutic needs • Equip: provide direct access to better information, resources & key assessments • Connect & Empower: through distinct peer support networking programmes & events • Research: to better understand the consequences of brain injury acquired as a result of the tumour and treatment This community is for survivors, parents, carers and friends. Please join today to share your experiences, make new connections, ask questions, give and receive support to and from people who truly understand and can relate. We are all here to help.
Eczema Association of Australasia Inc
432 members
We support and educate Eczema sufferers and carers, along with the wider community, in all aspects of Eczema and its impact in Australia and New Zealand.
The Wayne Howard Trust
27 members
The York ME Community
84 members
The Brain Tumour Charity
477 members
Welcome to The Brain Tumour Charity peer support online community for anyone affected by a brain tumour diagnosis. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simply read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news. The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
Cloudy with a Chance of Pain
1,519 members
A community for people with chronic pain or arthritis. Cloudy with a Chance of Pain is a UK smartphone study and citizen science experiment studying the association between weather and pain.
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