Experiences with

Cardiomyopathy

Do you or a family member or friend have Arrhythmogenic Cardiomyopathy? You are invited to participate in a study to identify the unmet health-related needs of patients with a genetic form of Arrhythmogenic Cardiomyopathy in order to improve the quality of their care.

Do you or a family member or friend have Arrhythmogenic Cardiomyopathy? You are invited to participate in a study to identify the unmet health-related needs of patients with a genetic form of Arrhythmogenic Cardiomyopathy in order to improve the quality of their care.

Do you or a family member or friend have Arrhythmogenic Cardiomyopathy? You are invited to participate in a study to identify the unmet health-related needs of patients with a genetic form of Arrhythmogenic Cardiomyopathy in order to improve the quality of their care.

Do you or a family member or friend have Arrhythmogenic Cardiomyopathy? You are invited to participate in a study to identify the unmet health-related needs of patients with a genetic form of Arrhythmogenic Cardiomyopathy in order to improve the quality of their care.

I had takotsubo may 2024 have been discharged from cardiology back to GP do I get any check up not sure what to expect as I have had no information.

so I had my mri yesterday. They confirmed what the cardiologist was looking for. They didn’t mention my mitral valve regurgitation, but confirmed that I have a thickened heart muscle. They said the cardiologist will measure it against my echocardiogram and see what changes/medication il need. I had

I’ve been told I have a swelling on left side of heart wall. haven’t been diagnosed with ^ as cardiologist said it could be many things? can anyone shed any light? If it is this can it be managed by medication or is surgery the only way, Is my goose cooked!

hi I was diagnosed with this in early December now on medication waiting for rehab I would be interested in hearing anyone else’s story with this condition as currently my progress is slow Thank you

My son has been diagnosed with DCM after cardiogenic shock and mild stroke. He had Covid and was ill for a few months which GP and A&E initially put down to GORD but it was HF. He is recovering and out of hospital but struggling with side effects of medications-can these be tweaked? How long can he

Today we are highlighting HCM Awareness Day. A genetic heart condition that is estimated to affect 1 in 500 people in the UK and 1 in 500 young people in the US, HCM causes the heart muscle (myocardium) to thicken. This can make it harder for the heart to pump blood out of the organ and around the body

Today we are highlighting HCM Awareness Day. A genetic heart condition that is estimated to affect 1 in 500 people in the UK and 1 in 500 young people in the US, HCM causes the heart muscle (myocardium) to thicken. This can make it harder for the heart to pump blood out of the organ and around the body

Today we are highlighting HCM Awareness Day. A genetic heart condition that is estimated to affect 1 in 500 people in the UK and 1 in 500 young people in the US, HCM causes the heart muscle (myocardium) to thicken. This can make it harder for the heart to pump blood out of the organ and around the body

Today we are highlighting HCM Awareness Day. A genetic heart condition that is estimated to affect 1 in 500 people in the UK and 1 in 500 young people in the US, HCM causes the heart muscle (myocardium) to thicken. This can make it harder for the heart to pump blood out of the organ and around the body

Today we are highlighting HCM Awareness Day. A genetic heart condition that is estimated to affect 1 in 500 people in the UK and 1 in 500 young people in the US, HCM causes the heart muscle (myocardium) to thicken. This can make it harder for the heart to pump blood out of the organ and around the body

Today we are highlighting HCM Awareness Day. A genetic heart condition that is estimated to affect 1 in 500 people in the UK and 1 in 500 young people in the US, HCM causes the heart muscle (myocardium) to thicken. This can make it harder for the heart to pump blood out of the organ and around the body

hi After 3 years plus of being constantly breathless but diagnosed with AF yesterday I visited a private cardiologist Anyway he said yes I have AF but also he believes and I will put it how he did my heart after taking a breath is not returning to shape as quickly as it should He said a bit like

Hi Does anyone have any expereince of getting life insurance when they have been diagnsed with Cardiomyopathy? I'm struggling, i'm not on any medication anmd show no symptoms. Thansk

I have been on 10mg of bisoprolol plus entestrone, spiralactrone and 10mg of dapaglifloxin for 18 months after being diagnosed with dilated cardiomyopathy and having a crt +d fitted.i have been experiencing severe headaches almost constantly for over 12 months I wonder if anyone has any experience of

The results will help Cardiomyopathy UK campaign for improvements in services and support.

I was diagnosed with Cardiomyopathy at age 28 I'm now 31. My EF was year was 44% raised from 38%/39% when 1st diagnosed I have tried to speak to my professionals about family planning and being able to carry a child.