Do you or a family member or friend have Arrhythmogenic Cardiomyopathy?
You are invited to participate in a study to identify the unmet health-related needs of patients with a genetic form of Arrhythmogenic Cardiomyopathy in order to improve the quality of their care.
Objectives and course of the study
The aim of this study is to identify the needs and burdens caused by Arrhythmogenic Cardiomyopathy in patients and their families. By getting a better picture of the current potential needs that these patients experience, we want to improve the quality of their care and support the implementation of new medicines/therapies.
We suggest that you participate in this study because you have already been diagnosed with a genetic form of Arrhythmogenic Cardiomyopathy.
To participate in this study, you must
• Have been diagnosed with a genetic form of Arrhythmogenic Cardiomyopathy, which may or may not cause symptoms
• Be of legal age (18+)
If this is of interest, we invite you to complete a questionnaire, which should take up no more than 20-30 minutes of your time: survey.kuleuven.cloud/51799...
The questionnaire is anonymous, so no personal data is collected.
Your support and participation are much appreciated.
If you have any other questions, please contact our Patient Services Team: info@heartrhythmalliance.org
Kind regards
Tracy Admin
