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Susie
Hello, I have stage 4 breast cancer in my right lung and pleura. I’m new to ibrance and fasodex and I’m having many side effects such as joint pain, hot flashes and cold chills, and mouth sores. Does anyone know if these side effects get better with time?
Hello, I have stage 4 breast cancer in my right lung and pleura. I’m new to ibrance and fasodex and I’m having many side effects such as joint pain, hot flashes and cold chills, and mouth sores. Does anyone know if these side effects get better with time?
Likes
in
SHARE Metastatic Breast Cancer
4 years ago
self-isolating
I had a CT last week and was able to see the radiologist's report at the patient portal. No progression noted and a bit of bone met shrinkage in a couple of spots so good news. But then it goes on to suggest that I have pneumonia. I do have damage at the bottom of my right lung from the Ibrance I
I had a CT last week and was able to see the radiologist's report at the patient portal. No progression noted and a bit of bone met shrinkage in a couple of spots so good news. But then it goes on to suggest that I have pneumonia. I do have damage at the bottom of my right lung from the Ibrance I
PJBinMI
in
SHARE Metastatic Breast Cancer
4 years ago
Afinitor (everolimus) with Faslodex (fulvestrant) combo
Hi everyone, I will be starting the Everolimus and Faslodex combo this week after Arimidex combo with Ibrance stopped working after 20 months. I’ve seen a lot of posts mentioning the Everolimus in combo with Exemestane but not Everolimus in combo with Faslodex. Has anyone taken this combo and if
Hi everyone, I will be starting the Everolimus and Faslodex combo this week after Arimidex combo with Ibrance stopped working after 20 months. I’ve seen a lot of posts mentioning the Everolimus in combo with Exemestane but not Everolimus in combo with Faslodex. Has anyone taken this combo and if
Jonesburger
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SHARE Metastatic Breast Cancer
4 years ago
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Itchy forehead
I’m just curious if anyone has had any reaction like this because of the medication. My forehead has been broken out for quite a few months, and it’s also on both sides of my nose. It was coming and going, but now it’s getting really bad and itches like crazy. I’m on Ibrance and Letrozole. I have no
I’m just curious if anyone has had any reaction like this because of the medication. My forehead has been broken out for quite a few months, and it’s also on both sides of my nose. It was coming and going, but now it’s getting really bad and itches like crazy. I’m on Ibrance and Letrozole. I have no
KMBL_
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SHARE Metastatic Breast Cancer
4 years ago
Pain during sex
I am on zoledex, letrozole, desunamab and ibrance, when I try to have sex it is really painful. Has anyone else had this and did your doctor prescribe anything
I am on zoledex, letrozole, desunamab and ibrance, when I try to have sex it is really painful. Has anyone else had this and did your doctor prescribe anything
Kiera49
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SHARE Metastatic Breast Cancer
4 years ago
Stopping Ibrance for the time being
Hi, I hope you are all safe and well. Just had my telephone appointment with hospital and basically they have offered me the chance to stop Ibrance for the time being (and continue with Letrozole) until the pandemic settles down. I have been on Ibrance since June 18. They said it could be a good opportunity
Hi, I hope you are all safe and well. Just had my telephone appointment with hospital and basically they have offered me the chance to stop Ibrance for the time being (and continue with Letrozole) until the pandemic settles down. I have been on Ibrance since June 18. They said it could be a good opportunity
Evaf
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SHARE Metastatic Breast Cancer
4 years ago
Great news
It had been a while since I my last post. Since then I celebrated my 80th birthday, a grandson graduated from college, of my 3 granddaughters one got married, another is graduating from college and the third one is home safely from Qatar. Shortly after my pet scan in January, I was informed it looked
It had been a while since I my last post. Since then I celebrated my 80th birthday, a grandson graduated from college, of my 3 granddaughters one got married, another is graduating from college and the third one is home safely from Qatar. Shortly after my pet scan in January, I was informed it looked
Semple
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SHARE Metastatic Breast Cancer
4 years ago
Fears over fluttering in chest
I’ve had bouts of tachycardia and PVCs for 7 years, usually controlled by Flecainide and Verapamil. The tachycardia’s started again lately - 6 bouts over the past 6 weeks, heart rate about 100bpm, lasting 2 hours usually. Also now I have a fluttering/quivering sensation in my chest, and a different feeling
I’ve had bouts of tachycardia and PVCs for 7 years, usually controlled by Flecainide and Verapamil. The tachycardia’s started again lately - 6 bouts over the past 6 weeks, heart rate about 100bpm, lasting 2 hours usually. Also now I have a fluttering/quivering sensation in my chest, and a different feeling
Bedlington14
in
Arrhythmia Alliance
4 years ago
Worries to go I for zometa treatment
Hello all, I read a lot here, but don’t post much. I’m nervous about an upcoming Zometa infusion this week. Last month my oncologist had me hold off on my blood work and Ibrance cycle. Because he didn’t want to expose me to unnecessary probable exposure to the virus. I’ve been stable and on Ibrance
Hello all, I read a lot here, but don’t post much. I’m nervous about an upcoming Zometa infusion this week. Last month my oncologist had me hold off on my blood work and Ibrance cycle. Because he didn’t want to expose me to unnecessary probable exposure to the virus. I’ve been stable and on Ibrance
theresac1
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SHARE Metastatic Breast Cancer
4 years ago
Pacemaker battery change due now
Hi all. Hope you are well and not stir crazy. I have sick sinus syndrome tachy/brady variety. 20 years. 3 ablations. Last one partially effective. Prof Schilling reluctant to do more. Anyway I am on the list at Barts for an update as my current (2nd) pacemaker has a few months battery left. Had
Hi all. Hope you are well and not stir crazy. I have sick sinus syndrome tachy/brady variety. 20 years. 3 ablations. Last one partially effective. Prof Schilling reluctant to do more. Anyway I am on the list at Barts for an update as my current (2nd) pacemaker has a few months battery left. Had
Icenae
in
Atrial Fibrillation Support
4 years ago
Lower Back Pain
I have suffered with back problems for the past 20years which over the last 7/8 years have gradually got worse. It started of with pain in my lower back which was helped by regular trips to a Chiropractor. This allowed me to continue walking with my local walking group. But slowly over the past 7
I have suffered with back problems for the past 20years which over the last 7/8 years have gradually got worse. It started of with pain in my lower back which was helped by regular trips to a Chiropractor. This allowed me to continue walking with my local walking group. But slowly over the past 7
Spursboy
in
Pain Concern
4 years ago
Apixaban.
I have been taking Warfarin for about 2 years now since I was diagnosed with AF. I wanted to take Apixaban , as I have Coeliac the doctor said it was not suitable for me. Anyone on here taking Apixaban and have Coeliac ? I don't want to be going out if I can help it. My age is 76 so I should
I have been taking Warfarin for about 2 years now since I was diagnosed with AF. I wanted to take Apixaban , as I have Coeliac the doctor said it was not suitable for me. Anyone on here taking Apixaban and have Coeliac ? I don't want to be going out if I can help it. My age is 76 so I should
benmaise
in
AF Association
4 years ago
SVT back after ablation?
I had my ablation for STV on the 10th Feb. I was told at the time that they may not of got it due to being so close to my AV node abd I was going into heart block during the procedure. I've had a few little bumps etc since but no SVT. However today after eating my heart started to race which lasted
I had my ablation for STV on the 10th Feb. I was told at the time that they may not of got it due to being so close to my AV node abd I was going into heart block during the procedure. I've had a few little bumps etc since but no SVT. However today after eating my heart started to race which lasted
chris45558
in
AF Association
4 years ago
Cancer May stabilize on ibrance after some progression?
After going to the genomics clinic and talking about the clinical trial that is supposed to start this summer, I met with my oncologist. She said she wants to wait until after my next scan in a couple of months to see if maybe the cancer has stabilized since my last scan. After being on ibrance and
After going to the genomics clinic and talking about the clinical trial that is supposed to start this summer, I met with my oncologist. She said she wants to wait until after my next scan in a couple of months to see if maybe the cancer has stabilized since my last scan. After being on ibrance and
Wolverine19
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SHARE Metastatic Breast Cancer
4 years ago
What could this be?
When I breathe in deep, my heart beats realllllly fast. Like, I know when you breathe in...your heart rate increases. But once I get to the point of maxing out my lungs with air, my heart goes THUMPTHUMPTHUMPTHUMP back to back, FAST, and returns to normal when I exhale. I dont get it. I know doctors
When I breathe in deep, my heart beats realllllly fast. Like, I know when you breathe in...your heart rate increases. But once I get to the point of maxing out my lungs with air, my heart goes THUMPTHUMPTHUMPTHUMP back to back, FAST, and returns to normal when I exhale. I dont get it. I know doctors
Notorious_Nick
in
Arrhythmia Alliance
4 years ago
Neutrophils dropping
I had my bloodwork last week and it was the last day of taking my Ibrance. It’s usually done after the week off but my oncologist was away and my schedule got messed up. They were 1.2 which was good. He said to just get my bloodwork done again this week and the oncologist nurse would call and do a check
I had my bloodwork last week and it was the last day of taking my Ibrance. It’s usually done after the week off but my oncologist was away and my schedule got messed up. They were 1.2 which was good. He said to just get my bloodwork done again this week and the oncologist nurse would call and do a check
Hidden
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SHARE Metastatic Breast Cancer
4 years ago
Has anyone been told that Ibrance will be going with tablets as soon as supply runs out. I just got mine filled -notice inside.?
Can anyone relate to this notice?
Can anyone relate to this notice?
Eliactida1955
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SHARE Metastatic Breast Cancer
4 years ago
Flecainide Journey Continued...
Hello again. Thank you to everyone for your support up to now. It has been massively appreciated. I’m 10 days in taking 2 x 50mg of Flecainide daily and had a horrible AF episode yesterday again. Really struggled to get it to slow down. Have spoken with GP who doesn’t want to change things without
Hello again. Thank you to everyone for your support up to now. It has been massively appreciated. I’m 10 days in taking 2 x 50mg of Flecainide daily and had a horrible AF episode yesterday again. Really struggled to get it to slow down. Have spoken with GP who doesn’t want to change things without
Apple88
in
AF Association
4 years ago
Very intermittent and very short afib, then sinus rhythm
8 years ago I had an ablation for a-flutter. In last 6 months, have had pafib, usually about once every 2nd or 3rd week. Each episode last about an hour, then returns to normal sinus rhythm. Does this sound familiar, and does it get worse? Am on xeralto 20mg. This is very intermittent and very brief
8 years ago I had an ablation for a-flutter. In last 6 months, have had pafib, usually about once every 2nd or 3rd week. Each episode last about an hour, then returns to normal sinus rhythm. Does this sound familiar, and does it get worse? Am on xeralto 20mg. This is very intermittent and very brief
Dippitydo
in
AF Association
4 years ago
Anyone develop a rash with Ibrance/Letrozole?
Hi all! I’ve had a persistent, very itchy rash for about 10 days. My pcp and dermatologist could only see a photo I sent as I’m not allowed in clinic. They thought it was Scabies or Folliculitis and have given me meds for both. Nothing has worked. Yesterday I did a drive up appointment with our pcp,
Hi all! I’ve had a persistent, very itchy rash for about 10 days. My pcp and dermatologist could only see a photo I sent as I’m not allowed in clinic. They thought it was Scabies or Folliculitis and have given me meds for both. Nothing has worked. Yesterday I did a drive up appointment with our pcp,
Red1246
in
SHARE Metastatic Breast Cancer
4 years ago
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