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I am here to learn how others cope with the everyday living of MS.
Hello, I am a 67-year-old Californian happy to chat about this disease with anyone. I spent 14 years using a wheelchair out of the house, to be honest sometimes in the house for speed or because of fatigue. About 6 years ago my right foot started to work again a little bit, 4 years ago I joined the MS
Hello, I am a 67-year-old Californian happy to chat about this disease with anyone. I spent 14 years using a wheelchair out of the house, to be honest sometimes in the house for speed or because of fatigue. About 6 years ago my right foot started to work again a little bit, 4 years ago I joined the MS
Hidden
in
My MSAA Community
6 years ago
Dr's give me no hope. I need help!
I'm not even sure if I am in the right group? I have multiple diagnosed health problems including, 25+ years of Hep C (was a "lab rat" for Dr. Everson at UCH CO. 5 rounds of interferon A, pegalated interferon and riboviran and betaseron and my genotype 2 didn't respond. Dr. Everson chose Epclusa for
I'm not even sure if I am in the right group? I have multiple diagnosed health problems including, 25+ years of Hep C (was a "lab rat" for Dr. Everson at UCH CO. 5 rounds of interferon A, pegalated interferon and riboviran and betaseron and my genotype 2 didn't respond. Dr. Everson chose Epclusa for
TaraRae
in
Hughes Syndrome APS Forum
6 years ago
Anyone on Tysabri?
Anyone on Tysabri? My neuro is suggesting I go on it. I have been on Betaseron for 15 years with not much change in my symptoms until a little weakness last year for a couple weeks and just recently.
Anyone on Tysabri? My neuro is suggesting I go on it. I have been on Betaseron for 15 years with not much change in my symptoms until a little weakness last year for a couple weeks and just recently.
cats3
in
My MSAA Community
6 years ago
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OCREVUS - I NEED INFO
I'm new to this site and am hopeful for some info and support. I was diagnosed in 2014. I went on Betaseron with no success. Went on Tysabri and it worked very well but because of the JC virus, was only able to have 24 treatments. While waiting for Ocrevus I had steroid treatment, but once Ocrevus
I'm new to this site and am hopeful for some info and support. I was diagnosed in 2014. I went on Betaseron with no success. Went on Tysabri and it worked very well but because of the JC virus, was only able to have 24 treatments. While waiting for Ocrevus I had steroid treatment, but once Ocrevus
SueStu
in
My MSAA Community
6 years ago
Itchy Welts After Injections
I am on Betaseron injections every other day. I do alright with them with the exception of itchy welts. Any ideas for dealing with them?
I am on Betaseron injections every other day. I do alright with them with the exception of itchy welts. Any ideas for dealing with them?
MrsDenny17
in
My MSAA Community
6 years ago
I'm new here
My name is Alice Nyberg. I was diagnosed in 1994 with MS. I have been on Betaseron and Gilenya. I am currently on Tysabri for the past two years. My neurologist is suggesting that I go on Ocrevus? Anyone out there on Ocrevus? How is it working for you?
My name is Alice Nyberg. I was diagnosed in 1994 with MS. I have been on Betaseron and Gilenya. I am currently on Tysabri for the past two years. My neurologist is suggesting that I go on Ocrevus? Anyone out there on Ocrevus? How is it working for you?
alleynyberg
in
My MSAA Community
7 years ago
Starting Meds ~ Any opinions?
Hi everyone ... I was diagnosed in January with RRMS & will be starting medication soon. I have been given info on orals & injectables ... it all seems very overwhelming. Injectables: Avonex; Betaseron; Rebif; Copaxone Oral: Aubagio; Tecfidera Your thoughts ... Thank you, Carrie
Hi everyone ... I was diagnosed in January with RRMS & will be starting medication soon. I have been given info on orals & injectables ... it all seems very overwhelming. Injectables: Avonex; Betaseron; Rebif; Copaxone Oral: Aubagio; Tecfidera Your thoughts ... Thank you, Carrie
Daring_Greatly
in
My MSAA Community
7 years ago
Introducing me
I was diagnosed with RRMS in 1979. I am 65 and a retired teacher living in Michigan. Now my Dr. thinks I am in the second phase of this disease and has opted to take me off a bll MS therapies. Over the years, I have been on Betaseron, Avonex, and Tysabri. I fell and broke my left hip (Nov. 2015)
I was diagnosed with RRMS in 1979. I am 65 and a retired teacher living in Michigan. Now my Dr. thinks I am in the second phase of this disease and has opted to take me off a bll MS therapies. Over the years, I have been on Betaseron, Avonex, and Tysabri. I fell and broke my left hip (Nov. 2015)
DebbyLou
in
My MSAA Community
7 years ago
M.A.S. Multiple Autoimmune Syndrome
Diagnosed with MS in 2000, I injected betaseron then rebif then finally avonex for 9 years. My body began rejecting the interferons, injection sites were even leaking. I had no place left to poke. I then opted to stop treatment and go as healthy natural as I could. I found Charlotte's Web CBD oil
Diagnosed with MS in 2000, I injected betaseron then rebif then finally avonex for 9 years. My body began rejecting the interferons, injection sites were even leaking. I had no place left to poke. I then opted to stop treatment and go as healthy natural as I could. I found Charlotte's Web CBD oil
Sierranne
in
My MSAA Community
8 years ago
It's about time!
It's about time I write something to introduce myself! I was diagnosed in the very beginning of 1990. It all started with vertigo, double vision, trouble swallowing, weakness on one side of my body, extreme nausea. I couldn't even stand and, after a couple of days not being able to keep even water down
It's about time I write something to introduce myself! I was diagnosed in the very beginning of 1990. It all started with vertigo, double vision, trouble swallowing, weakness on one side of my body, extreme nausea. I couldn't even stand and, after a couple of days not being able to keep even water down
Ashirva
in
My MSAA Community
8 years ago
intro.
i was dg. in 2001 right after graduating college. was on betaseron for years in combination w. chemo. at 35 was in a nursing home and went to northwestern to see dr. burt about hsct. i could barely walk and was treated off study and only wish i had it sooner! ~nadine
i was dg. in 2001 right after graduating college. was on betaseron for years in combination w. chemo. at 35 was in a nursing home and went to northwestern to see dr. burt about hsct. i could barely walk and was treated off study and only wish i had it sooner! ~nadine
nes78
in
My MSAA Community
8 years ago
Introducing myself
Hi everyone! My name is April. I have had MS for 21 years... fist hit in 1995 - months after my son was born; officially diagnosed in 2001 - at first thought it was Anthrax because of the "inconclusive" results in my office (DC). I have been on Betaseron, Copaxone (twice - 7 & 3 day), Rebif and Tysabri
Hi everyone! My name is April. I have had MS for 21 years... fist hit in 1995 - months after my son was born; officially diagnosed in 2001 - at first thought it was Anthrax because of the "inconclusive" results in my office (DC). I have been on Betaseron, Copaxone (twice - 7 & 3 day), Rebif and Tysabri
April-1995MSWarrior
in
My MSAA Community
8 years ago
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