suffering from dizziness

[Kingsdale]

80 y.o. husband diagnosed with PD a little over one year ago (Nov.27 '23) not started on Sinemat until March 24 '24 which he is still on. Aside from several non-motor symptoms + mild hand tremors, the issue is dizziness which started as mild lightheadedness about 4-5 years ago, gradually developed into dizziness which has been getting worse and as quality of life disrupter it's at 6 sometimes 7 out of 10. Researching for / exploring symptom management approaches focused on dizziness ----- among a number of interesting promising also impressive from results demonstrated by PD patients, the 2 I'm currently focusing on are photobiomodualtiom ( PBM ) specifically SYMBYX and Vagus Nerve Stimulation (VNS) specifically Vagustim ----- have ordered and awaiting delivery of the Vagustim device which is based on stimulation via both ears of the vagus nerve / dysfunction of the autonomic nervous system. Desperate to find relief ( to be realistic, not cure) to help husband. Re. the dizziness -- orthostatic hypotension (OH) and any ear problem have been ruled out as causes.

[park_bear]

Okay, so he has been thoroughly looked at by more than one doctor, who have ruled out orthostatic hypotension (OH), any other blood pressure problem, and any ear problem, meaning any vestibular problem.

What is left is Parkinson's central vertigo. I personally suffered from this. Fortunately I did recover with the passage of time. I found that meclizine helped a little bit and that Scopolamine patches were highly effective.

I took a look at the literature. This paper was of interest but unfortunately the title promised more than it actually delivered: The Causes of Dizziness in Parkinson’s Disease researchgate.net/publicatio...

They did not actually find causes - they found associations, namely with feelings of fullness in the ear, tinnitus, and intervertebral disc problems in the neck. 80% of the patients were taking dopamine agonists, which seems higher than the typical cross-section of Parkinson's patients, Is your husband taking a dopamine agonist, and if so did the onset of dizziness bear any relation to commencing dopamine agonist treatment?

[PalmSprings]

Hi, I suffered with Orthostatic Hypotension for years and it was debilitating. I finally through a Zoom call and a suggestion from another sufferer, asked my doctor to prescribe me Fludrocortisone. I have had unbelievably amazing relief for a half a 50mg tablet a day. If you look up this medication it says it is the first line of defence from OH but not one doctor ever mentioned this when I told them I was lightheaded, fainting and dizzy a lot.

Good luck