Experiences with

Alectinib

Participants with stage 1B (IB) to 3A (IIIA), ALK-positive NSCLC received 600 mg of Alecensa (alectinib) twice daily after surgery to remove the cancer.

He has taken Alectinib for few months and the results has been great so far. However he just received result from his latest Xray and the comment the doctor wrote online was that he can see "some slightly prominent lymph nodes in the abdomen".

That being said, they’ve said it’s ALK positive which means he’s now on a treatment called Alectinib. Just wondering how many of you are ALK positive and how you’re getting on? My dads currently squamous ALK positive which apparently is quite rare. Many thanks, Annie

For example, the clinical utility for the selection of patients for therapy with alectinib using an early version of the Foundation Medicine liquid biopsy assay has also been demonstrated in a prospective clinical study described in the Blood First Assay Screening Trial (BFAST) [31].

If we start on Crizotinib, does this mean that we cannot try Alectinib? I only ask because the NICE guidance seems to indicate that Alectinib can only be used for first line treatment. Thanks in advance for your help! :)

The indication this new medicine will be assessed under is: "As monotherapy is indicated for the treatment of adult patients with anaplastic lymphoma kinase (ALK) positive advanced non-small cell lung cancer (NSCLC) whose disease has progressed after: Alectinib or ceritinib as the first ALK tyrosine

We are wondering if this is going to a continual on - off cycle going forward due to the effect on her heart rate that alectinib is having? I look forward to hearing of anyone’s experiences please. Thank you.

Been on Alectinib since. By the early part of January this year, metastisis was confirmed in my liver. Drug went under review, currently on my first cycle of Lorlatinib. Requesting feedback from anyone out there currently taking this medication? Kind regards.

I've been diagnosed back in April with NSCLC (ALK Positive) currently on Alectinib. I wish to find out from other individuals with a similar condition how they are coping with this treatment. Thank you.

I’ve been on alectinib since Nov 17. Currently responding to treatment - long may it continue. I’m only 49 and have never been ill before. Just ran a 10K for charity yesterday. Hoping to go faster next time!

Medicine consortium time again. Looking for any patient and carer experience of Alectininb (Alecensa). please get in contact if you have had any experience with the drug. We don't need personal details, we just need quotes to help with the application. you can call us on 03333237200 (option 2) or you

Alectinib as 1st line treatment!!!! Crazy decision as it crosses the BBB whereas Crixotinib rarely does, has fewer adverse side effects allowing people to continue a completely normal life. This drug is for people who are ALK + and tend to be below the age of 50.

Alectinib can be accessed in the U.K. Good news https://www.gov.uk/government/publications/early-access-to-medicines-scheme-eams-scientific-opinion-alectinib-as-monotherapy-for-the-first-line-treatment-of-adult-patients-with-anaplastic-ly

Lung Cancer Canada is looking to talk to patients and caregivers (regardless of where they live) who have been on alectinib. If you would like to share your story and experience you can contact them info@lungcancercanada.ca

Lung Cancer Canada is looking to talk to patients and caregivers (regardless of where they live) who have been on alectinib. If you would like to share your story and experience you can contact them info@lungcancercanada.ca

Does anyone know if alectinib is being approved soon?

I currently am taking Alectinib along with an immunotherapy called Atezolizumab. My tumors have been stable since January of 2016. At my last PET scan in June, the only tumor that is still active is one in my liver. I go for a biopsy next week.

Hi, out of curiosity does anyone know when Alectinib will be approved in the uk? Can it be purchased privately?