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Alectinib

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17 public posts

ALK lung cancer: First sign of progression?

He has taken Alectinib for few months and the results has been great so far. However he just received result from his latest Xray and the comment the doctor wrote online was that he can see "some slightly prominent lymph nodes in the abdomen".
He has taken Alectinib for few months and the results has been great so far. However he just received result from his latest Xray and the comment the doctor wrote online was that he can see "some slightly prominent lymph nodes in the abdomen".
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Hidden
in The Roy Castle Lung Cancer Foundation
11 months ago

Anyone ALK positive?

That being said, they’ve said it’s ALK positive which means he’s now on a treatment called Alectinib. Just wondering how many of you are ALK positive and how you’re getting on? My dads currently squamous ALK positive which apparently is quite rare. Many thanks, Annie
That being said, they’ve said it’s ALK positive which means he’s now on a treatment called Alectinib. Just wondering how many of you are ALK positive and how you’re getting on? My dads currently squamous ALK positive which apparently is quite rare. Many thanks, Annie
HopefulAnnie101 profile image
HopefulAnnie101
in The Roy Castle Lung Cancer Foundation
12 months ago

Clinical and analytical validation of FoundationOne Liquid CDx . . . genomic profiling assay for cancers of solid tumor origin - 09/25/2020

For example, the clinical utility for the selection of patients for therapy with alectinib using an early version of the Foundation Medicine liquid biopsy assay has also been demonstrated in a prospective clinical study described in the Blood First Assay Screening Trial (BFAST) [31].
For example, the clinical utility for the selection of patients for therapy with alectinib using an early version of the Foundation Medicine liquid biopsy assay has also been demonstrated in a prospective clinical study described in the Blood First Assay Screening Trial (BFAST) [31].
cujoe profile image
cujoe
in Fight Prostate Cancer
3 years ago
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ALK positive - Alectinib or Crizotinib?

If we start on Crizotinib, does this mean that we cannot try Alectinib? I only ask because the NICE guidance seems to indicate that Alectinib can only be used for first line treatment. Thanks in advance for your help! :)
If we start on Crizotinib, does this mean that we cannot try Alectinib? I only ask because the NICE guidance seems to indicate that Alectinib can only be used for first line treatment. Thanks in advance for your help! :)
snoopycapricorn profile image
snoopycapricorn
in The Roy Castle Lung Cancer Foundation
4 years ago

Drug Submission time again. We are looking to speak to anyone who has experience of Loratinib (Lorviqua)

The indication this new medicine will be assessed under is: "As monotherapy is indicated for the treatment of adult patients with anaplastic lymphoma kinase (ALK) positive advanced non-small cell lung cancer (NSCLC) whose disease has progressed after: Alectinib or ceritinib as the first ALK tyrosine
The indication this new medicine will be assessed under is: "As monotherapy is indicated for the treatment of adult patients with anaplastic lymphoma kinase (ALK) positive advanced non-small cell lung cancer (NSCLC) whose disease has progressed after: Alectinib or ceritinib as the first ALK tyrosine
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NicF4
Administratorin The Roy Castle Lung Cancer Foundation
4 years ago

Alectinib and low heart rate

We are wondering if this is going to a continual on - off cycle going forward due to the effect on her heart rate that alectinib is having? I look forward to hearing of anyone’s experiences please. Thank you.
We are wondering if this is going to a continual on - off cycle going forward due to the effect on her heart rate that alectinib is having? I look forward to hearing of anyone’s experiences please. Thank you.
Fattyboy profile image
Fattyboy
in The Roy Castle Lung Cancer Foundation
4 years ago

New gen medication

Been on Alectinib since. By the early part of January this year, metastisis was confirmed in my liver. Drug went under review, currently on my first cycle of Lorlatinib. Requesting feedback from anyone out there currently taking this medication? Kind regards.
Been on Alectinib since. By the early part of January this year, metastisis was confirmed in my liver. Drug went under review, currently on my first cycle of Lorlatinib. Requesting feedback from anyone out there currently taking this medication? Kind regards.
Rockape117 profile image
Rockape117
in The Roy Castle Lung Cancer Foundation
4 years ago

Newby

I've been diagnosed back in April with NSCLC (ALK Positive) currently on Alectinib. I wish to find out from other individuals with a similar condition how they are coping with this treatment. Thank you.
I've been diagnosed back in April with NSCLC (ALK Positive) currently on Alectinib. I wish to find out from other individuals with a similar condition how they are coping with this treatment. Thank you.
Rockape117 profile image
Rockape117
in The Roy Castle Lung Cancer Foundation
5 years ago

ALK Positive on alectinib intro....

I’ve been on alectinib since Nov 17. Currently responding to treatment - long may it continue. I’m only 49 and have never been ill before. Just ran a 10K for charity yesterday. Hoping to go faster next time!
I’ve been on alectinib since Nov 17. Currently responding to treatment - long may it continue. I’m only 49 and have never been ill before. Just ran a 10K for charity yesterday. Hoping to go faster next time!
Amanda1912 profile image
Amanda1912
in The Roy Castle Lung Cancer Foundation
5 years ago

Alectinib (Alecensa)

Medicine consortium time again. Looking for any patient and carer experience of Alectininb (Alecensa). please get in contact if you have had any experience with the drug. We don't need personal details, we just need quotes to help with the application. you can call us on 03333237200 (option 2) or you
Medicine consortium time again. Looking for any patient and carer experience of Alectininb (Alecensa). please get in contact if you have had any experience with the drug. We don't need personal details, we just need quotes to help with the application. you can call us on 03333237200 (option 2) or you
NicF4 profile image
NicF4
Administratorin The Roy Castle Lung Cancer Foundation
5 years ago

Rejection of Alectinib 1st line

Alectinib as 1st line treatment!!!! Crazy decision as it crosses the BBB whereas Crixotinib rarely does, has fewer adverse side effects allowing people to continue a completely normal life. This drug is for people who are ALK + and tend to be below the age of 50.
Alectinib as 1st line treatment!!!! Crazy decision as it crosses the BBB whereas Crixotinib rarely does, has fewer adverse side effects allowing people to continue a completely normal life. This drug is for people who are ALK + and tend to be below the age of 50.
Leslie42 profile image
Leslie42
in The Roy Castle Lung Cancer Foundation
5 years ago

ALK positive new treatment approved in UK

Alectinib can be accessed in the U.K. Good news https://www.gov.uk/government/publications/early-access-to-medicines-scheme-eams-scientific-opinion-alectinib-as-monotherapy-for-the-first-line-treatment-of-adult-patients-with-anaplastic-ly
Alectinib can be accessed in the U.K. Good news https://www.gov.uk/government/publications/early-access-to-medicines-scheme-eams-scientific-opinion-alectinib-as-monotherapy-for-the-first-line-treatment-of-adult-patients-with-anaplastic-ly
Bow-19 profile image
Bow-19
in The Roy Castle Lung Cancer Foundation
6 years ago

Anyone have experience with Alectinib?

Lung Cancer Canada is looking to talk to patients and caregivers (regardless of where they live) who have been on alectinib. If you would like to share your story and experience you can contact them info@lungcancercanada.ca
Lung Cancer Canada is looking to talk to patients and caregivers (regardless of where they live) who have been on alectinib. If you would like to share your story and experience you can contact them info@lungcancercanada.ca
DanG40 profile image
DanG40
in Global Lung Cancer Coalition
7 years ago

Does anyone have experience with Alectinib?

Lung Cancer Canada is looking to talk to patients and caregivers (regardless of where they live) who have been on alectinib. If you would like to share your story and experience you can contact them info@lungcancercanada.ca
Lung Cancer Canada is looking to talk to patients and caregivers (regardless of where they live) who have been on alectinib. If you would like to share your story and experience you can contact them info@lungcancercanada.ca
DanG40 profile image
DanG40
in The Roy Castle Lung Cancer Foundation
7 years ago

Keytruda

Does anyone know if alectinib is being approved soon?
Does anyone know if alectinib is being approved soon?
Giblets9 profile image
Giblets9
in The Roy Castle Lung Cancer Foundation
7 years ago

ALK+ NSCLC

I currently am taking Alectinib along with an immunotherapy called Atezolizumab. My tumors have been stable since January of 2016. At my last PET scan in June, the only tumor that is still active is one in my liver. I go for a biopsy next week.
I currently am taking Alectinib along with an immunotherapy called Atezolizumab. My tumors have been stable since January of 2016. At my last PET scan in June, the only tumor that is still active is one in my liver. I go for a biopsy next week.
Simpy57 profile image
Simpy57
in Lung Cancer Support
7 years ago

Alectinib

Hi, out of curiosity does anyone know when Alectinib will be approved in the uk? Can it be purchased privately?
Hi, out of curiosity does anyone know when Alectinib will be approved in the uk? Can it be purchased privately?
Giblets9 profile image
Giblets9
in Lung Conditions Community Forum
7 years ago
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