Experiences with Alectinib | HealthUnlocked

14 public posts

ALK positive - Alectinib or Crizotinib?

If we start on Crizotinib, does this mean that we cannot try Alectinib? I only ask because the NICE guidance seems to indicate that Alectinib can only be used for first line treatment. Thanks in advance for your help! :)If we start on Crizotinib, does this mean that we cannot try Alectinib? I only ask because the NICE guidance seems to indicate that Alectinib can only be used for first line treatment. Thanks in advance for your help! :)

snoopycapricornin The Roy Castle Lung Cancer Foundation

Alectinib and low heart rate

We are wondering if this is going to a continual on - off cycle going forward due to the effect on her heart rate that alectinib is having? I look forward to hearing of anyone’s experiences please. Thank you.We are wondering if this is going to a continual on - off cycle going forward due to the effect on her heart rate that alectinib is having? I look forward to hearing of anyone’s experiences please. Thank you.

Fattyboyin The Roy Castle Lung Cancer Foundation

Drug Submission time again. We are looking to speak to anyone who has experience of Loratinib (Lorviqua)

The indication this new medicine will be assessed under is: "As monotherapy is indicated for the treatment of adult patients with anaplastic lymphoma kinase (ALK) positive advanced non-small cell lung cancer (NSCLC) whose disease has progressed after: Alectinib or ceritinib as the first ALK tyrosineThe indication this new medicine will be assessed under is: "As monotherapy is indicated for the treatment of adult patients with anaplastic lymphoma kinase (ALK) positive advanced non-small cell lung cancer (NSCLC) whose disease has progressed after: Alectinib or ceritinib as the first ALK tyrosine

NicF4Administratorin The Roy Castle Lung Cancer Foundation

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New gen medication

Been on Alectinib since. By the early part of January this year, metastisis was confirmed in my liver. Drug went under review, currently on my first cycle of Lorlatinib. Requesting feedback from anyone out there currently taking this medication? Kind regards.Been on Alectinib since. By the early part of January this year, metastisis was confirmed in my liver. Drug went under review, currently on my first cycle of Lorlatinib. Requesting feedback from anyone out there currently taking this medication? Kind regards.

Rockape117in The Roy Castle Lung Cancer Foundation

Newby

I've been diagnosed back in April with NSCLC (ALK Positive) currently on Alectinib. I wish to find out from other individuals with a similar condition how they are coping with this treatment. Thank you.I've been diagnosed back in April with NSCLC (ALK Positive) currently on Alectinib. I wish to find out from other individuals with a similar condition how they are coping with this treatment. Thank you.

Rockape117in The Roy Castle Lung Cancer Foundation

ALK Positive on alectinib intro....

I’ve been on alectinib since Nov 17. Currently responding to treatment - long may it continue. I’m only 49 and have never been ill before. Just ran a 10K for charity yesterday. Hoping to go faster next time!I’ve been on alectinib since Nov 17. Currently responding to treatment - long may it continue. I’m only 49 and have never been ill before. Just ran a 10K for charity yesterday. Hoping to go faster next time!

Amanda1912in The Roy Castle Lung Cancer Foundation

Alectinib (Alecensa)

Medicine consortium time again. Looking for any patient and carer experience of Alectininb (Alecensa). please get in contact if you have had any experience with the drug. We don't need personal details, we just need quotes to help with the application. you can call us on 03333237200 (option 2) or youMedicine consortium time again. Looking for any patient and carer experience of Alectininb (Alecensa). please get in contact if you have had any experience with the drug. We don't need personal details, we just need quotes to help with the application. you can call us on 03333237200 (option 2) or you

NicF4Administratorin The Roy Castle Lung Cancer Foundation

Rejection of Alectinib 1st line

Alectinib as 1st line treatment!!!! Crazy decision as it crosses the BBB whereas Crixotinib rarely does, has fewer adverse side effects allowing people to continue a completely normal life. This drug is for people who are ALK + and tend to be below the age of 50.Alectinib as 1st line treatment!!!! Crazy decision as it crosses the BBB whereas Crixotinib rarely does, has fewer adverse side effects allowing people to continue a completely normal life. This drug is for people who are ALK + and tend to be below the age of 50.

Leslie42in The Roy Castle Lung Cancer Foundation

ALK positive new treatment approved in UK

Alectinib can be accessed in the U.K. Good news https://www.gov.uk/government/publications/early-access-to-medicines-scheme-eams-scientific-opinion-alectinib-as-monotherapy-for-the-first-line-treatment-of-adult-patients-with-anaplastic-lyAlectinib can be accessed in the U.K. Good news https://www.gov.uk/government/publications/early-access-to-medicines-scheme-eams-scientific-opinion-alectinib-as-monotherapy-for-the-first-line-treatment-of-adult-patients-with-anaplastic-ly

Bow-19in The Roy Castle Lung Cancer Foundation

Anyone have experience with Alectinib?

Lung Cancer Canada is looking to talk to patients and caregivers (regardless of where they live) who have been on alectinib. If you would like to share your story and experience you can contact them info@lungcancercanada.caLung Cancer Canada is looking to talk to patients and caregivers (regardless of where they live) who have been on alectinib. If you would like to share your story and experience you can contact them info@lungcancercanada.ca

DanG40in Global Lung Cancer Coalition

Does anyone have experience with Alectinib?

Lung Cancer Canada is looking to talk to patients and caregivers (regardless of where they live) who have been on alectinib. If you would like to share your story and experience you can contact them info@lungcancercanada.caLung Cancer Canada is looking to talk to patients and caregivers (regardless of where they live) who have been on alectinib. If you would like to share your story and experience you can contact them info@lungcancercanada.ca

DanG40in The Roy Castle Lung Cancer Foundation

Keytruda

Does anyone know if alectinib is being approved soon?Does anyone know if alectinib is being approved soon?

Giblets9in The Roy Castle Lung Cancer Foundation

ALK+ NSCLC

I currently am taking Alectinib along with an immunotherapy called Atezolizumab. My tumors have been stable since January of 2016. At my last PET scan in June, the only tumor that is still active is one in my liver. I go for a biopsy next week.I currently am taking Alectinib along with an immunotherapy called Atezolizumab. My tumors have been stable since January of 2016. At my last PET scan in June, the only tumor that is still active is one in my liver. I go for a biopsy next week.

Simpy57in Lung Cancer Support

Alectinib

Hi, out of curiosity does anyone know when Alectinib will be approved in the uk? Can it be purchased privately?Hi, out of curiosity does anyone know when Alectinib will be approved in the uk? Can it be purchased privately?

Giblets9in British Lung Foundation