Greetings all, I was diagnosed with NSCLC(ALK FPos)S4, back in May18. Been on Alectinib since. By the early part of January this year, metastisis was confirmed in my liver. Drug went under review, currently on my first cycle of Lorlatinib.
Requesting feedback from anyone out there currently taking this medication?
Kind regards.
Please try the Worldwide or U.K. ALK Positive sites. Lots of posts there about lorlatinib. My previous posts will show you how to join. Wishing you all the best on your new drug xx
On it! Thanks Bow-19!😇
Hope all's well?
That’s brill. Hope that you have joined both sites. As U.K. one good for what’s happening here and Worldwide one for research. Am ok thanks, but started with Brigatinib a few weeks ago and having a few teething problems x
Hope you find support and encouragement from someone who has been on this and can share their experience.
If you wish to discuss anything you can call our free nurse led helpline number on 0800 358 7200.
Wishing you all the very best
The Roy Castle Support Team
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