I've been diagnosed back in April with NSCLC (ALK Positive) currently on Alectinib. I wish to find out from other individuals with a similar condition how they are coping with this treatment. Thank you.
Newby: I've been diagnosed back in... - The Roy Castle Lu...
Newby
Written by
Rockape117
To view profiles and participate in discussions please or .
Read more about...
6 Replies
•
Hi Rockape117, I am ALK Positive too and there’s a great ALK support group on Facebook one for the U.K. and a Worldwide one too. It offers amazing support for what’s happening in the U.K. and also what’s happening worldwide. I was diagnosed 5 years ago and am currently on crizotinib. If you look at my previous posts they are mostly about ALK. Here’s the link alkpositive.org.uk
This is from the Worldwide Group too. lookaside.fbsbx.com/file/AL...
RoyCastleHelplinePartnerAsk the NurseRoy Castle
Hello Rockape117,
and welcome to out forum, Bow-19 has given you some excellent links to the ALK support group on Facebook and other very useful sources of information.
Kind regards
Roy Castle Helpline
Not what you're looking for?
You may also like...
Pemetrexed seems not to work
Ceritinib was amazingly successful but pneumonitis meant we had to stop for now.
Carb and Pem with...
Husband about to start crizotinib.Worried about side effects,infections etc
Hello all. My husband is just about to start oral crizotinib (just found out he's ALK positive). We...
the man ( woman) with a treatment plan says :
Hi everyone so I got my treatment plan at last …. Combined chemo ( carboplatin and paclitaxel...
Immunotherapy
I'm just starting out on immunotherapy and would like to share experiences with others on the same...
Nineteen years and still here!
In 2000, I was diagnosed with inoperable NSCLC. A devastating thing for anyone. I was treated at...