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The Roy Castle Lung Cancer Foundation

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Rockape117 profile image
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I've been diagnosed back in April with NSCLC (ALK Positive) currently on Alectinib. I wish to find out from other individuals with a similar condition how they are coping with this treatment. Thank you.

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Rockape117
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Bow-19 profile image
Bow-19

Hi Rockape117, I am ALK Positive too and there’s a great ALK support group on Facebook one for the U.K. and a Worldwide one too. It offers amazing support for what’s happening in the U.K. and also what’s happening worldwide. I was diagnosed 5 years ago and am currently on crizotinib. If you look at my previous posts they are mostly about ALK. Here’s the link alkpositive.org.uk

Rockape117 profile image
Rockape117 in reply to Bow-19

Apologies for the late reply Bow-19.

Hope all’s well. Thank you for posting both links!

Bow-19 profile image
Bow-19 in reply to Rockape117

Pleasure. Hope you find them useful. I don’t think you will be disappointed x

Bow-19 profile image
Bow-19

This is from the Worldwide Group too. lookaside.fbsbx.com/file/AL...

RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

Hello Rockape117,

and welcome to out forum, Bow-19 has given you some excellent links to the ALK support group on Facebook and other very useful sources of information.

Kind regards

Roy Castle Helpline

Rockape117 profile image
Rockape117 in reply to RoyCastleHelpline

Big gratitude to be on board this forum with ample amount of information from experts, carers and people who are facing their own battle! More power to you all!😇

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