Search
Search
About
Log in
Join
Experiences with
Afinitor
Posts
Communities
136 public posts
Filter results
Scan results
If the radiotherapy gets rid of it she will keep me on Ibrance and letrazole as it’s working for the bone mets..otherwise she’ll put me on
Afinitor
and exemastane I really don’t want to change and wondered if any of you are on this combo..if so how have you coped with side effects Barb xx
If the radiotherapy gets rid of it she will keep me on Ibrance and letrazole as it’s working for the bone mets..otherwise she’ll put me on
Afinitor
and exemastane I really don’t want to change and wondered if any of you are on this combo..if so how have you coped with side effects Barb xx
Barbteeth
in
SHARE Metastatic Breast Cancer
5 years ago
ASCO 2019 Abstract Recap
From: https://meetinglibrary.asco.org/record/175824/abstract Potential Impact of Being on a CDK4/6 Inhibitor before Moving on to
Afinitor
: A small study examined the medical records of 33 patients who underwent therapy with
Afinitor
and Aromasin (A/A). 17 of the patients had prior CDK4/6 inhibitor
From: https://meetinglibrary.asco.org/record/175824/abstract Potential Impact of Being on a CDK4/6 Inhibitor before Moving on to
Afinitor
: A small study examined the medical records of 33 patients who underwent therapy with
Afinitor
and Aromasin (A/A). 17 of the patients had prior CDK4/6 inhibitor
Bestbird
in
SHARE Metastatic Breast Cancer
5 years ago
Life after ibrance
Has
Afinitor
worked for anyone? And what are the side effects?
Has
Afinitor
worked for anyone? And what are the side effects?
Burtie1
in
SHARE Metastatic Breast Cancer
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
What treatments have worked to stop liver mets?
Diagnosed in 2016 Mets to bone Put on ibrance & letrosole and did well until fall of of 2018 Had abdominal issues -cancer had gone to small intestine - had surgery and put on kisqali and faslodex - on for 3 months and last scan shows progression to liver Changing meds again to
afinitor
and aromasin Has
Diagnosed in 2016 Mets to bone Put on ibrance & letrosole and did well until fall of of 2018 Had abdominal issues -cancer had gone to small intestine - had surgery and put on kisqali and faslodex - on for 3 months and last scan shows progression to liver Changing meds again to
afinitor
and aromasin Has
marleneb56
in
SHARE Metastatic Breast Cancer
5 years ago
Next ... Xeloda success stories?
I’ve been lucky on both Ibrance and
Afinitor
- side effects were manageable. But the darn pharmacist freaked me out a bit with the hand and foot issues - no flip flops? I live in California and we live in flip flops!! No steam, sauna or hot showers?
I’ve been lucky on both Ibrance and
Afinitor
- side effects were manageable. But the darn pharmacist freaked me out a bit with the hand and foot issues - no flip flops? I live in California and we live in flip flops!! No steam, sauna or hot showers?
Magsue
in
SHARE Metastatic Breast Cancer
5 years ago
verzenio or aromatase inhibitors
If we don't get the financing, we will try for ibrance or I think the next line is
afinitor
. I have never had chemo or radiation. That will come at the end if I choose that course.
If we don't get the financing, we will try for ibrance or I think the next line is
afinitor
. I have never had chemo or radiation. That will come at the end if I choose that course.
Wolverine19
in
SHARE Metastatic Breast Cancer
5 years ago
Would like to hear from anybody who is currently taking Aromasin and Afinitor
Now taking Exenamestine and
Afinitor
. Will have CT of chest, abdomen and pelvis to check for response to meds. Has anyone had similar response to the meds?
Now taking Exenamestine and
Afinitor
. Will have CT of chest, abdomen and pelvis to check for response to meds. Has anyone had similar response to the meds?
Imtired
in
SHARE Breast Cancer Support
5 years ago
Afinitor & Flaslodex side effects
Hi all - i was on Ibrance / letrozal and had a good experience (no real side effects) for 6 months - had a slight increase in a couple of liver spots (very small) and plural effusion in lung... so I was moved on to
Afinitor
/ Flas... after 1 month my liver tumors are 1/2 in size and 2 gone.
Hi all - i was on Ibrance / letrozal and had a good experience (no real side effects) for 6 months - had a slight increase in a couple of liver spots (very small) and plural effusion in lung... so I was moved on to
Afinitor
/ Flas... after 1 month my liver tumors are 1/2 in size and 2 gone.
Magsue
in
SHARE Metastatic Breast Cancer
5 years ago
New treatment I am Stage4breast cancer ER(+)PR(+) HER(+)
bone scan and PET-CT on August 2018 were negative but I have a lot of pain on my pelvis and now my oncologist is suggesting that I could start chemotherapy I told him that I could try another Chemo pill till my next scan, I know that Ibrance, Kisqali and Versenio are from the same Family what about
Afinitor
bone scan and PET-CT on August 2018 were negative but I have a lot of pain on my pelvis and now my oncologist is suggesting that I could start chemotherapy I told him that I could try another Chemo pill till my next scan, I know that Ibrance, Kisqali and Versenio are from the same Family what about
Afinitor
PLASEM
in
SHARE Metastatic Breast Cancer
5 years ago
Scan results
But...
Afinitor
and Exastamene did not work. And the one sentence I recall from the fellow was “you’re going through these options quicker than we expected”. I didn’t even get 3 months from
afinitor
. But the good news is that the spread in my bones seems contained. I guess xgeva is helping it.
But...
Afinitor
and Exastamene did not work. And the one sentence I recall from the fellow was “you’re going through these options quicker than we expected”. I didn’t even get 3 months from
afinitor
. But the good news is that the spread in my bones seems contained. I guess xgeva is helping it.
Snowcone16
in
SHARE Metastatic Breast Cancer
5 years ago
Under Reporting on Side Effects
A friend of mine died when neither her oncologist or pulmonologist realized a connection between the "acute pulmonary collapse' that put her in ICU and the
Afinitor
that had recently become FDA approved and that she had been on for a few weeks.
A friend of mine died when neither her oncologist or pulmonologist realized a connection between the "acute pulmonary collapse' that put her in ICU and the
Afinitor
that had recently become FDA approved and that she had been on for a few weeks.
PJBinMI
in
SHARE Metastatic Breast Cancer
5 years ago
Paclitaxel, Taxol, Onxal IV chemotherapy treatment anyone?
Afinitor
not good for me, lots of side effects. My oncologist wants me to have IV chemo therapy. Every three weeks 4-5 hours need a port. 6 treatments. Has anyone had this did you get sick, loose hair. I am so nervous. I said not at this time, I would like to try Verzenio first.
Afinitor
not good for me, lots of side effects. My oncologist wants me to have IV chemo therapy. Every three weeks 4-5 hours need a port. 6 treatments. Has anyone had this did you get sick, loose hair. I am so nervous. I said not at this time, I would like to try Verzenio first.
Jerseygirl45
in
SHARE Metastatic Breast Cancer
5 years ago
Afinitor and faslodex
Has anyone been on
Afinitor
and Fulvestrant/Faslodex I’m going to be starting in a couple weeks and I’m just wondering what the side effects are and how long it had been successful. Prior to this I have been on Ibrance and letrozole for almost 2 years and it just stopped working.
Has anyone been on
Afinitor
and Fulvestrant/Faslodex I’m going to be starting in a couple weeks and I’m just wondering what the side effects are and how long it had been successful. Prior to this I have been on Ibrance and letrozole for almost 2 years and it just stopped working.
KarenHale
in
SHARE Metastatic Breast Cancer
6 years ago
Ibrance + Letrozole just stopped working
My oncologist suggests me a new option of treatment :
Afinitor
+ Faslodex . Anyone that can share their experience with me ? Side effects caused by these drugs ? Thank you my sister
My oncologist suggests me a new option of treatment :
Afinitor
+ Faslodex . Anyone that can share their experience with me ? Side effects caused by these drugs ? Thank you my sister
Gal1975
in
SHARE Metastatic Breast Cancer
6 years ago
CBD's a good allie for Afinitor and exemastane ?
I am on my 2nd week of
Afinitor
and Examastane and i havent had any side effects yet but the mouth sores worry me, So are there any success stories out there with benefits in using CBD's either chewables or drops and what milligram recomendations ?
I am on my 2nd week of
Afinitor
and Examastane and i havent had any side effects yet but the mouth sores worry me, So are there any success stories out there with benefits in using CBD's either chewables or drops and what milligram recomendations ?
JP1857
in
SHARE Metastatic Breast Cancer
6 years ago
I'm new here Diagnosed 11 Months Ago
What should I expect with
Afinitor
and Exemastane ?
What should I expect with
Afinitor
and Exemastane ?
JP1857
in
SHARE Metastatic Breast Cancer
6 years ago
NCI update and pain in fingers
Separately, been on
afinitor
and exastamene a month. In the past 2 weeks, I wake in the morning with my left hand fingers cramped. It’s painful and feels swollen but there is no swelling. Google tells me it’s arthritis but I’m convinced it’s linked to my meds.
Separately, been on
afinitor
and exastamene a month. In the past 2 weeks, I wake in the morning with my left hand fingers cramped. It’s painful and feels swollen but there is no swelling. Google tells me it’s arthritis but I’m convinced it’s linked to my meds.
Snowcone16
in
SHARE Metastatic Breast Cancer
6 years ago
Sometimes cold sores drive me up the wall
I have been on
Afinitor
and Exemestane for a couple months and herbal supplements for alternative treatment. I have developed cold sores in my mouth. I have used all the usual over the counter things to help with the discomfort.
I have been on
Afinitor
and Exemestane for a couple months and herbal supplements for alternative treatment. I have developed cold sores in my mouth. I have used all the usual over the counter things to help with the discomfort.
SusieIM
in
SHARE Metastatic Breast Cancer
6 years ago
Trial; second opinion
After the scan showing Ibrance didn’t work after 4 months, my onco is putting me on exastamene and
afinitor
. At the appointment, they said they didn’t see a trial that I was eligible. I had mixed feelings on that like “trial? Why trial?” To “how can there not be a trial?
After the scan showing Ibrance didn’t work after 4 months, my onco is putting me on exastamene and
afinitor
. At the appointment, they said they didn’t see a trial that I was eligible. I had mixed feelings on that like “trial? Why trial?” To “how can there not be a trial?
Snowcone16
in
SHARE Metastatic Breast Cancer
6 years ago
Herbal Supplements helpful ?
I am currently switching from Ibrance/letrozole to
Afinitor
/Exemastane. But i was introduced to some herbal supplements. I want to entertain trying it all together but i am not sure if my oncologist will be on board?
I am currently switching from Ibrance/letrozole to
Afinitor
/Exemastane. But i was introduced to some herbal supplements. I want to entertain trying it all together but i am not sure if my oncologist will be on board?
JP1857
in
SHARE Metastatic Breast Cancer
6 years ago
1
...
5
6
7
Next page
Filter results
Clear filters
Posted in
All communities
SHARE Metastatic Breast Cancer
131 results
My Ovacome
3 results
SHARE Breast Cancer Support
2 results
Sort by
Most Relevant
Newest