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Experiences with
Androgen deprivation therapy (ADT)
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Just had hysterectomy due to prolapsed bladder and think it's come back due to severe constipation.
Completely fed up. Does this mean I have to have surgery again? I have also ran out of ndt again for about the fifth time due to it being so expensive and my tsh was really high about 6.5 when I had blood test for my pre op. It was also high the previous time as I had ran out then as well. I hate
Completely fed up. Does this mean I have to have surgery again? I have also ran out of ndt again for about the fifth time due to it being so expensive and my tsh was really high about 6.5 when I had blood test for my pre op. It was also high the previous time as I had ran out then as well. I hate
bobbyb
in
Thyroid UK
4 months ago
Bit lost …wondering where I’m heading …
Hi forum friends I went to my gp Friday to see what help I might get re my thyroid now and also if I might see a haematologist re high serum iron but low ferritin (28 …5-204) thus can’t take three arrows. I didnt get many answers as he concentrated on a current kidney/uti issue I have so he’s booked
Hi forum friends I went to my gp Friday to see what help I might get re my thyroid now and also if I might see a haematologist re high serum iron but low ferritin (28 …5-204) thus can’t take three arrows. I didnt get many answers as he concentrated on a current kidney/uti issue I have so he’s booked
Starseed56
in
Thyroid UK
4 months ago
h pylori treatment
hello I’d like to hear from anyone who has successfully eradicated helicobacter pylori with either a natural or antibiotic protocol. I’m on low dose NDT with Dr Frey and have thyroid nodules (biopsy tested benign) Tested positive for h pylori via a breath test in October and was offered quadruple
hello I’d like to hear from anyone who has successfully eradicated helicobacter pylori with either a natural or antibiotic protocol. I’m on low dose NDT with Dr Frey and have thyroid nodules (biopsy tested benign) Tested positive for h pylori via a breath test in October and was offered quadruple
Crankyoldbag
in
Thyroid UK
4 months ago
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Help with my husband's results he is really struggling
I am so grateful to everyone on this forum as I have now been officially diagnosed with Hashimotos after going privately and opted for Armour NDT so next bloods will be first on meds and supplements. I wonder if I could get some wisdom on my husband's results. He has been ill for years now which was
I am so grateful to everyone on this forum as I have now been officially diagnosed with Hashimotos after going privately and opted for Armour NDT so next bloods will be first on meds and supplements. I wonder if I could get some wisdom on my husband's results. He has been ill for years now which was
Susanmcg
in
Thyroid UK
4 months ago
Does anyone already on t3 or NDT have experience of Dr Mark Spring?
please PM me if you have, thank you.
please PM me if you have, thank you.
sulamaye
in
Thyroid UK
4 months ago
Results of TSH Modification Experiment
I inquired last week about what effect I could produce on TSH within three days. I appreciate the expertise and wisdom I received. I had just seen an endocrinologist who wanted to cut back my NDT because my TSH was 0.027. You advised me to stick to my rights as a human being. The endocrinologist seemed
I inquired last week about what effect I could produce on TSH within three days. I appreciate the expertise and wisdom I received. I had just seen an endocrinologist who wanted to cut back my NDT because my TSH was 0.027. You advised me to stick to my rights as a human being. The endocrinologist seemed
RockyPath
in
Thyroid UK
4 months ago
anyone got experience of private Drs or this reaction to dropping meds?
TO UPDATE, I HAVE BEEN IN TOUCH WITH AN ENDO FROM THE LIST AND AS MY ENDO ALREADY PRESCRIBES T3 ONLY THERAPY FOR ME (long story) HE MADE IT CLEAR THAT I WAS ALREADY GETTING THE BEST I PROBABLY COULD OUT OF AN NHS GP. SO NO NEED TO PAY PRIVATELY. Depressing to know no more nuanced help from anyone, but
TO UPDATE, I HAVE BEEN IN TOUCH WITH AN ENDO FROM THE LIST AND AS MY ENDO ALREADY PRESCRIBES T3 ONLY THERAPY FOR ME (long story) HE MADE IT CLEAR THAT I WAS ALREADY GETTING THE BEST I PROBABLY COULD OUT OF AN NHS GP. SO NO NEED TO PAY PRIVATELY. Depressing to know no more nuanced help from anyone, but
sulamaye
in
Thyroid UK
4 months ago
Any Miracles out there ?
I would like to know if anyone out here who stopped
ADT
, Zytiga , Prednisone after 2 yrs and didnt need any more treatment except blood draws ? Remission . ? To me thats a Miracle . Please speak up and tell us of all your remissions especially the one that shares my path .
I would like to know if anyone out here who stopped
ADT
, Zytiga , Prednisone after 2 yrs and didnt need any more treatment except blood draws ? Remission . ? To me thats a Miracle . Please speak up and tell us of all your remissions especially the one that shares my path .
reconjj
in
Advanced Prostate Cancer
1 year ago
12 months hormone therapy done.
PSA has been <0.01 from when i first started
ADT
.
PSA has been <0.01 from when i first started
ADT
.
Runner1957
in
Prostate Cancer Network
2 years ago
Ndt dosing
Hi. I take 1 3/4 grains of thyroid s , 1 grain around 7am. 3/4 grain around 2Pm. To get an accurate reading what time should I take my afternoon dose please?
Hi. I take 1 3/4 grains of thyroid s , 1 grain around 7am. 3/4 grain around 2Pm. To get an accurate reading what time should I take my afternoon dose please?
Catlover3
in
Thyroid UK
4 months ago
Compression fracture on T 10
My recent Whole body scan and CT scan for PCa ( diagnosed in 2016 with T3N0M1, after which I had radiation,chemotherapy and have been on hormone therapy since), showed a compression fracture on my T10 where I had SBRT radiation 2 years ago. My scans earlier in the year also showed a small fracture
My recent Whole body scan and CT scan for PCa ( diagnosed in 2016 with T3N0M1, after which I had radiation,chemotherapy and have been on hormone therapy since), showed a compression fracture on my T10 where I had SBRT radiation 2 years ago. My scans earlier in the year also showed a small fracture
Brightman
in
Advanced Prostate Cancer
10 months ago
Some hopeful test news:🙏🏻
My son had a PSA of 20 just 3 mo after RRP last October 24th. Prior to that we had no idea from his test results that the PC was outside of the prostate. It had gone to his pelvic lymph nodes plus he’s tertiary five. He’s been on generic Zytiga and prednisone and Lupron and finished six weeks of IMRT
My son had a PSA of 20 just 3 mo after RRP last October 24th. Prior to that we had no idea from his test results that the PC was outside of the prostate. It had gone to his pelvic lymph nodes plus he’s tertiary five. He’s been on generic Zytiga and prednisone and Lupron and finished six weeks of IMRT
Cactus297
in
Advanced Prostate Cancer
10 months ago
Needing some input after gastroscope
Hi all: So I had a gastroscope yesterday and today I’m riddled with extreme fatigue. I’ve had a gastroscope before and never experienced such fatigue. The other times there was an anesthesiologist that gave me drugs to put me to sleep. This time an egotistic doctor informed me the procedure would be
Hi all: So I had a gastroscope yesterday and today I’m riddled with extreme fatigue. I’ve had a gastroscope before and never experienced such fatigue. The other times there was an anesthesiologist that gave me drugs to put me to sleep. This time an egotistic doctor informed me the procedure would be
Rosebud1955
in
Thyroid UK
4 months ago
TSH rising inexplicably
Hi, I haven’t posted for years because things had been as stable as they could be for someone with ME, but in the last year my TSH has gone from suppressed on T3 only therapy to high ‘normal’ to just over ‘normal’ to my latest blood of TSH 7.86. Sorry this is a long post I am a complicated case.
Hi, I haven’t posted for years because things had been as stable as they could be for someone with ME, but in the last year my TSH has gone from suppressed on T3 only therapy to high ‘normal’ to just over ‘normal’ to my latest blood of TSH 7.86. Sorry this is a long post I am a complicated case.
sulamaye
in
Thyroid UK
4 months ago
Latest results and problems raising dose
TL;DR - should I continue to try increasing my NDT dose slightly (from 1.75 to 2 grains per day, split dosing) based on the test results below, though I am getting some symptoms after increase (mild anxiety, hot flushes and sweats, and palpitations)? Further info/details below the results Inflammation
TL;DR - should I continue to try increasing my NDT dose slightly (from 1.75 to 2 grains per day, split dosing) based on the test results below, though I am getting some symptoms after increase (mild anxiety, hot flushes and sweats, and palpitations)? Further info/details below the results Inflammation
FoggyThinker
in
Thyroid UK
4 months ago
PSA and CT Questions -- 15 Months Following Diagnosis
He is one year into
ADT
. Also, a CT abdomen/pelvis scan conducted yesterday revealed "sclerotic bony lesions". There was no mention of sclerotic bony lesions in his 12/2021 CT. The bone scan and CT abdomen/pelvis summaries seem contradictory to me. See below for exact wording from report.
He is one year into
ADT
. Also, a CT abdomen/pelvis scan conducted yesterday revealed "sclerotic bony lesions". There was no mention of sclerotic bony lesions in his 12/2021 CT. The bone scan and CT abdomen/pelvis summaries seem contradictory to me. See below for exact wording from report.
Merlot1
in
Advanced Prostate Cancer
1 year ago
First post-ADT vacation PSA test
And almost as important is that the side effects are quite minimal compared to my previous rounds of
ADT
. My energy is good. With the help of Sildenafil I can still achieve an erection. I just have some minimal hot flashes.
And almost as important is that the side effects are quite minimal compared to my previous rounds of
ADT
. My energy is good. With the help of Sildenafil I can still achieve an erection. I just have some minimal hot flashes.
fireandice123
in
Advanced Prostate Cancer
1 year ago
Ferritin
I have just had an Advanced Thyroid Test from Medichecks. My Free T4 and Free T3 may look good but I have been getting a return of my symptoms so have upped my NDT from 2.5 grains to 3. It is my ferritin which I am not happy about. Is it too low? I eat very little red meat which is probably why it is
I have just had an Advanced Thyroid Test from Medichecks. My Free T4 and Free T3 may look good but I have been getting a return of my symptoms so have upped my NDT from 2.5 grains to 3. It is my ferritin which I am not happy about. Is it too low? I eat very little red meat which is probably why it is
dottyb09
in
Thyroid UK
4 months ago
Future after Erleada/Lupron
I met with a new MO today for a second opinion. I've been taking Erleada/Lupron for almost four years with few side effects (for which I'm grateful). I'm aware that my results have been very good and I wasn't looking for advice regarding a change in my care....I just wanted to have a second doctor
I met with a new MO today for a second opinion. I've been taking Erleada/Lupron for almost four years with few side effects (for which I'm grateful). I'm aware that my results have been very good and I wasn't looking for advice regarding a change in my care....I just wanted to have a second doctor
NorYug
in
Advanced Prostate Cancer
10 months ago
changing from Armour to levo
Hi all I take armour thyroid and have done for over 10 yrs now. I was originally prescribed this by a private doctor but further down the rd I found a way to buy Armour myself so I self medicate. I test my levels regularly (probably every 4-6 months) and I’ve felt in a good place for years. That’s
Hi all I take armour thyroid and have done for over 10 yrs now. I was originally prescribed this by a private doctor but further down the rd I found a way to buy Armour myself so I self medicate. I test my levels regularly (probably every 4-6 months) and I’ve felt in a good place for years. That’s
Tweetypie28
in
Thyroid UK
4 months ago
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