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Acalabrutinib
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4th booster shot ?
My husband ( with CLL and on
acalabrutinib
) had his first 2 Moderna shots in Jan and Feb 2021 with no anti spike protein antibody detected. At the end of Sept 2021 he got a Moderna vaccine again as his 3rd dose. On Nov 3rd ,6 weeks later, his antibody level was measured to be 1450 U/ml.
My husband ( with CLL and on
acalabrutinib
) had his first 2 Moderna shots in Jan and Feb 2021 with no anti spike protein antibody detected. At the end of Sept 2021 he got a Moderna vaccine again as his 3rd dose. On Nov 3rd ,6 weeks later, his antibody level was measured to be 1450 U/ml.
ikahan
in
CLL America Support
2 years ago
UPDATE-visit to UCHL
leaning toward O/b as to keep
acalabrutinib
for when I relapsed which he thought could be within 2/3 years.
leaning toward O/b as to keep
acalabrutinib
for when I relapsed which he thought could be within 2/3 years.
9876
in
CLL Support
3 years ago
Just joined
Hi, I am about to start treatment with
acalabrutinib
for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer.
Hi, I am about to start treatment with
acalabrutinib
for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer.
Mtk1
in
CLL Support
3 years ago
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Pfizer vaccine response tests four months apart
I have CLL and I am taking
Acalabrutinib
. One month after my second Pfizer vaccine shot, on April 20th I had a blood test to see if I produced antibodies. The result was .48, negative. Last Friday, August 20th, I had another blood test prior to receiving the booster shot.
I have CLL and I am taking
Acalabrutinib
. One month after my second Pfizer vaccine shot, on April 20th I had a blood test to see if I produced antibodies. The result was .48, negative. Last Friday, August 20th, I had another blood test prior to receiving the booster shot.
zsuzsiB
in
CLL Support
3 years ago
Skin barnacles ??
CLL and Bladder cancer , past used Ibrutinib,
Acalabrutinib
and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ??
CLL and Bladder cancer , past used Ibrutinib,
Acalabrutinib
and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ??
fish61
in
CLL Support
3 years ago
Have any of you changed from another BTK inhibitor to Zanubrutinib?
Due to daily headaches from
acalabrutinib
, I have just switched to Zanubrutinib. Has anybody else made this change? Did it go well? Anything unusual I should be aware of? The side effects look the same except for no mention of headaches with Zanubrutinib.
Due to daily headaches from
acalabrutinib
, I have just switched to Zanubrutinib. Has anybody else made this change? Did it go well? Anything unusual I should be aware of? The side effects look the same except for no mention of headaches with Zanubrutinib.
Mogal
in
CLL Support
3 years ago
Alcohol and Acalabrutinib
Can anyone advise me if I must abstain completely whilst taking
Acalabrutinib
. Really it matters not, my health is more important than any amount of alcohol. I shall ask my health care team once my tablets arrive.
Can anyone advise me if I must abstain completely whilst taking
Acalabrutinib
. Really it matters not, my health is more important than any amount of alcohol. I shall ask my health care team once my tablets arrive.
kitchengardener2
in
CLL Support
3 years ago
Acalabrutinib anniversary
Hi everyone never posted before, never really needed to, as practically all my questions have mostly been answered in the feeds. A big thank you to all for your contributions. I was lucky enough to be selected for an Alcalabrutinib trial last August, only one of two in our NHS area. No real side affects
Hi everyone never posted before, never really needed to, as practically all my questions have mostly been answered in the feeds. A big thank you to all for your contributions. I was lucky enough to be selected for an Alcalabrutinib trial last August, only one of two in our NHS area. No real side affects
Krodney78
in
CLL Support
3 years ago
Frontline treatment of Chronic Lymphocytic Leukemia (CLL/SLL) in 2021
Given high response rates with ibrutinib,
acalabrutinib
, and venetoclax, there is no one clearly superior strategy or one-size-fits-all approach.
Given high response rates with ibrutinib,
acalabrutinib
, and venetoclax, there is no one clearly superior strategy or one-size-fits-all approach.
CLLerinOz
Volunteer
in
CLL Support
3 years ago
Acalabrutinib - effects of temporarily not taking it
So, if you do have to stop
Acalabrutinib
for any reason, be aware of the knackering effect that might kick in but take comfort that it'll go away once
Acalabrutinib
restarted. That was my experience anyway, for what it's worth.
So, if you do have to stop
Acalabrutinib
for any reason, be aware of the knackering effect that might kick in but take comfort that it'll go away once
Acalabrutinib
restarted. That was my experience anyway, for what it's worth.
flyhigher
in
CLL Support
3 years ago
Can you have the covid vaccine whilst taking Acalabrutinib
Can you have the covid vaccine whilst taking
Acalabrutinib
Can you have the covid vaccine whilst taking
Acalabrutinib
Catdoe
in
CLL Support
3 years ago
Muscle Relaxants for Pain?
To follow up on the pain from
Acalabrutinib
and Venetoclax—Have any of you been prescribed a muscle relaxant to help with the pain? We are trying to explore if there is an orthopedic issue. I realize that we need to talk with his doctor, but just wondering what others have experienced.
To follow up on the pain from
Acalabrutinib
and Venetoclax—Have any of you been prescribed a muscle relaxant to help with the pain? We are trying to explore if there is an orthopedic issue. I realize that we need to talk with his doctor, but just wondering what others have experienced.
Franklin2021
in
CLL Support
3 years ago
Reduced dosing of acalabrutinib
I recently reduced my daily dose of
acalabrutinib
from 200mg to 100mg (half the manufacturer's recommended dose) due to a full body rash I developed during the first month of treatment.
I recently reduced my daily dose of
acalabrutinib
from 200mg to 100mg (half the manufacturer's recommended dose) due to a full body rash I developed during the first month of treatment.
Savvyman
in
CLL Support
3 years ago
STELLAR Trial in the UK for Richter's
R-CHOP 2.
acalabrutinib
on its own 3. R-CHOP and
acalabrutinib
The main aims of the trial are to compare R-CHOP with RA-CHOP, see if
acalabrutinib
improves treatment and to learn more about the side effects.
R-CHOP 2.
acalabrutinib
on its own 3. R-CHOP and
acalabrutinib
The main aims of the trial are to compare R-CHOP with RA-CHOP, see if
acalabrutinib
improves treatment and to learn more about the side effects.
Jm954
Administrator
in
CLL Support
3 years ago
Ibrutinib or Acalabrutinib
I questioned as to why not
Acalabrutinib
as i understand both are available in Australia on the PBS. He appeared not to be aware of
Acalabrutinib
on the PBS. I then adked should i have a new Fish test. HE said why would you want to put yourself through this again. Last test done in 2016 at dx.
I questioned as to why not
Acalabrutinib
as i understand both are available in Australia on the PBS. He appeared not to be aware of
Acalabrutinib
on the PBS. I then adked should i have a new Fish test. HE said why would you want to put yourself through this again. Last test done in 2016 at dx.
Joffre1
in
CLL Support
3 years ago
Treatment advised (after 21 years w & w)
The consultant said if "I was his father" he would advise OB. plus Venetoclax. as he was concerned about long-term side effects of
Acalabrutinib
. I think I am willing to risk these as i don't have heart issues. As regards the issue of treatment sequencing.
The consultant said if "I was his father" he would advise OB. plus Venetoclax. as he was concerned about long-term side effects of
Acalabrutinib
. I think I am willing to risk these as i don't have heart issues. As regards the issue of treatment sequencing.
ornstin
in
CLL Support
3 years ago
Just started Acalabritunib....
Hello, everyone, My husband just started on
Acalabrutinib
and has been having sore joints and serious headaches. What can you tell me from your experience that might help him? Thank you in advance for your kindness.... Heather
Hello, everyone, My husband just started on
Acalabrutinib
and has been having sore joints and serious headaches. What can you tell me from your experience that might help him? Thank you in advance for your kindness.... Heather
hsouter
in
CLL Support
3 years ago
Acalabrutinib headaches - on and off all day?
My husband started
Acalabrutinib
in mid April - 2 pills daily - and has been having lots of headaches…at random times. In the morning (coffee helps), in the evening before bed, in the middle of the night.
My husband started
Acalabrutinib
in mid April - 2 pills daily - and has been having lots of headaches…at random times. In the morning (coffee helps), in the evening before bed, in the middle of the night.
OaktownA
in
CLL Support
3 years ago
Acalabrutinib
Thanks to everyone for your advice. My husband has started the drugs and is doing well so far.
Thanks to everyone for your advice. My husband has started the drugs and is doing well so far.
paddlerwhite
in
CLL Support
3 years ago
The Leukemia & Lymphoma Society’s National Patient Registry COVID-19 vaccination antibody results - published today (Greenberg et al)
cytotoxic chemotherapy 71 Obinutuzumab, ibrutinib 70 Obinutuzumab,
acalabrutinib
66 Rituximab 63
Acalabrutinib
55 Ibrutinib 48 Ibrutinib, IVIG 40 IVIG 25 Source: The LLS National Patient Registry.
cytotoxic chemotherapy 71 Obinutuzumab, ibrutinib 70 Obinutuzumab,
acalabrutinib
66 Rituximab 63
Acalabrutinib
55 Ibrutinib 48 Ibrutinib, IVIG 40 IVIG 25 Source: The LLS National Patient Registry.
lankisterguy
Volunteer
in
CLL Support
3 years ago
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