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Experiences with
Acalabrutinib
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Has anyone started V-0 treatment recently with positive results?
I am due to start OBIMUTUZUMAB & VENETOCLAX it next week after
Acalabrutinib
caused afib and I am on it 1/2 dose with 1 beta blocker and blood thinner that cause stress and fatigue. I would like to be reassured as at the moment I am a nervous wreck. Thank you.
I am due to start OBIMUTUZUMAB & VENETOCLAX it next week after
Acalabrutinib
caused afib and I am on it 1/2 dose with 1 beta blocker and blood thinner that cause stress and fatigue. I would like to be reassured as at the moment I am a nervous wreck. Thank you.
unairdefamille
in
CLL Support
9 months ago
Should you avoid caffeine while on Acalabrutinib?
My mom just started her treatment with
acalabrutinib
. She is a regular 1-2 cups of coffee a day drinker. The pharmacist told my mom to not drink coffee for the same reason she shouldn't drink grapefruit or orange juice while on the meds.
My mom just started her treatment with
acalabrutinib
. She is a regular 1-2 cups of coffee a day drinker. The pharmacist told my mom to not drink coffee for the same reason she shouldn't drink grapefruit or orange juice while on the meds.
miav1234
in
CLL Support
8 months ago
Once a day acalabrutinib
No worries. One tablet a day will work perfectly. Well done!!!
No worries. One tablet a day will work perfectly. Well done!!!
Louis33
in
CLL Support
9 months ago
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Update.
She asked if I had ever taken
acalabrutinib
to which I said no and I think i have heard that it can be taken in tandem with ibrutinib. Also said that I have heard about ventoclac which she said had been mentioned in their discussions.
She asked if I had ever taken
acalabrutinib
to which I said no and I think i have heard that it can be taken in tandem with ibrutinib. Also said that I have heard about ventoclac which she said had been mentioned in their discussions.
Jacksc06
in
CLL Support
8 months ago
Acalabrutinib treatment going well
I have been on one dose daily of
Acalabrutinib
for 4 weeks now and am doing quite well. The fatigue has improved quite a lot, although I won't be running any marathons, and I don't feel sick every day. So a good response in my opinion.
I have been on one dose daily of
Acalabrutinib
for 4 weeks now and am doing quite well. The fatigue has improved quite a lot, although I won't be running any marathons, and I don't feel sick every day. So a good response in my opinion.
sandybeaches
in
CLL Support
9 months ago
POST 6 CAR-T cell therapy
My expectation attending Clinic in August was to receive the results of my bone marrow biopsy and to check that I was still tolerating
Acalabrutinib
, perhaps with a view to another BM in a few months time.
My expectation attending Clinic in August was to receive the results of my bone marrow biopsy and to check that I was still tolerating
Acalabrutinib
, perhaps with a view to another BM in a few months time.
casanova
in
CLL Support
8 months ago
New gold standard for first line treatment UK?
She stated that the first line treatment in the uk is now 3 months of Ibrutinib/
Acalabrutinib
, followed by 12 months of Ibrutinib/
Acalabrutinib
and Venotoclax.
She stated that the first line treatment in the uk is now 3 months of Ibrutinib/
Acalabrutinib
, followed by 12 months of Ibrutinib/
Acalabrutinib
and Venotoclax.
headjog
in
CLL Support
10 months ago
Question: Any difference in Calquence (Acalabrutinib) capsules vs tablets
Recently, when we picked up my hubby's
acalabrutinib
pills and the pharmacy gave him pills vs capsules. My husband is doing quite well on the capsules. Should we be concerned? I'm wondering if this has happened to anyone and did you notice any changes?
Recently, when we picked up my hubby's
acalabrutinib
pills and the pharmacy gave him pills vs capsules. My husband is doing quite well on the capsules. Should we be concerned? I'm wondering if this has happened to anyone and did you notice any changes?
spi3
in
CLL Support
10 months ago
Mosquito bites while on Acalabrutinib
My husband has been on
Acalabrutinib
for CLL for 3 years. We walk about 4 -5 times a week and have lunch in the park.
My husband has been on
Acalabrutinib
for CLL for 3 years. We walk about 4 -5 times a week and have lunch in the park.
ikahan
in
CLL Support
9 months ago
Acalabrutinib/COVID/swollen lymph nodes under arm
Hi, I’ve been on
Acalabrutinib
for almost a year now. I have SLL. Everything had been going wonderfully, my lymph nodes significantly decreased in size, my 3-months follow up scan showed great results, my blood work looked normal, and the side effects were minimal.
Hi, I’ve been on
Acalabrutinib
for almost a year now. I have SLL. Everything had been going wonderfully, my lymph nodes significantly decreased in size, my 3-months follow up scan showed great results, my blood work looked normal, and the side effects were minimal.
Tofa80
in
CLL Support
8 months ago
Acalabrutinib and Surgery
Have been on
Acalabrutinib
for past 6 months seems to be working ok. Have previous BR treatment 4 years ago.My hemo oncol said to go off treatment for 2 weeks. My question is does this affect my overall program. Why is it necessary to cease treatment. MALE. 78. Joffre1
Have been on
Acalabrutinib
for past 6 months seems to be working ok. Have previous BR treatment 4 years ago.My hemo oncol said to go off treatment for 2 weeks. My question is does this affect my overall program. Why is it necessary to cease treatment. MALE. 78. Joffre1
Joffre1
in
CLL Support
10 months ago
Haematoma floor of mouth
I am on
Acalabrutinib
. Thanks
I am on
Acalabrutinib
. Thanks
Walkingtall62
in
CLL Support
10 months ago
The CLL Medicine Cabinet - Choosing the Right Treatment for You
acalabrutinib
- duvelisib - ibrutinib - idelalisib - pirtobrutinib - zanabrutinib rituximab - obinutuzumab - venetoclax - Learn More Managing Common Side Effects Chemoimmunotherapy Drug Types and Classes Clinical Trials
acalabrutinib
- duvelisib - ibrutinib - idelalisib - pirtobrutinib - zanabrutinib rituximab - obinutuzumab - venetoclax - Learn More Managing Common Side Effects Chemoimmunotherapy Drug Types and Classes Clinical Trials
lankisterguy
Volunteer
in
CLL Support
7 months ago
PROPAFENONE, anti arhythmia meds to counter the side effect of Acalabrutinib on the heart.
Has anyone been treated for arhythmia while being on Calquence -
Acalabrutinib
to avoid going to ER?
Has anyone been treated for arhythmia while being on Calquence -
Acalabrutinib
to avoid going to ER?
unairdefamille
in
CLL Support
11 months ago
Faster heartbeat with acalabrutinib?
I started taking
Acalabrutinib
about 6 weeks ago. The last few days my heartbeat has kicked up a bit. Nothing extremely high just on the high end of resting, around 70 to 90 beats a minute. I used to be around 60.
I started taking
Acalabrutinib
about 6 weeks ago. The last few days my heartbeat has kicked up a bit. Nothing extremely high just on the high end of resting, around 70 to 90 beats a minute. I used to be around 60.
albie58
in
CLL Support
10 months ago
Calquence / acalabrutinib and Brukinsa / zanubrutinib Adverse Event Comparison for Chronic Lymphocytic Leukaemia / CLL from clinical trials
show an improved AE (Adverse Event) profile with
acalabrutinib
and zanubrutinib compared to ibrutinib.
show an improved AE (Adverse Event) profile with
acalabrutinib
and zanubrutinib compared to ibrutinib.
AussieNeil
Administrator
in
CLL Support
11 months ago
Holding Acalabrutinib for procedures, etc.
I’ve been on
Acalabrutinib
for 3+ mos and doing ok (still with high WBCs and lymphs but they’re starting to come down.) Bruising is worsening recently and so is joint pain! I have arthritis in both hands/thumb joints (as do so many post menopausal women.)
I’ve been on
Acalabrutinib
for 3+ mos and doing ok (still with high WBCs and lymphs but they’re starting to come down.) Bruising is worsening recently and so is joint pain! I have arthritis in both hands/thumb joints (as do so many post menopausal women.)
Islandjewel23
in
CLL Support
10 months ago
VENOTOCLAX +
Because of afib due to Ibrutinib and
Acalabrutinib
and visits in ER, my oncologist is thinking of a combo of Venotoclax paired with another med. Is anyone here on this treatment?
Because of afib due to Ibrutinib and
Acalabrutinib
and visits in ER, my oncologist is thinking of a combo of Venotoclax paired with another med. Is anyone here on this treatment?
unairdefamille
in
CLL Support
11 months ago
MRD Test
After 14 months on
Acalabrutinib
and Venetoclax, C91.10 Chronic lymphocytic leukemia of B-cell type not having achieved remission. Looks like I failed. 😷
After 14 months on
Acalabrutinib
and Venetoclax, C91.10 Chronic lymphocytic leukemia of B-cell type not having achieved remission. Looks like I failed. 😷
Lavinia-Blue
in
CLL Support
11 months ago
CLL survival times ARE improving, thanks to BTK and BCL-2 inhibitors
The even better news is that we now have second and third generation FDA approved BTKis, [u]which have significantly lower adverse event and toxicity profiles[/u] -
acalabrutinib
, pirtobrutinib and zanubrutinib, with more BTKis and BCL-2is to come.
The even better news is that we now have second and third generation FDA approved BTKis, [u]which have significantly lower adverse event and toxicity profiles[/u] -
acalabrutinib
, pirtobrutinib and zanubrutinib, with more BTKis and BCL-2is to come.
AussieNeil
Administrator
in
CLL Support
1 month ago
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