Search
Search
About
Log in
Join
Experiences with
Acalabrutinib
Posts
Communities
506 public posts
Filter results
CLL + Bladder cancer + prostate cancer
I've been diagnosed with Cll since 2016 and been on
Acalabrutinib
for 2 years which is working really well along with monthly plasma ivig infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma.
I've been diagnosed with Cll since 2016 and been on
Acalabrutinib
for 2 years which is working really well along with monthly plasma ivig infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma.
Brucex100
in
CLL Support
1 month ago
Hair loss while taking Acalabrutinib
My hair is coming out in handfuls as I mentioned in a recent post. What used to be long to my waist, thick and shiny is now dry, dull and very brittle. This started two months ago. As I have been told I will be on this drug for the rest of my life will my hair ever grow back or should I just cut it all
My hair is coming out in handfuls as I mentioned in a recent post. What used to be long to my waist, thick and shiny is now dry, dull and very brittle. This started two months ago. As I have been told I will be on this drug for the rest of my life will my hair ever grow back or should I just cut it all
Vinweesel2023
in
CLL Support
5 months ago
Acalabrutinib, venetoclax and obinutuzumab in relapsed CLL: Phase 2 CLL2-BAAG trial results from the German CLL Study Group
[/i] [i]https://ashpublications.org/blood/article-abstract/doi/10.1182/blood.2023022730/515746/
Acalabrutinib
-venetoclax-and-obinutuzumab-in?
[/i] [i]https://ashpublications.org/blood/article-abstract/doi/10.1182/blood.2023022730/515746/
Acalabrutinib
-venetoclax-and-obinutuzumab-in?
AussieNeil
Administrator
in
CLL Support
7 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
acalabrutinib and bacterial infection
I havent started
acalabrutinib
and I know my doctor is unhappy with me. I dont know what to do. Any insight on infections and
acalabrutinib
would help. Jeanie
I havent started
acalabrutinib
and I know my doctor is unhappy with me. I dont know what to do. Any insight on infections and
acalabrutinib
would help. Jeanie
akajeanie1
in
CLL Support
8 months ago
Ventoclax and obinutuzumab versus acalabrutinib
V+O for one year or
Acalabrutinib
for ever. Any views on the above or is it just the convenience of the treatment.
V+O for one year or
Acalabrutinib
for ever. Any views on the above or is it just the convenience of the treatment.
Farleytiff
in
CLL Support
7 months ago
Citrus fruits and Acalabrutinib
Now I am aware that we can't have Grapefruit and Seville Oranges with
Acalabrutinib
but does anyone know if Lemons are allowed?
Now I am aware that we can't have Grapefruit and Seville Oranges with
Acalabrutinib
but does anyone know if Lemons are allowed?
kitchengardener2
in
CLL Support
8 months ago
Dog bite not on my Xmas list
I’m on
acalabrutinib
and I get ivig every 6 weeks.
I’m on
acalabrutinib
and I get ivig every 6 weeks.
CoCoLuna11
in
CLL Support
5 months ago
Largest real world study of acalabrutinib and ibrutinib over 3 years, shows acalabrutinib has improved discontinuation rates
I also mentioned the lower discontinuation rate for
acalabrutinib
found in the head to head
acalabrutinib
vs ibrutinib clinical trial. Much of that is due to not to disease progression, but because those on ibrutinib found the side effects intolerable.
I also mentioned the lower discontinuation rate for
acalabrutinib
found in the head to head
acalabrutinib
vs ibrutinib clinical trial. Much of that is due to not to disease progression, but because those on ibrutinib found the side effects intolerable.
AussieNeil
Administrator
in
CLL Support
8 months ago
Joint/Muscle pain
Has anyone who is in
Acalabrutinib
suffered with muscle pain after being on it it for some time? I have terrible pain in upper left leg for over 2 months. After an x-ray and seeing a physio was told it was Greater Trochanteric Pain Syndrome which is a form of Bursitis.
Has anyone who is in
Acalabrutinib
suffered with muscle pain after being on it it for some time? I have terrible pain in upper left leg for over 2 months. After an x-ray and seeing a physio was told it was Greater Trochanteric Pain Syndrome which is a form of Bursitis.
Westie11-
in
CLL Support
5 months ago
Heart Issues and Venclexta?
Over the past 5, almost 6 years, he’s been treated with Ibrutinib, Venclexta, and
Acalabrutinib
. He’s had to discontinue all 3 because he couldn’t tolerate them for long.
Over the past 5, almost 6 years, he’s been treated with Ibrutinib, Venclexta, and
Acalabrutinib
. He’s had to discontinue all 3 because he couldn’t tolerate them for long.
KKwtx
in
CLL Support
7 months ago
COVID!
If I'm not feeling better, I'll go in for an infusion to avoid coming off
acalabrutinib
for 8 days.
If I'm not feeling better, I'll go in for an infusion to avoid coming off
acalabrutinib
for 8 days.
jonathan7176
in
CLL Support
7 months ago
Venatoclax mono therapy
Then
acalabrutinib
(but only half dose) The half dose was a mistake - I mentioned to the oncologist i was taking 1/2. and she said nothing so that led back to progression of the disease. so I've had what I call one and a 1/2 failures for 2 lines and I still can't get a straight answer as to why I'm
Then
acalabrutinib
(but only half dose) The half dose was a mistake - I mentioned to the oncologist i was taking 1/2. and she said nothing so that led back to progression of the disease. so I've had what I call one and a 1/2 failures for 2 lines and I still can't get a straight answer as to why I'm
onu1tadi2
in
CLL Support
4 months ago
Weight gain
For those of you using
Acalabrutinib
, have you noticed weight gain, as the drug starts working.? So I am back to basics, watching all I eat and I will mention the weight gain to my consultant in October.
For those of you using
Acalabrutinib
, have you noticed weight gain, as the drug starts working.? So I am back to basics, watching all I eat and I will mention the weight gain to my consultant in October.
kitchengardener2
in
CLL Support
8 months ago
CLL - Joint pain, loss of range of motion
Hi I’m 54, 3 years with CLL, 2 years on
Acalabrutinib
, suffering badly from fatigue and aching limbs. Recently developed pain in my right shoulder, and some loss of mobility. Had similar pains in my left shoulder but to a much lesser extent.
Hi I’m 54, 3 years with CLL, 2 years on
Acalabrutinib
, suffering badly from fatigue and aching limbs. Recently developed pain in my right shoulder, and some loss of mobility. Had similar pains in my left shoulder but to a much lesser extent.
Tomaljoe69
in
CLL Support
6 months ago
acalabrutinib and tegretol
We’ve just been advised he needs to start treatment again, and they’ve chosen
Acalabrutinib
. He has been advised he had to go off his medication for epilepsy, which is Tegretol. We’re obviously not thrilled about it but know he can’t take it with the
Acalabrutinib
.
We’ve just been advised he needs to start treatment again, and they’ve chosen
Acalabrutinib
. He has been advised he had to go off his medication for epilepsy, which is Tegretol. We’re obviously not thrilled about it but know he can’t take it with the
Acalabrutinib
.
MelaniePet
in
CLL Support
9 months ago
How Long for BTK Inhibitor to Reduce WBC.
Ibrutinib,
acalabrutinib
, zanabrutinib) for their WBC to be down to normal range again? I'm very watchful for signs of encephalitis, but I'll feel more comfortable once my WBC is within the normal range again.
Ibrutinib,
acalabrutinib
, zanabrutinib) for their WBC to be down to normal range again? I'm very watchful for signs of encephalitis, but I'll feel more comfortable once my WBC is within the normal range again.
MyCLLJourney
in
CLL Support
7 months ago
Is my sore lower back pain a side effect of Acalabrutinib ?
I was diagnosed with CLL 3 months ago and have been on
Acalabrutinib
since then with excellent results that put me close or into the normal range - white blood cells down to 12 from 56, red blood cells up to 125 from 111.
I was diagnosed with CLL 3 months ago and have been on
Acalabrutinib
since then with excellent results that put me close or into the normal range - white blood cells down to 12 from 56, red blood cells up to 125 from 111.
Lalitpur
in
CLL Support
9 months ago
How Long for BTK inhibitor to Lower WBC?
Ibrutinib,
acalabrutinib
, zanabrutinib) for their WBC to be down to normal range again? I'm very watchful for signs of encephalitis, but I'll feel more comfortable once my WBC is within the normal range again.
Ibrutinib,
acalabrutinib
, zanabrutinib) for their WBC to be down to normal range again? I'm very watchful for signs of encephalitis, but I'll feel more comfortable once my WBC is within the normal range again.
MyCLLJourney
in
NRAS
7 months ago
Reduced acalabrutinib
I started August 1st 2022 my treatment with two tablets a day . Within a month it was reduced to one a day as my liver could not handle it. 11 months later, the one tablet a day is perfect. It will all work out for you.
I started August 1st 2022 my treatment with two tablets a day . Within a month it was reduced to one a day as my liver could not handle it. 11 months later, the one tablet a day is perfect. It will all work out for you.
Louis33
in
CLL Support
9 months ago
Should I be worried?
Due to language problems, I was unable to understand the exact name of the drug, but it may have been '
Acalabrutinib
' which she said is one of the treatments that is permanent. My recent bloods of 4th December show: Haemoglobin, 107. overall WBC, 110. Platelets, 162.
Due to language problems, I was unable to understand the exact name of the drug, but it may have been '
Acalabrutinib
' which she said is one of the treatments that is permanent. My recent bloods of 4th December show: Haemoglobin, 107. overall WBC, 110. Platelets, 162.
Vindicatrix
in
CLL Support
5 months ago
1
2
3
4
...
26
Next page
10
20
Filter results
Clear filters
Posted in
All communities
CLL Support
489 results
CLL America Support
6 results
Non Hodgkin's Lymphoma Friends
4 results
View top 10 communities
Sort by
Most Relevant
Newest