Autoinflammatory Alliance Members & Fo... - Sweet's Syndrome UK

Sweet's Syndrome UK

486 members295 posts

Autoinflammatory Alliance Members & Followers

Shell567 profile image
Shell567AdministratorSweet's Syndrome UK
1 Reply

The AUTOINFLAMMATORY ALLIANCE (a US non-profit based in San Francisco) is requesting that its members and followers tag themselves on their international autoinflammatory map.

In order to tag for Sweet's syndrome - click on additions (add marker- simple), add your location, choose the LIGHT PURPLE marker for Sweet's syndrome, and submit.

Additional tags: SUNSET for Behcet's syndrome.

MAP: zeemaps.com/map?group=1114693

Autoinflammatory Alliance Facebook Group (closed group - request to join): facebook.com/groups/nomidal...

BLOG: autoinflammatory.org/

Please note: you may find this group very useful if you have a child with an autoinflammatory condition such as Sweet's syndrome.

Michelle (admin).

Written by
Shell567 profile image
Shell567
Administrator
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Shell567 profile image
Shell567AdministratorSweet's Syndrome UK

Thanks to everyone that tagged! :-)

Not what you're looking for?

You may also like...

An Introduction to Sweet's syndrome - links to information (pinned post)

Sweet’s syndrome is an autoinflammatory (not autoimmune) condition and form of neutrophilic...

Sweet's syndrome paper - help needed. Please share your patient experiences.

Hi all, Kristin Langan is a doctoral nurse practitioner student at Rutgers University in the US....

Don't forget our list of doctors with knowledge of Sweet's syndrome. Please add yours to the list (pinned post).

LIST MAY NOT BE UP-TO-DATE. Link to the old pinned post "Has anyone been seen by a doctor who has...

Does anyone have problems with pathergy?

Pathergy is when lesions can develop in an area where the skin is damaged or irritated. It affects...

Has anyone been given the wrong medical treatment for their Sweet's syndrome?

I would be interested to know how many patients have been given the wrong medical treatment for...