Is anyone else tired all the time?

[BonnieG567]

After getting Sweet's I'm tired all the time. Does anyone else feel like this? I don't want to feel like this forever.

[Trish62]

Hi Bonnie. I know how you feel some days it's a massive effort just to get up I can't do half the things I used to do it can be very sole destroying. I'm on steroids as well . I go to see my consultant again this week I'm hoping he has some answers ( not holding my breath. ). Keep your chin up x

[BonnieG567 in reply to Trish62]

Tx. People treat me like I'm lazy but I feel so awful. I'm glad it's not in my head.

[REVIN4GOD]

Yes, I have found that fatigue is one of my biggest issues. There are many days I go to work and come home only to lay in bed till dinner time. No energy, I have to force myself to walk the one hundred yards out to even feed my horse.

Some periods are worse than others. When i struggle with the fatigue to most is also when I develop more lesions.

[BonnieG567]

I feel worse when I've got more lesions too.

[Jimbo1970]

I feel tired all the time legs hurt on a daily basis had this three years now I've now lost my job due to the pain in my legs the doctor is treating me with morphine and pregabling but they not working very well under the pain clinic but takes so long to get a appointment

[Shell567 Administrator Sweet's Syndrome UK in reply to Jimbo1970]

Hi Jimbo1970, your SS sounds very debilitating. I hope that the pain clinic finds an effective pain management regime soon.