My daughter who is 16 has been suffering from vasa vagal syncope. She has had all the cardiac testing and and EEG to see if it was a neurological problem but they have all come back normal. No cause can be found for these vasa vagal episodes.
She has now had a implantable loop recorder which records what her heart is doing when she is unconcious and we have caught episodes but the results are all normal some recordings show her heart beating getting up to 170bpm when she is unconcious and others have shown a dip when she has fallen to the ground but I am told by a cardiologist that these recordings are all normal. These episodes where happening every 2-3 weeks but now she has started fludrocortisone 100microgram once daily and this has reduced the episodes a lot but she is still a collapse every 6 months or so. I don't know what to do because they are still happening. Please share your experiences I feel like she is the only one with this happening to her. Is vasa vagal syncope a diagnosis?