Hands, fingers, feet and toes go blue... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Hands, fingers, feet and toes go blue/cyan colour at exposure to slightest cold, never white at the fingertips.

JayEmJee profile image
3 Replies

My doctor said that it is primary Raynaud's, which I first noticed after doing cross country at school in the ice and snow, when I was 14, and when I came back to the changing room, my fingers were red and swollen and I couldn't fasten my shirt and felt dizzy. I still get this feeling when I take the rubbish out in temperatures of zero or below.

I see a lot of pictures of people with white fingertips from the first or second knucke and this is not something I have ever noticed.

When I am warm, I am fine. I don't mind hot weather, but I can't wash up or bathe in hot water, which feels very hot to me and not so bad for my wife. It's difficult holding a hot cup of coffee, which, again, my wife doesn't have a problem with.

Do I really have Raynaud's?

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JayEmJee profile image
JayEmJee
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Blue-Bunny profile image
Blue-Bunny

Yup, classic textbook symptoms.

I mean the hot coffee thing is, probably something more personal to you than the Raynaud's. You fingers don't even have to change colour at all, though many doctors are less likely to diagnose you with Raynauds without it. When you were 14 it's quite possible, you didn't have Raynaud's... sub-zero temperatures tends to make fingers go numb even for normal people.

However, if you're walking round at 10C and your hands go numb, then that's likely to be Raynauds. Of course you do have a colour change. So Raynaud's it is.

White Finger, was a classic sign of Secondary Raynaud's, the term actually emerged from the Mining Pits and associated with vibrations. However it can also be present in Primary.

Basically. Yep. Welcome to the club. *gets out a New Member's blanket and a cup of coffee*

zenabb profile image
zenabb

Yes. Classic symptoms. Your innate temperature regulator is not working properly, like mine.

AliW profile image
AliW

Agree - personal thermostat is not working .....sadly there is no replacement part .....we have to manage it best we can ! You are not alone ....

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