I enjoy reading everybody elses blogs (it's good to see other peoples experiences and know you are not alone), I thought i would add one of my own.
I'm having iloprost this week, luckily its at a day unit so I get to come home.
My morning started badly as my Raynaud's was out to get me (ice queen is a fitting description lol) when trying to get a canular in every time the needle got there the vain would constrict (this was even with heat packs), eventually they got one in and i got started.
Four hours in I felt terrible, five hours in I wanted to turn it off, rip out the line and go home. Then I gave myself a good talking to (in my head mind you lol) and reminded myself of how good things will be after. Three months of having Raynaud's that doesn't cause so much pain, or limit the use of my hands, or make me feel so unbareably tired, doesnt cause really bad chilblains and being able to do all the activiities I want to do (yes I will still need some really light gloves when it gets below around 19 degrees, but i dont mind thats what us smurfs have to do).
Don't let my comments put anybody off having iloprost because as I have said although it makes you feel rubbish, it really does work and in the grand scheme of things 5 days of rubbishness for three months of having raynauds under control I personally feel its well worth it.
Tomorrow I am going to walk onto the day unit and remind myself that although I feel bad now I will be enjoying the benefits soon enough!