I have Raynauds and a tentative diagnosis of limited cutaneous systemic sclerosis. I could not tolerate nifedipine; I can tolerate losartan potassium but it does not seem to offer any symptom relief. My rheumatologist has now arranged for me to have iloprost.
I am having my first iloprost infusion next month (every day for five days at a Medical Day Unit). I have taken the week off work + the weekend to recover.
I am nervous about the treatment but trying to stay positive.
If anyone has any advice or tips, I'd be glad to hear them.