Change of rheumatology consultant! 😬

[Natalie1982]

Hi guys, so I was diagnosed with Scleroderma two years ago and have regular yearly bloods. The consultant deems them stable and doesn't consider the results worthy of meds or treatment. I've got a lot of symptoms that he doesn't seem to think are related to the disease. Dyspepsia, muscle aches, vit d and folate deficiency, dry sensitive eyes, anxiety, cold extremities ( he did say that of they were to change colour it could be Raynards but this hasn't happened), extreme tiredness which is the worst. I'm thinking of looking for a specialist in scleroderma and would love any recommendations or suggestions. I live in Wales so know I'll have to travel. I just want to make sure I'm being proactive.Thanks all 😊

[JustJanet59]

Hi Natalie,

Sorry to hear about your diagnosis and general wellbeing. I identify with a lot of what you are experiencing.

If you can find Dr Theresa Barnes I would recommend her. This is her special interest. She was at the Countess of Chester when I saw her and I think she’s moved to Liverpool.

She is lovely and listens.

Hope you find her. Good luck