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Scleroderma & Raynaud's UK (SRUK)

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raynaud’s plus more

Catfun profile image
10 Replies

Did anyone on this Board ever test positive (through punch biopsy) for Lichen Sclerosis?

If so, any helpful suggestions?

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Catfun profile image
Catfun
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10 Replies
Broseley profile image
Broseley

I was diagnosed visually by a consultant gynaecologist. I was prescribed dermovate cream and told never to have baths or go swimming and only use Dermol to wash down below in a weekly shower. It took about 6 months to get it under control with occasional flares but has been fine for the last few years, as long as I avoid sex!!

moo196 profile image
moo196 in reply toBroseley

but I swim regularly with LS (Several times later week). Just need a decent level of barrier cream in advance.Mine is well controlled with reduced dilution betnovate and daily epaderm

Catfun profile image
Catfun in reply toBroseley

Thanks

Catfun profile image
Catfun in reply toBroseley

thank you, I never heard of dermovate cream or Dermol wash. I will have to look for it

Broseley profile image
Broseley in reply toCatfun

Dermol is available from pharmacies but dermovate is a steroid cream and has to be prescribed and used as instructed. Good luck!

Catfun profile image
Catfun in reply toBroseley

Thank You

Oleander1 profile image
Oleander1

I was diagnosed about 2 years ago. I control flares with QV emollient wash, daily Hydromol cream, and twice weekly Dermovate. Sadly, this awful condition has altered the architecture of my genitals and sex has become impossible. Otherwise, it is manageable but no fun!

Catfun profile image
Catfun in reply toOleander1

thank You. I have to do more research I guess. I want to try those products I never heard of. Are they RX’s?

Oleander1 profile image
Oleander1

Hi, I don’t know what an RX is so I suppose we live in different countries. Dermovate and Replens are prescribed by my doctor. QV wash and Hydromol I get from the chemist or online. If you Google the names it may give you the brand names where you are. Good luck!

Catfun profile image
Catfun in reply toOleander1

thank you

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