Our Spirit Animal: Spirit Animal for... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,844 members5,412 posts

Our Spirit Animal

Sophiebun11 profile image
6 Replies

Spirit Animal for those of us with autoimmune diseases!!! I feel like a sloth most days.

Written by
Sophiebun11 profile image
Sophiebun11
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Bkart profile image
Bkart

Hi Sophiebun11, love the ‘get a grip,’ I wish! I don’t know about you or anyone else but I have trouble just openinga spread lid! So frustrating. 🥴😩😂

Sophiebun11 profile image
Sophiebun11 in reply to Bkart

I noticed that I can barely tear index cards in half. I use them for notes and then rip and recycle. I always bang on lids with the handle of a dinner knife, that helps open them, it makes a pop and you know the seal is broken and it will come open.

Sanmateogirl107 profile image
Sanmateogirl107

i have to agree with the sloth when its cold i move slowly and boy do i ache. so to take good care of me i got an electric blanket, tiger blanket for my bed, new art pens to draw in bed under the covers, eat right. i just hang out. diagnosis is esophagael scleroderma if it worsens we go on meds. love julie

Sophiebun11 profile image
Sophiebun11 in reply to Sanmateogirl107

I really have the esophageal dysmotility problem. I got my Covid booster Monday and by midnight that night I could barely walk to the bathroom. Every muscle, joint, nerve and bone was screaming at me. I guess I had a huge Sclero Flare. When I got the first two vaccines I wasn't on Prednisone so maybe that made it worse. I'm a little better today, but barely. I'm doubling my pain meds. And my nose keeps bleeding I don't know what's up with that.

Sloths are notorious for moving slowly or barely moving so I think we all relate to that. Since they do hang I thought the "use the bathroom facing down" was funny on the meme too.

Sanmateogirl107 profile image
Sanmateogirl107 in reply to Sophiebun11

wild lettuce extract mt rose herbs or ebay i take it for pain works great 4oz 18.00. try it let me know how it works for you. love julie. try blending your foods. eat liquids. take peppermint before you eat and after keep a journal. love julie

Sophiebun11 profile image
Sophiebun11

Hi Julie,

I can tell that you are very sweet and well meaning, but if I did try what you suggested I might not live to tell you how it works for me.

Peppermint is highly allergic to those with latex allergies, like myself. I can't even use toothpaste, floss with mint, gum or anything else with mint or anything in the mint family or latex family.

I won't even go into rose.

I spent 3 years eating only liquid food because of my Scleroderma and esophageal dysmotility.

I don't need to keep a food journal. I am allergic to over 400 foods and meds. I limit my food to 3 things in rotation.

I admire your kind spirit but herbs are not benign, and are very dangerous to some. You shouldn't suggest them without knowing the person's allergies as they may trust you at face value and become quite ill or worse. Many will be helped, but for those of us with severe allergies it is very dangerous.

I am glad the things you suggest are helping you. I used to take my kitty to a Holistic Veterinarian, but he had no allergies. He took X. Vomitus for his chronic pancreatitis prescribed by the vet who had 8 years of veterinary training and another 2 years in Holistic training and acupuncture. It can't be bought on EBay. I don't know your background, but I think if you were a professional healer you wouldn't give advice over the internet.

Thanks, and have a very Happy New Year.

You may also like...

Update on how our meeting went.

as well as the conversations. I would personally like to thank the folks that came, as per the...

Talking to family members about our scleroderma

but I don't know what to do for the best. I feel like not volunteering any information now, unless...

Has anyone ever tried camping outdoors in our lovely uk weather..I hav secondry raynaurds..

give me advice on how i can stay warm through the day and especially the nite in tent ,iv never...