Raynaud’s disease

[djsema]

I have lupus and been diagnosed with Raynaud’s disease. My feet are always cold but when it’s touched it feels normal.

Is this normal please?

[marie5454]

Mine are the same, I have raynauds, also my feet and hands are boiling hot sometimes but if I take off socks, gloves etc I get raynaud attacks. The rheumatologist didn't seem concerned at the time because bloods were ok, that was 5yrs ago. Try to keep yourself warm and mention it to the doctor next time you go, good luck x

[djsema in reply to marie5454]

Thanks for your advice. And I will do xx

[Sanmateogirl107]

HAS YOUR DOCTOR DONE ANY BIOPSY OF YOUR SKIN TO CHECK FOR SMALL NERVE NEUROPATHY. ASK ABOUT PRAZOSIN 1MG, I CAN NOT FEEL MINE I GET PINS AND NEEDLES IN THE BATH ITS VERY PAINFUL, HANDS WHEN I PUT THEM IN WATER SAME THING. THE DOCTORS WILL START ME ON IMMUNOTHERAPY FOR CREST, LUPUS. ASK YOUR DOCTOR FOR HELP AT HOME MAKE NOISE ABOUT IT. GET SUPPORT, GET YOUR FAMILY INVOLVED ALSO. THE LOVE YOU RECEIVE ITS WONDERFUL. GOOD LUCK I AM PROUD OF YOU. LOVE AND HUGS JULIEANNA

[djsema in reply to Sanmateogirl107]

Thank you xx

[djsema]

Thanks you xx