Scleroderma/Raynards Covid Vac - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Scleroderma/Raynards Covid Vac

lennyplus4 profile image
9 Replies

Any experience with COVID 19 vac side effects for Scleroderma & Raynards?

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lennyplus4
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9 Replies
honeybug profile image
honeybug

Hi lennyplus4 🌿🌸🦋I have Raynauds Phenomena.

I’ve had the Pfizer vac 2 doses. I’ve done fine with just a sore arm.

I have many autoimmune conditions I’m always exhausted so not sure if that was effected because mine is always in progression due to decades of sleep deprivation.

My 2nd jab was less painful than the first.

EJ 😊🤗💗😘🙏🕊🌿🌸🦋

Craftyflower profile image
Craftyflower

No side effects apart from a sore arm and feeling tired.

Intimeslikethese profile image
Intimeslikethese in reply toCraftyflower

Thank you for your response? Have you had both doses? Of which one? Do you take any immunosuppressants?

Craftyflower profile image
Craftyflower in reply toIntimeslikethese

Just first dose of the Pfizer vaccine, no I don't take any medication, I was on nifedipine but hated the side effects.

cowhide profile image
cowhide

I had the Pfizer just over a week ago. Tender upper arm and just felt a bit 'peaky' for about 12 hours, slight headache, nothing out of the ordinary. I have limited systemic sclerosis including Raynauds. I am on mycophenolate.

Midgebite21 profile image
Midgebite21

I had my first Pfizer injection just over 4 weeks ago (I’m face to face healthcare), no side effects apart from headache, sore arm and increased fatigue for a couple of days. Rheumatologist told me that any THEORETICAL side effects are much out weighted by the very high risk of contracting COVID-19. If your on immunosuppressant medication you may not develop as strong an immune response but any protection is better than no protection.

dordle profile image
dordle

Had my first Pfizer dose about 3 weeks ago, only a sore & slightly heavy feeling upper arm. I take a blood thinner and Mycophenylate.

momo17 profile image
momo17

Hi Lenny. I had asked similar question couple of days ago if you want to check my post. I had lots of really reassuring replies n good info. I’m getting vaccine tomorrow so can keep you posted. I also have scleroderma, secondary sjogrens n raynauds and ILD. I am on highest dose of mycoohenolate.

Poppy221 profile image
Poppy221

I had Astra-Zeneca yesterday. So far just a sore patch on my arm and feeling OK. I am on mycophenolate and with the SSc I do get bouts of flu like aches and pains and tiredness anyway. I'm currently on an up period without the flu like aches and pains, despite the cold winds and the vaccination hasn't knocked me back (yet).

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