I’ve just suddenly come into a period of super strong pain in my bones/limbs and I’ve decided to try compression on my limbs to see if it has any effect at all (on the premise that it may or may not be as a result of inflammation & fluid leaving my blood stream & pooling in my flesh, which are two causes of pain with ssc).
This is obviously just in the interim before I see my rheumatologist 😅
Have you had your vitamin D levels checked? This can often cause these symptoms.
They’re fine 
I take high dose vitamin D in oil twice a day
I’m following this, would like to know the outcome. Can you post more info with results after trying the compression avenue.
PS: my vitamin D (and iron) level is always low with or without supplements 🤷🏻♀️
Hi, will do. I had my vitamin D checked last year and it was tip top
Kenalog and Hydroxychloroquine. 
Swollen hands - worsening Raynauds or something else?
Desperate
