Flolan infusion

[Marthab]

Has anyone had flolan infusion to dilate blood vessels, and if so how effective is this treatment.

[Bronagh2015]

Yes I get it every year, I call it my 'antifreeze'! My infusions last for 6 hours and I get them for 5 days in a row. I'm given painkillers and anti sickness tablets beforehand to help with the headache and sickness. It's good to keep eating small bits and pieces and to keep drinking water during it. It's not the most pleasant thing in the world buts it's well worth it as it definitely helps the raynauds in my hands and feet.

[jill95611 in reply to Bronagh2015]

I’ve just finished getting mine it was my first time I had three days six hours each day. I drank plenty of water each day to help keep my blood pressure up. Three others got theirs at the same time as me and none of us had any issues. I only had a slight dull headache. I can already feel the benefit and will definitely ask for it again.

[Psg83]

Hi, I have just had my first. 5 days of flolan and it wasn't as bad as i thought it might be.

6 hours each day feeling a bit hot, Jaw seemed to jam whilst having it. looked like a tomato,

But not painful at all. Too early to say if things have improved.

I wil try to keep you informed .