I'm new here

[tanyfan]

I have Lupus,Scleroderma, and Raynauds. I have just found HealthUnlocked and it would be nice to have more information also to find out if there is anyone in my area who has the same.

[Mylreaclairelee]

I am in Shropshire near Shrewsbury. Where are you? Gosh all 3 will be a challenge tanyfan.

[tanyfan in reply to Mylreaclairelee]

Hi thanks for your reply. I live in Carmarthen, having all 3 is still a challenge but I have had lupus since 1970, scleroderma and raynauds since 2000 . I take each day as it comes.

[charlieab]

Hi Tanyfan

Hope you are doing ok today. Sounds like you have a lot to deal with. There is quite a bit of information on the SRUK website, although this one is very good as well sclerodermainfo.org/

Also this forum can be a good place for advice and support (as of course is the one that you are on) inspire.com/groups/sclerode...

Ive been diagnosed with several autoimmune conditions in the last few months but they are still doing tests for scleroderma. So Im not even sure if Im in teh right place. Though I developed raynaud's earlier in the year, so I guess I am. It can all be pretty overwhelming I know that.

Hav eyou been started on any medication yet and is it working out? Im looking at the possibility of plasmapheris atm, as looks like it can be pretty effective without side major effects. But there are a limited number of studies on it so far, so who knows whether it will help or not or how safe it is.

Well, I guess I should try and get some sleep.

best wishes