Raynauds medication: Hi My doctor is... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Raynauds medication

Jane999 profile image
Jane999
•11 Replies

Hi

My doctor is almost sure I have raynauds and has offered me calcium channel blockers. Is anyone else on this medication if so does it work and are there any side effects?? Many thanks 😊

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Jane999 profile image
Jane999
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11 Replies
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tillie profile image
tillie

Was on these for years with no problems..then was taken of them by GP with some other meds . Heck

have I suffered these last 5 months with sore hands/feet. GP has now put me back on them so hoping for

same good results I never appreciated until this happened. Hope this is of some help

Jane999 profile image
Jane999• in reply totillie

Thanks, it's mainly blue lips, cold hands and feet and really feel cold to my bones. A roasting hot bath is the only thing that tends to warm me up. Any adverse side effects??

tillie profile image
tillie• in reply toJane999

So many baths wore me out..clothes off, taps on, get dried, bed or get dressed. Cold to

bones & feel I'll never be warm again. Now back on this med an improvement

and hoping for more the longer I am on it. :-)

Jane999 profile image
Jane999• in reply totillie

Might have to try it..... Appreciate the feedback thanks 😊

tillie profile image
tillie• in reply toJane999

Please do...like I said its only this winter I have not been on them that I realise what good they have been doing.

StevieJoey profile image
StevieJoey• in reply toJane999

Thats what i do a hot bath helps my feets & hands & my bones i use bubble bath for dry skin as my Dr told me to ! I have Limited Scleroderma & Raynauds I was 50 when i got Raynauds 55 when told i had Scleroderms ! I am 61 now i will pray for you & family !I am taking Nifedipine for raynauds !

Jane999 profile image
Jane999• in reply toStevieJoey

Thank you :)

Poshcards profile image
Poshcards

I have been on Nifedipine for my Raynauds for years, takes away the pain and improves circulation and not really any side effects to mention x

judyt profile image
judyt

Some people get headaches with Nifedipine, I did so changed to Amlodipine and that's fine for me. Also take Diltiazem but that was for Ectopic Heart Beats (extra beats). Most important is to keep your core body as warm as you can as well as wearing gloves and hat outdoors on cooler days.

creditcrunchie profile image
creditcrunchie

It is very cold at the moment and I dread to think how much worse I would be without Nifedipine. I did get headaches initially but now I take a slow release version at bedtime and no side effects at all. I wish you well.

livinginpain profile image
livinginpain

I was never given anything for Raynaud's, the only medication I have been on for Scleroderma is captopril, my doc doesn't know why but it was the only thing keeping it "asleep". That was in 88'. Things are changing now, I still don't know much about it after all these years, I do know I am slowing down a lot my heart is not well had to have a pace maker, they say I have COPD was on oxygen for yrs at night. insurance wouldn't work with the company I was using so I told them to pack it up. I do fine if I don't do stairs, hills or bend too much...Im sorry didn't mean to rattle on but in a foul mood. in answer to your question I have never been given anything for Raynaud's ;-)

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