Hello . I am new here. I also have raynauds and scleraderma. I was wondering if someone could tell me what is the best treatment for stiff muscles and tendons. I am really struggling with it. I take muscle relaxes but it really doesn't help. Any advice would be appreciated.
Stiff MUSCLES & TENDONS: Hello . I am... - Scleroderma & Ray...
Stiff MUSCLES & TENDONS
Hi, feel for you. I have the delightful Raynauds & am off for further blood tests today to check if I have any autoimmune diseases, incl Lupus.
I am fit & healthy, eat all the right foods, keep fit by running, walking, Pilates & yoga.
Can I suggest finding a yoga class? You will find it helps with all these aches, stiffness etc & helps mentally, emotionally too
Take care
Thank you for replying. I will certainly check into some yoga. I've tried just regular exercises and found it to be to much but a slower paced yoga would be great.
Hi, My tendons and ligaments became so tight that I could barely move my neck and along with Plaque Morphea I was pretty rigid. I started on Methotrexate and this started a softening process. Then 2014 I had a 6 month course of Cyclophosphamide and am amazed at how much my skin and ligaments have softened and improved. I still have multiple problems as everyone with Scleroderma has but at least I can bend now. I have physio regularly and do my stretching but some of the damage to my joints and connective tissue will never repair. I just hope to slow or stop the deteriation. Helen
Your problems sound very similar to mine. The lack of flection in my ankles is causing a huge problem & the pain in the tendons & ligaments across the top of my feet wakes me at night. So far I have tramadol to manage the pain when it gets beyond over the counter medicines & omeprazole for the acid reflux, but the scleroderma has upped it's game considerably, to a point that has really frightened me. The rheumatologist is considering Mycophenolat (that is not quite correct spelling wise), but she has told me to research it before agreeing as it is quite 'toxic', that's nothing that I felt like hearing! Even she sounded reluctant! There is a long list of tests that she is running before we make this decision. I am going to see what I can do to improve my health myself & look on this site to see what medication, vitamins, lifestyle changes, exercises etc. people with similar symptoms have been on & how they have workout out for them. So your post is a really good start for me, - thank you for sharing & wishing you all well with their own personal struggles.
Thank you so very much. I am going to mention these medicines to my doctor. Bless you.
Exercise and physio help
I have a regular exercise program - mainly stretching & bending that my physio put together for me, takes about half an hour a day but well worth the effort. I also joined a local floor based physio group which is about an hour but helps keep you motivated when you are with similiar sufferers! Best advise is use it or lose it. Hope you find something that works for you.