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Scleroderma & Raynaud's UK (SRUK)

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Does anyone with Scleroderma have a history of Ellers Danlos in the past?

lifeforce profile image
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lifeforce
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EOLHPC profile image
EOLHPC

My rheumatologist thinks my version of global hypermobility has enough Ehlers Danlos characteristics to be considered as such.

I am 60, diagnosed with systemic lupus (infant onset) + various diagnosed autoimmune conditions (raynauds.

+ erythromelalgia, lichen sclerosus, angina bullosa haemorrhagica, IBS, sicca syndrome etc) but, so far, not yet with scleroderma...sorry I'm not the person you probably hoped to hear from!

in my experience, Ehlers Danlos is quite unusual...e.g. I haven't found more than one or two on my HU forums who have ED...so, when I find something posted that involves ED, I tend to reply

nettie545 profile image
nettie545

Hi lifeforce. Could you tell me what Ellers Danlos is? Very interested. Thanks! :)

lifeforce profile image
lifeforce

Hi nettie545, it too is a collegan connective tissue disease only in reverse of scleroderma. Skin is loose,joints are doubled,people bruise very easily. I watched a documentary on it yesterday and realized as a child this fit me to a tee. I was super athletic, bruised crazy easily,could bend my fingers all the way back to my hand. Now I am 55 and have had Scleroderma for 14 years and it is hard to move anything. Connection??

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