Have you seen the new raynauds and sc... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

11,000 members5,522 posts

Have you seen the new raynauds and scleroderma care and support website ? www.raynaudsandscleroderma.co.uk great info and forum space :)

living-the-dream-ssc-ray profile image

Hi everyone ! check out this NEW raynauds and scleroderma care and support site set up by Anne Mawdsley who was the CEO of the RSA for 30 years! It has some great info as well as an interactive forum for questions and sharing ! I hope you love it as much as I do ! Together, by sharing info we can help towards feeling better and finding a cure :)

raynaudsandscleroderma.co.uk

Written by
living-the-dream-ssc-ray profile image
living-the-dream-ssc-ray
To view profiles and participate in discussions please or .
5 Replies
Ceylon profile image
Ceylon

Hi again, i had a look last night after i received your email it looks interesting.I have left my email address and hope to hear from them soon i will let you know the out come . thanks again . joy.

graygirl1 profile image
graygirl1

Amen to all you have said. Happy New Year and thanks to everyone for all your support.

Graygirl1

Ceylon profile image
Ceylon

Hi, me again i said i would let you know how i got on with trying to find a support group.I rang tony overend, he gave me some names and numbers. But unfortunately the lady who did this gave up there was not enthough people interested. not toworry, i have got you guys to talk too.keep smilling .j.

AHM42 profile image
AHM42 in reply to Ceylon

Have you tried calling the Helpline 07530 810 964 or visited raynaudsandscleroderma.co.uk? The website site also gives you an email address to send in a question and has an online forum.

Ceylon profile image
Ceylon in reply to AHM42

Hi, ahm42.I have had lots of names and numbers one name came up twice i am emailing her later and from what i can tell its looking good ! Thank you keep warm x

Not what you're looking for?

You may also like...

Hints and tips please from my "Scleroderma family"? (new on this website)

Dear "family", It's been only a few days that I came across this forum and I've already found some...

Does anyone suffering from Raynauds and Scleroderma have headaches caused by the cold weather?

Since the arctic weather conditions that have been sweeping across the country I have been...

hi all i have diffuse scleroderma and raynauds and i am on chemotherapy.

i would like to know if anyone else is and if it has made any difference to them.i have been on it...

Hi I have been diagnosed with Raynauds and recently Scleroderma.

Since I was diagnosed with raynauds, I seem to suffer a lot of attacks and more so digital ulcers....

I have Scleroderma with secondary Raynauds, GERD, pulmonary fibrosis, and PAH.

I had an open lung biopsy two years ago and still have alot of pain. I experience pain under the...