Salivix: Anyone else having trouble... - Sjogren's Support

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Salivix

Dottie11 profile image
12 Replies

Anyone else having trouble obtaining these ?

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Dottie11
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12 Replies
OldTed60 profile image
OldTed60

Yes!! I believe that there’s a supply chain or production issue - or so my pharmacist seemed to think. They found one box for me but that’s now dwindling. I’ve thought about contacting the company directly as this seemed to help for a different medication I was taking? X

Dottie11 profile image
Dottie11 in reply to OldTed60

Thank you. I thought this may be the case. My Immunologist prescribed an oral tablet to swish in my mouth last year. But this was out of stock and not due in until 2024. So I relied on these in the meantime. Dwindling options. x

OldTed60 profile image
OldTed60 in reply to Dottie11

Yes I spend my days and nights sucking away at Ricola, Xlymelts, Sula and others but salivex work best for me and are only ones I get on prescription. My oral medicine consultant sent me a spray but I’m too cackhanded from scleroderma/ Raynaud’s and arthritis to use it safely and paranoid about poisoning our dog. X

Dottie11 profile image
Dottie11 in reply to OldTed60

I dropped everything but yes cackhanded. Have not heard that in a while takes me back. I am on Salivex plus as it has Fluoride in-on prescription. My teeth continue to cause issues and sure another due out soon. I will look up Sula too. x

Dottie11 profile image
Dottie11 in reply to OldTed60

xlymelts every night and find good too

Krazykat26 profile image
Krazykat26

I've got them from Amazon before..Salivix pastilles .I'm having issues with Xalin night time gel for my dry eyes. Chemist says there's loads of meds they can't get at the moment.I keep getting Ipca hydroxychloroquine too whereas before I got Zentiva brand (gentler on the stomach I find) 💜🌈🦋xx

Dottie11 profile image
Dottie11 in reply to Krazykat26

Yes when I need more than my prescription I top up there. But cannot find it anywhere atm. Yes Xalin is not being delivered either. I have gone to using just gel and eye drop Thealoz Duo Eye . I am off hydroxy now but the Zentiva run around is not good at all. X

donnabrain profile image
donnabrain

My chemist has not been able to get them for ages.I usually get the salivix plus.

I used to order in between prescriptions from amazon, but they have been unavailable on amazon for a while too.

I noticed the other day amazon had the salivix ordinary, but chemist still says they can't get them

I'm having terrible problems with my eyes as there's been supply issues with the xailin and the viscotears.

Am booked in with opthalmology as they are so sore and scratchy.

I think I have developed nephritis

Dottie11 profile image
Dottie11 in reply to donnabrain

Same here re Salivax plus. I use Thealoz eye drops in the day and the gel ones at night. Maybe they might help. Good luck.

donnabrain profile image
donnabrain

Thanks Will give those a try.

I also have a warm eye mask arriving tomorrow.

Typed that late last night and was tired.

Did not mean nephritis

Meant scleritis 😑

Dottie11 profile image
Dottie11 in reply to donnabrain

Oh really painful. Good luck.

donnabrain profile image
donnabrain in reply to Dottie11

Thanks you