Resource: Sjogrens Syndrome Foundation - USA

[SusieW2]

I just found this site which has a lot of information for patients: sjogrens.org/home/about-sjo.... I hope you all find something useful there.

[HollyHeski]

Sorry, link not working?

[goodymommy]

Yikes , it didn't work . Hate that .

[milkwoman]

Looks like this is the correct link the OP is recommending:

sjogrens.org/home/about-sjo...

[harmony2]

Yes. This is much better than the UK site. Sometimes I have family members ask if there is a specific gift I would like, if that happens I plan to ask for a membership to this site.

Also Johns Hopkins Medical Centre is okay.

In my observation you have to find several decent sites and pull together information from all of them because so many of them are not very complete

😞. Most simply do not fully include the extent of the systemic and body-wide impacts of Sjogrens