Body Temperature

[SuzanneMaree123]

Hi Does Sjogren's cause the body to be unable to maintain temperature control. Hot cold sweats etc. This could be attributed to menopause. So how do we know what is causing these symptoms, menopause or Sjogrens?

[Suzie509]

I’m terrible hot, or cold when everyone around me are just fine! I get really embarrassed with hot sweats. I constantly feel shot wet mess!🐩

[Megansheart]

I don’t have any problem with hot sweats or flushes but since developing Sjogren’s thirteen years ago, I have had trouble with keeping warm.

As I think I have mentioned on this site before, most days for some strange reason I get freezing cold in the mid to late afternoon. The coldness lasts for two or three hours then lifts and I feel warm again.

I know it seems irrational on one level but it also seems to fit with an autonomic dysequilibrium which can accompany Sjögren’s.

[Shoad]

Hi Suzanne

I have raynauds as well as Sjogrens so I do suffer in the cold but have never had hot/ cold sweats. If this is happening at night it could be menopausal if you are of that age or it could be a symptom of lymphoma which Sjögrens sufferers are at higher risk of developing , I don’t want to worry you but that is a symptom I would see my GP for if your really not sure if it’s related to the menopause. Wish you all the best.

[SusieW2]

I'm pretty sure that hormone imbalances are part of SS and probably other autoimmune conditions. Since I got a Naturopathic MD to prescribe a low dose of thyroid replacement and testosterone, my temperature regulation has much improved, hot and cold. As has my sleep!Improved sleep has reduced my daytime fatigue and allowed me to exercise more. Exercise has reduced my pain level and probably also improved my sleep. It's a closed loop. If you can't get RX try some homeopathic or other naturopathic treatments. If they help it might encourage a doctor to let you try hormones. There are some new studies coming out that confirm these correlations.

[25clai]

Definitely think it’s a Sjögrens thing. I had un diagnosed Sjögrens with all the lack of temperature regulation stuff going on prior to menopause, had problems with bad sweats etc, all put down to menopause. ( I always thought it was more going on, but drs kept telling me some women don’t have an easy time with menopause).

My disease symptoms were under control for a number of yrs, after diagnosis/treatment. recently ,all the temperature regulation stuff is back, along with more symptoms showing treatment no longer effective,or at least this is the conclusion of the Rheumatologist, gp, plus neurologist.

This is all 5 yrs post menopause,so my conclusion is that it can’t be written off to “menopause “, but must be part of the joy of Sjögrens! I had 5 yrs clear of this stuff!