Hi. I'm new around these parts, but I was hoping some people might be able to help me with some questions.
I currently have something up and I'm not terribly sure what. I originally thought Lupus, but there's a bit of a dead end there. Consultant can't guarantee I don't have it, but there isn't enough evidence to say I do and any evidence there is is pretty generic so it could pint to anything in that general area... including sjr... sjor... sjogren's. I've also been diagnosed with palindromic rheumatism, but after an evolution of symptoms Rheumy says PR wouldn't cause that.
Now I never even considered SjS (that's what I'll call it for now) before and even after taking a peek at it I immediately turned my focus away because of dry eyes and mouth being mentioned as a big part- I would obviously know if my eyes were dry!
But according to somebody who's given me a handy few things to look into it's not as simple as that and I could well not know and it could even be something that's later than the rest developing. And that made me realise that although they don't feel dry I do have some issues with my eyes which I've stated to notice (odd issue with my vision on and off, sensitivity to light and sometimes watering or getting sticky) and a lot of the other symptoms of SjS do match other conditions I've been looking into and my own symptoms.
So apparently SjS isn't worth ruling out just yet and that's where you guys come in. I was hoping you could give e a bit of insight into how SjS actually feels and how I might go about checking if I have it?
For the record my main symptoms are aches/ pains, fatigue and some bouts of odd vision and dizzy/ uneasy moments. There are also other bits and bobs (like some skin issues), but honestly I don't think I could remember all of them to write down and there are some things I wouldn't know if are a symptom, just me or a totally normal thing everybody gets.
Thanks for reading and a huge thanks to anybody who can give me a little insight.