Weekend break???: Im just back from a... - The Australian Sj...

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Weekend break???

weathervane profile image
5 Replies

Im just back from a weekend break in Dublin had a relaxing time but maybe over did it walking round some beautiful gardens . Ive had to go to bed early as i feel drained, and i ache all over!! Its lovely at the time but boy do you suffer afterwards. Does anyone else suffer like this ?

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weathervane profile image
weathervane
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5 Replies
HollyHeski profile image
HollyHeski

I have found that I push myself too hard at times & when I stop for a break/rest/holiday everything crashes around me - mouth, eyes, hip pain, tiredness (exhaustion/fatigue) all hit at once.

Sounds like your weekend was worth it? Hope you get over it soon xx

weathervane profile image
weathervane in reply toHollyHeski

Hi hollyheski

The weekend was worth it, dispite the after effects. Its necessary for the family to be as normal as possible. Its funny the way a relaxing weekend does not quite workout that way🙄

Circus12345 profile image
Circus12345

Absolutely I suffer like that, and I'm sorry to hear you're paying the piper for your lovely vacation. Not sure if I'm right, but I always blame fibromyalgia and chronic fatigue syndrome for these episodes of exhaustion after some activity. I'm unable to work now, and it's gotten to the point that if I have to shop or attend a family event, or just want to meet friends for a bit, I pretty much have to rest the day before and the day after. It drives me crazy to be so limited in activity, but it's the only way I can survive. I've had FMS/CFS for 20 years, Sjogren's for at least 6 years, and Dercum's Disease for about 2 years. This elevated level of pain & exhaustion has plagued me for about 4 years.

Xxxxxxx profile image
Xxxxxxx

I thought I was just lazy. I sleep badly. Sunday night I couldn't sleep till 6am then slept till lunch time

When I do have a good night sleep I get up have breakfast and often sleep for the rest of the day.

If I go out for a couple of hours I am exhausted. Takes the next day to get over it.

Aches and pains all over plus my arms feel like lead.

I also get blurry vision when I first sit up but if I roll over in the dark I see silver flashes. Is this all to do with sjogrens?

weathervane profile image
weathervane

Hi Xxxxxx

I was like that before i started treatment- plaquenil and rituximab. Things have improved a bit, not tired all the time and muscle and joint pain not as severe. Are you on treatment? It is a long haul managing sjorgrens😟

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