Help develop better treatments for pain crises

The SCAPE project is looking at improving the pain medications given in hospital during a sickle cell crisis. In order to do this, they need to understand about your experiences of treatment. Whether you've had a positive or negative experience in the past, now's the time to make your voice heard. Find out more and participate here:

2 Replies

  • Hi, just to let you know I've forwarded the link onto the nursing staff and genetic counselors at Cardiff sickle cell and thalassaemia centre.

  • People who have the disease aren't the only ones who have crisis ..please do some research anybody please! We need help. I have a five yr old son who has pain in the morning when trying to urinate this is seriously troubling me that no one seems to care about trait carriers

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